Re: Question about club foot types

[Guest guest]

Hi Keri.

Bilateral clubfoot is when both feet are affected. Unilateral clubfoot is

when only 1 foot, right or left, is affected. Atypical is a more severe

form of clubfoot, usually the feet are smaller and fatter and a crease in

the bottom of foot. Atypical is also harder to treat. Other persons can

give better decriptions of atypical than me.

Who is your doctor? What troubles are you having with the DBB?

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

Hi Keri.

Bilateral clubfoot is when both feet are affected. Unilateral clubfoot is

when only 1 foot, right or left, is affected. Atypical is a more severe

form of clubfoot, usually the feet are smaller and fatter and a crease in

the bottom of foot. Atypical is also harder to treat. Other persons can

give better decriptions of atypical than me.

Who is your doctor? What troubles are you having with the DBB?

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

Hi, Keri, and welcome.

Congratulations on your little boy!

Just a quick answer to part of your question...

Bilateral just means both feet affected. Unilateral is one foot.

Others can tell more about atypical feet, which obviously is not as

frequent a diagnosis.

You said your baby 'hates' the brace. How long has it been that he's

been in it?

I want to throw out there.. that having difficulty wearing the brace

is 'sometimes' a warning sign. It's been our cumulative experience

here on the board, over much time, that those who have 'persistent'

problems adjusting to the brace often have a situation in which the

feet haven't been completely corrected, and the baby was put into the

brace too early, or the brace is set up wrong. The baby should

adjust within a short amount of time and be comfortable. What

specific difficulties are you having? Do the feet look good to you?

I'm sorry that I can't write more right now, but just wanted to

mention this .. We hope we can help you get your baby more

comfortable.

May we ask where you are located or what doctor you are seeing?

Glad you're here..

and Claire

>

> Ok, I don't know that much about clubfeet. I do know that my son

has

> a clubfoot and is being treated using the Ponseti method. We are

> currently doing our 3 month stint in the Markell's - 23/7(trying

> anyway). What a pain! He hates them.

>

> My question is this: What are the different types of club feet? I

> don't know which type my son has. I see words like bilateral and

> atypical and i don't know what they mean. Could someone please

shed

> some light for me? Thanks.

>

> Keri

> Jordan 8/19/04 rcf

[Guest guest]

My son's doctor is Dr. Lin. He works with Dr. Mark Rieger and Dr. Gaffney.

Their practice is the Pediatric Orthopedic center in Cedar Knolls, NJ. They

only use the Ponseti method from what I understand. They came highly

recommended my my son's pediatrician. I don't think my son has atypical.

He doesn't have the crease (I have seen pictures of that). He didn't need

surgery of any kind...just the castings and the brace.

Keri

Re: Question about club foot types

>

> Hi Keri.

>

> Bilateral clubfoot is when both feet are affected. Unilateral clubfoot is

> when only 1 foot, right or left, is affected. Atypical is a more severe

> form of clubfoot, usually the feet are smaller and fatter and a crease in

> the bottom of foot. Atypical is also harder to treat. Other persons can

> give better decriptions of atypical than me.

>

> Who is your doctor? What troubles are you having with the DBB?

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

[Guest guest]

Keri,

Have you tried the Blister Block pads from Band-Aid? They're more

expensive but they work well.

Do you have the newer style Markells with the padded collar? If you

have the old Markells, you'll want to look into getting the

plastizode inserts to keep his heel down and keep the foot from

moving.

& (3-16-00)

left clubfoot

[Guest guest]

Just an FYI but I thought I heard that in most cases of (but not all) atypical

clubfoot usually isn't diagnosed until after the tenotomy. That's when it shows

itself.. Don't quote me on that.. but I thought I heard that on this board some

time ago.. If I'm wrong please let me know..

--------- Re: Question about club foot types

>

> Hi Keri.

>

> Bilateral clubfoot is when both feet are affected. Unilateral clubfoot is

> when only 1 foot, right or left, is affected. Atypical is a more severe

> form of clubfoot, usually the feet are smaller and fatter and a crease in

> the bottom of foot. Atypical is also harder to treat. Other persons can

> give better decriptions of atypical than me.

>

> Who is your doctor? What troubles are you having with the DBB?

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

[Guest guest]

If you are getting a blister that won't heal it sounds like his heal

is slipping when you have the shoes on. Are you sure he doesn't need

the tentotomy do the toes come up well above the heal when you flex

them up? Make sure you have the strap tight enough and sometimes the

grippy socks help. Have you seen the tips and tricks post it has a

lot of good info on keeping the heals down.

