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Re: Idebenone

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Laurie,

At the conference, did they say Idebenone was in the process of FDA

approval as a prescription drug? Interesting. I did not know that.

For some reason, I had assumed it would be OTC as a supplement, but

haven't followed it closely at all.

Barbara

> >>

> >> Hello all:

> >>

> >> I havn't posted in awhile. I was just wondering if anyone is

aware

> > or

> >> if they take Idebenon. It's a CoQ10 analog - a synthetic version

> > of

> >> CoQ10. My 18 year old son, who has mitochondrial disorder, has

> > been

> >> taking 400mg daily of Sam's Club brand CoQ10 and he has always

had

> >> difficulty sleeping - chronic fatigue. Usually he stays up all

> > night

> >> and goes to sleep during the day. His doctor, Dr Ambrus, said

> > that

> >> some of his patients tolerate this Idebenon better and allows

them

> > to

> >> sleep. My son is to take 2 doses at 45mg per day.

> >>

> >> Any feedback is appreciated - also if you can recommend a place

to

> >> buy on line or in the Western New York area. Here is a link to

> > some

> >> information on Idebenon:

> >>

> >> http://www.smart-drugs.net/South-idebenone.htm

> >>

> >> Thanks

> >> jim

> >

> >

> >

> >

> >

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