Re: Just got back from our first appointment

[Guest guest]

Oh my goodness 9 hours in the car. You poor thing. The things we

all do for our kids

I am glad to hear that everything at the appointment went well for

you. But you know may amaze you and figure out how to get

around quite well in the casts. My Becky was recasted at about 10

mos old, and actually could WALK in the casts, I have no idea how

(she is bilateral too!!) When we went in and got that set changed

they were cracked and broken around the knees and ankles. LOL Now

she walks in her DBB.

I hope that things continue to go well, and before you know it

you are going to be done with the casting and well on to the DBB.

and BEcky 11/12/01, bilateral clubfoot

> It took us 4.5 hours to get to Shriner's Hospital in

Massachusetts.

> Then my son was examined by Dr. Mack's assistant who just couldn't

> believe I spoke with Dr. Ponseti on the phone. He kept asking me

> questions about what Dr. Ponseti said and then told me they will

be

> seeing Dr. Ponseti in Baltimore, I guess at some conference or

> something coming up? Anyway, after waiting about an hour Dr. Mack

> came in and rated his feet as severe. He estimates 8 casts because

of

> his age, but that's just an estimate. The assistant told me

they've

> never had to operate on clubfeet, other than the tenotomy. The

casts

> they put on look just like the pictures on Dr. Ponseti's website

and

> they both know Dr. Ponsti and respect him a lot. So I'm feeling

> pretty good about them following Ponseti's method.

>

> The only thing that made me a little nervous was they said they

are

> using a different kind of brace rather than the DBB, although he

said

> if I wanted to use the bar that was fine with him. He talked about

> overcorrecting the feet and told me about the difference between

> Ponseti casting and other casting methods. My son hated having the

> casts put on, but I could tell they weren't hurting him and he

> doesn't seem to be hurting now.

>

> I can tell it's going to be very difficult for him to crawl with

> these casts on and I share other parents', who started this late,

> frustration that we could've been long past casts by now if we'd

> known about this sooner. But I'm feeling very positive about the

> outcome and if there seems to be any problem along the way I am

> heading straight to Iowa and Dr. Ponseti himself.

>

> Thanks to everyone who's answered my questions and encouraged me

to

> go with a Ponseti doctor. It's made all the difference. From now

on

> we're going to get an early morning appointment and I'll go down

the

> day before and stay overnight, 9 hours in the car once a week is

just

> too much for both of us.

>

> and born 11/10/03 with bilateral clubfeet

[Guest guest]

,

That is very good news about no foreseen problems! 8 casts may sound like

alot but it is better than surgery. I have a question about the brace

they use. If they don't use the DBB, what are they using?

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

, I'm sure that you are relieved and feel that you are in good

hands! That is such an incredible feeling! Just curious, which

brace are they using? Is the new prototype that's being developed by

Shriners? Let us know if you hear more about it.

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

> It took us 4.5 hours to get to Shriner's Hospital in Massachusetts.

> Then my son was examined by Dr. Mack's assistant who just couldn't

> believe I spoke with Dr. Ponseti on the phone. He kept asking me

> questions about what Dr. Ponseti said and then told me they will be

> seeing Dr. Ponseti in Baltimore, I guess at some conference or

> something coming up? Anyway, after waiting about an hour Dr. Mack

> came in and rated his feet as severe. He estimates 8 casts because

of

> his age, but that's just an estimate. The assistant told me they've

> never had to operate on clubfeet, other than the tenotomy. The

casts

> they put on look just like the pictures on Dr. Ponseti's website

and

> they both know Dr. Ponsti and respect him a lot. So I'm feeling

> pretty good about them following Ponseti's method.

>

> The only thing that made me a little nervous was they said they are

> using a different kind of brace rather than the DBB, although he

said

> if I wanted to use the bar that was fine with him. He talked about

> overcorrecting the feet and told me about the difference between

> Ponseti casting and other casting methods. My son hated having the

> casts put on, but I could tell they weren't hurting him and he

> doesn't seem to be hurting now.

