Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 I haven't been reading all of the posts, due to a lack of time, so maybe I have missed some of what is going on. I just want to say that I am concerned that the shoe keeps coming off. When Kaitlin got her s, made them more than a size too big for her so that they would last a long time. So big, that her toes did not even completely reach the bottom straps...her shoes never came off, not even once. I don't know what everyone else has suggested the problem may be, but I would question if it could possibly be the width of his foot or something. If the top strap is tight enough then it doesn't seem possible to me that the shoes could come off (unless his feet are made of silly putty:-). Is his foot completely out of the shoe altogether?? I am really stumped, but trying to help. I just can't imagine it, although I believe you 100%. I don't think the problem is the heels not going back. that is normal, kaitlin's still haven't completely filled out the heel part, I believe that was intentionally done by to prevent pressure sores. When you put the shoes on, is the yellow flap that goes vertical in the back of the heel completely flat? the only thing I can come up with is that maybe it is bent forward when you buckle the shoe, which could possibly make it seem like you are putting them on tight at the time. Then if Tommy wiggles his foot and straightens the piece out, the shoes are suddenly loose enough to wiggle out of. I am not sure if that is possible, but I know that sometimes, Kaitlin's rubber piece would get bent inward with all of the wiggling with trying to put them on. It seems like that could possibly happen. I hope that description makes sense. Also, it did take 2 of us to put them on at first because we werent' used to doing it. One to distract/hold and one to concentrate on getting them on. Have you talked to about this? Keep us informed! Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Hi Our son (5mths)has been in the s for about 5 weeks now. At first, we found it difficult to get them on, but through trial and error, we have just about got it sussed now. never stays still, so for the first 2-3 weeks I timed it so that his 'free' time was before bed. He'd play for a bit, have a bath and then I would feed him and he would fall asleep. I then laid him on the bed, with his feet at the edge and me kneeling on the floor in front of him and then put his sandals on while he was asleep and relaxed. I had to go easy and slowly and sometimes he'd fidget a bit, but it worked. It helped me to get used to them and work out the best way to put them on. I have tried putting the mitchells on whilst is on my lap but it has never worked. I always lay him down either on the bed, a changing mat or the settee. He needs to be as calm as possible, so we have distracted him with the TV, singing, soother, someone else playing with the 'top end' - anything to stop him taking notice of what is going on with his feet! As for putting them on, I find it easier to have his leg fairly straight, slide one foot in as far as possible, and whilst holding it in this position (ie. holding the back of the leg against the yellow bit at the back - this is really important - if I let go, then I may as well start again), bend his leg so that the sole of the sandal is flat on the surface.Not letting go of this position, I put my finger and thumb (other hand now!)on either side of his ankle and try and gently try and wiggle his foot back a bit more. Whenever I'm happy with the position, I smooth the flap over his ankle and hold it really firmly. Whatever happens now, I don't let go of the flap(keep it tight) and continue holding the back of his leg against the yellow plastic. Then I do the middle buckle up nice and tight. Once this is done, I do the top one and then the bottom one. Then I do the other foot the same way. has one foot worse than the other, so I always do the difficult one first. I then check all the buckles to make sure there are no kinks in the material, and all the buckles are nice and tight. Often, after being out of the shoes, 's feet are really warm and a bit swollen due to the increased circulation. although I do the buckles tight, if I check them an hour later, I can sometimes get the them a bit tighter. 's feet have never come out of the sandals, but they have slipped a very small amount occasionally. If I notice any slippage, I always take them off and put them back on again. I'm paranoid about him getting blisters/sores so always try and ensure the sandals are on correctly and nice and tight. 