My daughter has atypical bilateral clubfeet. Both of her feet are

affected (bilateral) they are short and chubby and we had a TERRABEL

time in the markell shoes. Her feet would not stay in them at all!

We had also tried AFO's and her feet would not stay in them either.

I e-mailed pictures to Dr Ponseti and he diagnosed her as atypical

from the pictures and our experience. We also started with a doctor

claiming to be doing the Ponseti method but he wasn't, note the

AFO's.

Also she was diagnosed as atypical before doing the tenotomy. HTH.

Tori 1/30/04 bilateral atypical cf shoes 18hrs a day

12/7/01 non cf

[Guest guest]

In our case, thats when Elijah was diagnosed w/ atypical club foot.

Basically, when you snip the Achilles tendon, the plantar tendon has

its way w/ the foot and tries to fold it over in half. The big toe

slumps down. Thats just w/ Plantaris tho'.. not ALL atypical feet are

that way.

Lori

and Elijah 7 mo RCF (atypical) DBB 23/7

> Just an FYI but I thought I heard that in most cases of (but not

all) atypical clubfoot usually isn't diagnosed until after the

tenotomy. That's when it shows itself.. Don't quote me on that.. but

I thought I heard that on this board some time ago.. If I'm wrong

please let me know..

> -------------- Original message --------------

>

[Guest guest]

In our case, thats when Elijah was diagnosed w/ atypical club foot.

Basically, when you snip the Achilles tendon, the plantar tendon has

its way w/ the foot and tries to fold it over in half. The big toe

slumps down. Thats just w/ Plantaris tho'.. not ALL atypical feet are

that way.

Lori

and Elijah 7 mo RCF (atypical) DBB 23/7

> Just an FYI but I thought I heard that in most cases of (but not

all) atypical clubfoot usually isn't diagnosed until after the

tenotomy. That's when it shows itself.. Don't quote me on that.. but

I thought I heard that on this board some time ago.. If I'm wrong

please let me know..

> -------------- Original message --------------

>

[Guest guest]

Heres a trick I was told about to help keep the heel down: Once you

get the heel all the way down and the toes peek out like they should,

leave a little of the toe of the sock loose so you can pull on it

throughout the day if you need to, in order to pull the toes forward

and keep the heel down. Also, I was told that thin socks work

better. I only have a few prs of thick socks and Elijah just seems

more comfy in the thin socks. Someone also mentioned grippy socks.

THEY WORK WONDERS!!!!!! Walmart only sells one kind. Its a pack of

3 made by Kid Connection. Old Navy sells 7 for $10 most of the time

and I think 'The Childrens Place' sells them too.

Lori

and Elijah 7 mo atypical RCF DBB 23/7

> To be honest, I don't think I am getting the heel in all the way

before tightening the shoe. Today, I made sure the heel was

down....his toes are the closest to the edge of the shoe as I have

ever seen them. When I pull on the leg his toes do not slide back

now. Hopefully, I am doing it correctly. I put a thicker sock on

his club foot so that it can't slip so easily. Also, he didn't fuss

or cry when I put the shoes on. Just went about his business of

staring at his fist.

>

> And yes, his toes come up well.

>

> Keri

> Re: Question about club foot types

>

>

>

> If you are getting a blister that won't heal it sounds like his

heal

> is slipping when you have the shoes on. Are you sure he doesn't

need

> the tentotomy do the toes come up well above the heal when you

flex

> them up? Make sure you have the strap tight enough and sometimes

the

> grippy socks help. Have you seen the tips and tricks post it has

a

> lot of good info on keeping the heals down.

> My daughter has atypical bilateral clubfeet. Both of her feet

are

> affected (bilateral) they are short and chubby and we had a

TERRABEL

> time in the markell shoes. Her feet would not stay in them at

all!

> We had also tried AFO's and her feet would not stay in them

either.

> I e-mailed pictures to Dr Ponseti and he diagnosed her as

atypical

> from the pictures and our experience. We also started with a

doctor

> claiming to be doing the Ponseti method but he wasn't, note the

> AFO's.

> Also she was diagnosed as atypical before doing the tenotomy.

HTH.

>

> Tori 1/30/04 bilateral atypical cf shoes 18hrs a day

> 12/7/01 non cf

>

>

>

>

>

>