>

> I can tell it's going to be very difficult for him to crawl with

> these casts on and I share other parents', who started this late,

> frustration that we could've been long past casts by now if we'd

> known about this sooner. But I'm feeling very positive about the

> outcome and if there seems to be any problem along the way I am

> heading straight to Iowa and Dr. Ponseti himself.

>

> Thanks to everyone who's answered my questions and encouraged me to

> go with a Ponseti doctor. It's made all the difference. From now on

> we're going to get an early morning appointment and I'll go down

the

> day before and stay overnight, 9 hours in the car once a week is

just

> too much for both of us.

>

> and born 11/10/03 with bilateral clubfeet

[Guest guest]

> , I'm sure that you are relieved and feel that you are in good

> hands! That is such an incredible feeling! Just curious, which

> brace are they using? Is the new prototype that's being developed

by

> Shriners? Let us know if you hear more about it.

>

> Daiga and Owen, 02/04/03

> Unilateral LCF, FAB 14/24

Next time we go I'll ask him to tell me more about the brace. I

remember him saying it holds the feet at the same position as the

DBB, but is easier to use. I can see how a brace would make it easier

for children to walk, but I'm skeptical because it's not something

Dr. Ponseti uses. When I know more about it I'll ask Dr. Ponseti what

he thinks.

[Guest guest]

> , I'm sure that you are relieved and feel that you are in good

> hands! That is such an incredible feeling! Just curious, which

> brace are they using? Is the new prototype that's being developed

by

> Shriners? Let us know if you hear more about it.

>

> Daiga and Owen, 02/04/03

> Unilateral LCF, FAB 14/24

Next time we go I'll ask him to tell me more about the brace. I

remember him saying it holds the feet at the same position as the

DBB, but is easier to use. I can see how a brace would make it easier

for children to walk, but I'm skeptical because it's not something

Dr. Ponseti uses. When I know more about it I'll ask Dr. Ponseti what

he thinks.

[Guest guest]

I'm glad to hear is doing so well! Good for her, I know you

were worried.

is doing much better. He is crawling with the casts on, but

still gets " stuck " because he can't go backward or sit once he's in

the crawling position. He's also had some trouble sleeping and I'm

not sure what's going on with that.

> > It took us 4.5 hours to get to Shriner's Hospital in

> Massachusetts.

> > Then my son was examined by Dr. Mack's assistant who just

couldn't

> > believe I spoke with Dr. Ponseti on the phone. He kept asking me

> > questions about what Dr. Ponseti said and then told me they will

> be

> > seeing Dr. Ponseti in Baltimore, I guess at some conference or

> > something coming up? Anyway, after waiting about an hour Dr. Mack

> > came in and rated his feet as severe. He estimates 8 casts

because

> of

> > his age, but that's just an estimate. The assistant told me

> they've

> > never had to operate on clubfeet, other than the tenotomy. The

> casts

> > they put on look just like the pictures on Dr. Ponseti's website

> and

> > they both know Dr. Ponsti and respect him a lot. So I'm feeling

> > pretty good about them following Ponseti's method.

> >

> > The only thing that made me a little nervous was they said they

> are

> > using a different kind of brace rather than the DBB, although he

> said

> > if I wanted to use the bar that was fine with him. He talked

about

> > overcorrecting the feet and told me about the difference between

> > Ponseti casting and other casting methods. My son hated having

the

> > casts put on, but I could tell they weren't hurting him and he

> > doesn't seem to be hurting now.

> >

> > I can tell it's going to be very difficult for him to crawl with

> > these casts on and I share other parents', who started this late,

> > frustration that we could've been long past casts by now if we'd

> > known about this sooner. But I'm feeling very positive about the

> > outcome and if there seems to be any problem along the way I am

> > heading straight to Iowa and Dr. Ponseti himself.

> >

> > Thanks to everyone who's answered my questions and encouraged me

> to

> > go with a Ponseti doctor. It's made all the difference. From now

> on

> > we're going to get an early morning appointment and I'll go down

> the

> > day before and stay overnight, 9 hours in the car once a week is

> just

> > too much for both of us.

> >

> > and born 11/10/03 with bilateral clubfeet