's heels couldn't be seen when we first put the sandals on, but now the left one goes in very easily. The right is more difficult but the heel is probably 3/4 of the way down now which is promising! This is just our experience - hopefully some of it will be helpful! Good luck, Stella > > As most of you know we have been having problems with the s > slipping off. Although better, we still have issues with the left > falling off. After 7 weeks of full time wear I still am worried that > his heels are not down enough. Some of you suggested bending the > knee when putting them on. Do you do this with the baby on your lap > or laying in front of you? I have tried both ways and he seems to > squirm or roll over before I can get the straps buckled. The usual > way I do it is with him on my lap and I push his foot back as far as > it will go and then dorsiflex the foot as I do the straps. I tighten > as much as I can but sometimes it is off in a few hours. When I try > this while bending the knee it just seems like I am at a bad angle > and can't get the straps done quickly enough. Are we talking a 2 man > operation here? > > Thanks in advance, > > Tommy Lee 4/23/04...Mommy is entering me a Strongman competition, > where I will have to pull a car with my two front teeth and Houdini > my way out of these darn shoes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 We too had most of the problems with the left, we actually made a few more holes in the top strap. Dr. Ponseti had told us in the beginning of shoe wear it was a 2 man job to get them on correctly. If you can, have your husband help, otherwise, I would try finding a special toy or something to eat while you are holding him to get him to stay still for a little bit...we had problems too and then found out had relapsed. His feet hurt and so he didn't want to allow me to get them in all the way. Is Tommy Lee in physical therapy at all? Have the physical therapist look at his feet. I really would recommend taking pictures and sending them to your dr. and then stretching his feet pretty hard in the off time. Or if you live close enough, getting in to have him look at them. Just to be safe. Lord bless you both! > > As most of you know we have been having problems with the s > slipping off. Although better, we still have issues with the left > falling off. After 7 weeks of full time wear I still am worried that > his heels are not down enough. Some of you suggested bending the > knee when putting them on. Do you do this with the baby on your lap > or laying in front of you? I have tried both ways and he seems to > squirm or roll over before I can get the straps buckled. The usual > way I do it is with him on my lap and I push his foot back as far as > it will go and then dorsiflex the foot as I do the straps. I tighten > as much as I can but sometimes it is off in a few hours. When I try > this while bending the knee it just seems like I am at a bad angle > and can't get the straps done quickly enough. Are we talking a 2 man > operation here? > > Thanks in advance, > > Tommy Lee 4/23/04...Mommy is entering me a Strongman competition, > where I will have to pull a car with my two front teeth and Houdini > my way out of these darn shoes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Hello . Sometimes it takes 2 of us to get 's shoes on. She is a squirmy squirm squirm! She will roll over 3 times while I try to get the shoes on, so hubby has to help hold her and hold her foot/leg still. It has become a horrible experience and I hate putting the shoes back on. It almost takes 20 minutes. We do not have the issue of them coming off though. My only suggestion, which I'm sure you already do, is make them super, super tight. Have you tried extra thick socks? I hope this helps. Keep us posted. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Also, have any of you who use the s had issues with the tongue bunching up? I will lay it flat but as soon as I get the strap super tight, the tongue bunches up. I know this is uncomfortable for , so I will start over. But the same thing happens every time. This didn't happen with her previous pair, but this pair the tongue just won't cooperate! Any suggestions? Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 I wanted to add too that we had problems with the width as well. Once we got the bigger shoe and then figured out to add holes to top strap, they stayed on pretty well, but by then he had relapsed. I strongly recommend checking the size and then taking pictures or getting him to the dr. to make sure he hasn't had a relapse and that's why the shoe is just not staying on. > > > > As most of you know we have been having problems with the s > > slipping off. Although better, we still have issues with the left > > falling off. After 7 weeks of full time wear I still am worried that > > his heels are not down enough. Some of you suggested bending the > > knee when putting them on. Do you do this with the baby on your lap > > or laying in front of you? I have tried both ways and he seems to > > squirm or roll over before I can get the straps buckled. The usual > > way I do it is with him on my lap and I push his foot back as far as > > it will go and then dorsiflex the foot as I do the straps. I tighten > > as much as I can but sometimes it is off in a few hours. When I try > > this while bending the knee it just seems like I am at a bad angle > > and can't get the straps done quickly enough. Are we talking a 2 man > > operation here? > > > > Thanks in advance, > > > > Tommy Lee 4/23/04...Mommy is entering me a Strongman competition, > > where I will have to pull a car with my two front teeth and Houdini > > my way out of these darn shoes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 We never had the shoes, but we had the straight flat bar first and that was a nightmare to keep on until we got the red angled bar from the U of I. From what I have read on this board, I haven't heard of anyone doing it this way, but maybe I just