Re: Question about club foot types

[Guest guest]

Hi, Keri, and welcome.

Congratulations on your little boy!

Just a quick answer to part of your question...

Bilateral just means both feet affected. Unilateral is one foot.

Others can tell more about atypical feet, which obviously is not as

frequent a diagnosis.

You said your baby 'hates' the brace. How long has it been that he's

been in it?

I want to throw out there.. that having difficulty wearing the brace

is 'sometimes' a warning sign. It's been our cumulative experience

here on the board, over much time, that those who have 'persistent'

problems adjusting to the brace often have a situation in which the

feet haven't been completely corrected, and the baby was put into the

brace too early, or the brace is set up wrong. The baby should

adjust within a short amount of time and be comfortable. What

specific difficulties are you having? Do the feet look good to you?

I'm sorry that I can't write more right now, but just wanted to

mention this .. We hope we can help you get your baby more

comfortable.

May we ask where you are located or what doctor you are seeing?

Glad you're here..

and Claire

>

> Ok, I don't know that much about clubfeet. I do know that my son

has

> a clubfoot and is being treated using the Ponseti method. We are

> currently doing our 3 month stint in the Markell's - 23/7(trying

> anyway). What a pain! He hates them.

>

> My question is this: What are the different types of club feet? I

> don't know which type my son has. I see words like bilateral and

> atypical and i don't know what they mean. Could someone please

shed

> some light for me? Thanks.

>

> Keri

> Jordan 8/19/04 rcf

[Guest guest]

Just an FYI but I thought I heard that in most cases of (but not all) atypical

clubfoot usually isn't diagnosed until after the tenotomy. That's when it shows

itself.. Don't quote me on that.. but I thought I heard that on this board some

time ago.. If I'm wrong please let me know..

--------- Re: Question about club foot types

>

> Hi Keri.

>

> Bilateral clubfoot is when both feet are affected. Unilateral clubfoot is

> when only 1 foot, right or left, is affected. Atypical is a more severe

> form of clubfoot, usually the feet are smaller and fatter and a crease in

> the bottom of foot. Atypical is also harder to treat. Other persons can

> give better decriptions of atypical than me.

>

> Who is your doctor? What troubles are you having with the DBB?

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

[Guest guest]

Keri.

Have you been to Dr. Ponseti's website? Your doctors are not listed as

authorized physicians on his list. Are you sure they are using exact

Ponseti protocol? I don't mean to be rude or pushy, but there are many

docs out there who claim they practice Ponseti method but sometimes defer

from the exact protocol. If you haven't been to his site, I highly

recommend it and do as much research as you can. My daughters 1st doc

also claimed he did Ponseti and to make a long story short, she relapsed

and we started treatment all over from the beginning when she was 5 months

with an authorized Ponseti doc.

Here is his site:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

I think atypical is characterized as a foot that does not respond as

expected to treatment when done properly by an authorized Ponseti

doctor. Case in point my Tommy had to have 9 weekly casts and then

the tenotomy. But instead of leaving those casts on for three weeks

they were changed every week to help lenthen the tendon even further.

I know kids with atypical short fat feet have a common problem of the

cats slipping. They also usually have a problem with the Markell

shoes so are using the sandals instead.

Tommy Lee 4/23/04 BLCF

In nosurgery4clubfoot , " "

wrote:

>

> If you are getting a blister that won't heal it sounds like his

heal

> is slipping when you have the shoes on. Are you sure he doesn't

need

> the tentotomy do the toes come up well above the heal when you flex

> them up? Make sure you have the strap tight enough and sometimes

the

> grippy socks help. Have you seen the tips and tricks post it has a

> lot of good info on keeping the heals down.

> My daughter has atypical bilateral clubfeet. Both of her feet are

> affected (bilateral) they are short and chubby and we had a

TERRABEL

> time in the markell shoes. Her feet would not stay in them at

all!

> We had also tried AFO's and her feet would not stay in them

either.

> I e-mailed pictures to Dr Ponseti and he diagnosed her as atypical

> from the pictures and our experience. We also started with a

doctor

> claiming to be doing the Ponseti method but he wasn't, note the

> AFO's.

> Also she was diagnosed as atypical before doing the tenotomy. HTH.

>

> Tori 1/30/04 bilateral atypical cf shoes 18hrs a day

> 12/7/01 non cf

[Guest guest]

I think atypical is characterized as a foot that does not respond as

expected to treatment when done properly by an authorized Ponseti

doctor. Case in point my Tommy had to have 9 weekly casts and then

the tenotomy. But instead of leaving those casts on for three weeks

they were changed every week to help lenthen the tendon even further.

I know kids with atypical short fat feet have a common problem of the

cats slipping. They also usually have a problem with the Markell

shoes so are using the sandals instead.

Tommy Lee 4/23/04 BLCF

In nosurgery4clubfoot , " "

wrote:

>

> If you are getting a blister that won't heal it sounds like his

heal

> is slipping when you have the shoes on. Are you sure he doesn't

need

> the tentotomy do the toes come up well above the heal when you flex

> them up? Make sure you have the strap tight enough and sometimes

the

> grippy socks help. Have you seen the tips and tricks post it has a

> lot of good info on keeping the heals down.

> My daughter has atypical bilateral clubfeet. Both of her feet are

> affected (bilateral) they are short and chubby and we had a

TERRABEL

> time in the markell shoes. Her feet would not stay in them at

all!

> We had also tried AFO's and her feet would not stay in them

either.

> I e-mailed pictures to Dr Ponseti and he diagnosed her as atypical

> from the pictures and our experience. We also started with a

doctor

> claiming to be doing the Ponseti method but he wasn't, note the

> AFO's.

> Also she was diagnosed as atypical before doing the tenotomy. HTH.

>

> Tori 1/30/04 bilateral atypical cf shoes 18hrs a day

> 12/7/01 non cf