missed it. I marked on the screws on the bottom, the exact mark where they should line up. Then I unscrewed the right one (Emma's worse foot was the right) and put that on like a regular shoe. She would lay in front of me. Then I would put the other on (leaving it attached to the bar). Then put the screw in and line it up and screw it in tight. I used the little wrench thing sent with the shoes until I lost it, then I just used a regular flathead screw driver. I always felt like I was getting the foot in more securely this way. Everyone else (my husband & my girlfriend who watched the baby for several months during full-bar time) always thought it was more complicated and hard to do it my way. But let me tell you, I was the only one the shoes would stay on for! :-) Emma still wears her bar at night, and it's gotten to be such a routine that she asks for her " ni-night " shoes after bath and pj's. She's 2 now. We had a set back with that first bar, it put us that far behind in treatment. Plus her feet were pretty bad to begin with, and we had cast after cast, and shoes, and this fall she had the ATTT on her right foot. She has always had something on those tootsies, she is so used to it. Once you get into a routine and the baby gets older, it will get easier, I promise! :-) Emma is so still for me now that I don't even unattach the right shoe any longer. As far as a " 2 man job " , I admit that there were many times in the beginning where I had to wrap my leg around hers (with her laying in front of me) so my leg was pretty much on top of her, to deter the kicking. Plus that helped her to not whip her leg up and hit herself in the head, which she did do a couple of times, poor thing! :-( Hope some of this helps for you, like I said, we had the regular shoes, not the mitchell's so hopefully it may work with those as well! Good Luck and Have a Happy New Year! www.pediatric-orthopedic-foundation.org > > As most of you know we have been having problems with the s > slipping off. Although better, we still have issues with the left > falling off. After 7 weeks of full time wear I still am worried that > his heels are not down enough. Some of you suggested bending the > knee when putting them on. Do you do this with the baby on your lap > or laying in front of you? I have tried both ways and he seems to > squirm or roll over before I can get the straps buckled. The usual > way I do it is with him on my lap and I push his foot back as far as > it will go and then dorsiflex the foot as I do the straps. I tighten > as much as I can but sometimes it is off in a few hours. When I try > this while bending the knee it just seems like I am at a bad angle > and can't get the straps done quickly enough. Are we talking a 2 man > operation here? > > Thanks in advance, > > Tommy Lee 4/23/04...Mommy is entering me a Strongman competition, > where I will have to pull a car with my two front teeth and Houdini > my way out of these darn shoes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 If the 's are similar to the regular shoes, just take the toungue out. Our doctor told us that it didn't matter if it was in or not, and if taking it out helped the shoe stay on, then go for it! So it shouldn't hinder anything as far as treatment goes, if you just took it out for comfort's sake. The flat bar we had in the beginning took us through so much trial and error! Life was so much better once we got the red angled bar. I don't know, you might try it for a couple days to see if that helps. Good Luck! :-) www.pediatric-orthopedic-foundation.org > Also, have any of you who use the s had issues with the tongue > bunching up? I will lay it flat but as soon as I get the strap super > tight, the tongue bunches up. I know this is uncomfortable for , so > I will start over. But the same thing happens every time. This didn't > happen with her previous pair, but this pair the tongue just won't > cooperate! Any suggestions? > > > > > > > Shook > Retail Operations Manager/Baking Instructor > Vie de France Yamazaki, Inc. > 2070 Chain Bridge Rd. Suite 500 > Vienna, VA 22182 > x374 > x374 > fax > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 My is doing the same thing and we have been in these shoes since October. I figured it out last night. It needs to be a 2 person operation. My husband holds the bottom of the shoe with one hand the the other holds the knee bent. Then I make sure the toes are set and tighten those buggers the best I can. And has not slipped at all since last night. giannasmommy2002 nannylulu@...> wrote: As most of you know we have been having problems with the s slipping off. Although better, we still have issues with the left falling off. After 7 weeks of full time wear I still am worried that his heels are not down enough. Some of you suggested bending the knee when putting them on. Do you do this with the baby on your lap or laying in front of you? I have tried both ways and he seems to squirm or roll over before I can get the straps buckled. The usual way I do it is with him on my lap and I push his foot back as far as it will go and then dorsiflex the foot as I do the straps. I tighten as much as I can but sometimes it is off in a few hours. When I try this while bending the knee it just seems like I am at a bad angle and can't get the straps done quickly enough. Are we talking a 2 man operation here? Thanks in advance, Tommy Lee 4/23/04...Mommy is entering me a Strongman competition, where I will have to pull a car with my two front teeth and Houdini my way out of these darn shoes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Maybe you could trim the excess tongue. I did that on my first pair and it helped. Also, have any of you who use the s had issues with the tongue bunching up? I will lay it flat but as soon as I get the strap super tight, the tongue bunches up. I know this is uncomfortable for , so I will start over. But the same thing happens every time. This didn't happen with her previous pair, but this pair the tongue just won't cooperate! Any suggestions? Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Hi , Yes it does make sense about the rubber piece telescoping down. Be sure to check the leather that goes around the back of it, sometimes I have noticed that it slides upwards and that pulls the rubber piece down and in. I am sorry to hear about the blister. We always give the rubber piece a little tug up to make sure it is in the right place after putting the shoes on. Just curious, why did Dr. Ponseti say to reduce the angle? Are his feet all the way corrected? Is the angle going to stay at 40 for the rest of the time? Yeah, the top strap does squish the calf, kind of like the casts used to. I remember I could always see where Kaitlin's leg had grown around the compression of the cast in between changings. It was the same way around her ankles when she wore the s 24/7, but it has leveled out now. I don't think it is uncomfortable to them though. So you are so pathetic that when you watched What not to Wear and couldn't quit checking out my baby's feet?? LOL. I am just kidding with you. I would probably have done the same if it were someone elses clubfoot baby on tv... I don't think you were the only one who did that! I know I can barely take my eyes off of her feet everytime she stands up.. Someone (cant remember who)said her feet didnt look completely corrected on the show. So little old obsesive me went back and watched the whole episode again fast forwarding to shots of her/her feet, just trying to see what made them think that...talk about pathetic...she was sitting right next to me (feet and all) and there I was watching tv just to look at her feet!! Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Hi , I have actually talked to Dr. Ponseti about this and after reviewing the pictures I sent he had me change the angle on the shoes to 40 degrees instead of 70 degrees. It has been better since then but not perfect. That rubber yellow piece in the back of the shoe seems to almost telescope down when the shoes are on...does that make sense? And I think it is causing a blister on his right foot. I have a band aid on it know. I don't think they are too big as his toes are about an inch past the first toe strap. I guess I will try to tighten the top strap some more. I guess that is the one I am worried about doing too tight as it seems to really squish his leg. The middle strap to get the foot down if defintely as tight as it will go. Thanks for the advise. P.S.: I am so obsessed with feet that when I watched your " What not to wear " I was only lookin for and at Kaitlins feet everytime she was on screen! I am pathetic. > I haven't been reading all of the posts, due to a lack of time, so maybe I > have missed some of what is going on. > > I just want to say that I am concerned that the shoe keeps coming off. When > Kaitlin got her s, made them more than a size too big for her so > that they would last a long time. So big, that her toes did not even > completely reach the bottom straps...her shoes never came off, not even once. > I don't know what everyone else has suggested the problem may be, but I would > question if it could possibly be the width of his foot or something. If the > top strap is tight enough then it doesn't seem possible to me that the shoes > could come off (unless his feet are made of silly putty:-). Is his foot > completely out of the shoe altogether?? I am really stumped, but trying to help. I > just can't imagine it, although I believe you 100%. > I don't think the problem is the heels not going back. that is normal, > kaitlin's still haven't completely filled out the heel part, I believe that was > intentionally done by to prevent pressure sores. > When you put the shoes on, is the yellow flap that goes vertical in the back > of the heel completely flat? the only thing I can come up with is that maybe > it is bent forward when you buckle the shoe, which could possibly make it seem > like you are putting them on tight at the time. Then if Tommy wiggles his > foot and straightens the piece out, the shoes are suddenly loose enough to > wiggle out of. I am not sure if that is possible, but I know that sometimes, > Kaitlin's rubber piece would get bent inward with all of the wiggling with trying > to put them on. It seems like that could possibly happen. I hope that > description makes sense. > Also, it did take 2 of us to put them on at first because we werent' used to > doing it. One to distract/hold and one to concentrate on getting them on. > > Have you talked to about this? > > Keep us informed! > Freeman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 , I was able to get the top straps two more holes tighter after fixing his scrunched sock and the little tongue piece by the top strap. So hopefully that was the problem. His little fat calf is ballooning over the top but he doesn't seem uncomfortable. Thanks, > I haven't been reading all of the posts, due to a lack of time, so maybe I > have missed some of what is going on. > > I just want to say that I am concerned that the shoe keeps coming off. When > Kaitlin got her s, made them more than a size too big for her so > that they would last a long time. So big, that her toes did not even > completely reach the bottom straps...her shoes never came off, not even once. > I don't know what everyone else has suggested the problem may be, but I would > question if it could possibly be the width of his foot or something. If the > top strap is tight enough then it doesn't seem possible to me that the shoes > could come off (unless his feet are made of silly putty:-). Is his foot > completely out of the shoe altogether?? I am really stumped, but trying to help. I > just can't imagine it, although I believe you 100%. > I don't think the problem is the heels not going back. that is normal, > kaitlin's still haven't completely filled out the heel part, I believe that was > intentionally done by to prevent pressure sores. > When you put the shoes on, is the yellow flap that goes vertical in the back > of the heel completely flat? the only thing I can come up with is that maybe > it is bent forward when you buckle the shoe, which could possibly make it seem > like you are putting them on tight at the time. Then if Tommy wiggles his > foot and straightens the piece out, the shoes are suddenly loose enough to > wiggle out of. I am not sure if that is possible, but I know that sometimes, > Kaitlin's rubber piece would get bent inward with all of the wiggling with trying > to put them on. It seems like that could possibly happen. I hope that > description makes sense. > Also, it did take 2 of us to put them on at first because we werent' used to > doing it. One to distract/hold and one to concentrate on getting them on. > > Have you talked to about this? > > Keep us informed! > Freeman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 , IFrom what I have heard Dr. Ponseti sets the angle different on each case. Tommy has an atypical severe clubfoot deformity so he said 40- 50 degrees would be best for him. He said the feet were fully corrected but was a little concerned about his dorsiflexion and thought he might need another cast or to to increase it. But when I took the photos of his feet I thought I was pushing up as far as I could go and his foot went to about neutral in the pictures. But when he went for his check up on Dec16th with Dr. Herzenberg he really got those feet up and dorsiflexed. I think I was being to gentle and he was crying when I did it so I didn't push as hard as I could have. Any way Dr. Herzenberg was very happy with his feet...said they looked beautiful. He gave us the credit as when the shoes were first on they were falling off or slipping well over a dozen times a day. I had callouses on both my index fingers from reapplying them and trying to get them tight enough. At one point my fingers were bleeding! I guess some parents wouldn't have been as diligent but I can't imagine giving up. Well these shoes have not moved an inch in the last few hours so hopefully the top strap was the problem. I let you know if he wakes up chewing on his sock waving his bare foot in the air like usual. Tommy Lee 4/23/04 > Hi , > Yes it does make sense about the rubber piece telescoping down. Be sure to > check the leather that goes around the back of it, sometimes I have noticed > that it slides upwards and that pulls the rubber piece down and in. I am sorry to > hear about the blister. We always give the rubber piece a little tug up to > make sure it is in the right place after putting the shoes on. > Just curious, why did Dr. Ponseti say to reduce the angle? Are his feet all > the way corrected? Is the angle going to stay at 40 for the rest of the time? > > Yeah, the top strap does squish the calf, kind of like the casts used to. I > remember I could always see where Kaitlin's leg had grown around the > compression of the cast in between changings. It was the same way around her ankles > when she wore the s 24/7, but it has leveled out now. I don't think it > is uncomfortable to them though. > > So you are so pathetic that when you watched What not to Wear and couldn't > quit checking out my baby's feet?? LOL. I am just kidding with you. I would > probably have done the same if it were someone elses clubfoot baby on tv... I > don't think you were the only one who did that! I know I can barely take my eyes > off of her feet everytime she stands up.. > Someone (cant remember who)said her feet didnt look completely corrected on > the show. So little old obsesive me went back and watched the whole episode > again fast forwarding to shots of her/her feet, just trying to see what made them > think that...talk about pathetic...she was sitting right next to me (feet and > all) and there I was watching tv just to look at her feet!! > > Freeman > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.