Re: Not Sure what to do...am i being ignored?

December 12, 2004

Good morning,

I remember when Lhea (my 6 month old, bilateral clubbed feet) was being treated

here at home (CHICAGO), her doctor would manipulate her feet prior to casting.

Then when her casts were off, after her surgery and everything, we would have to

manipulate (massage but extending outward) for at least 15 mintues several times

a day.

I am not sure how this will work for your child but you can try that and I would

highly suggest you contact Dr. Ponseti at the University of Iowa.

aussymumof2 aussymumof2@...> wrote:

Hello all this is my first time here. I have a son who is 2 and a

half, born with clubfoot, he has had the casts, AFO's, Acillies

tendon extension surgery but his feet seem to still be affecting

himand the way he is walking (trips himself alot) and i have spoken

to our doctor but he seems to think that his feet are ok because the

joint is not tight anymore and that it is now up to cody (my son) to

learn to correct his feet. i have been told by my mother in-law that

takeing him to massage therapy me help...anyone who has had sucess

with massage please let me know! I am worried that Cody is use to

the way his feet are and he isnt going to correct them. Would like

to hear any ideas as what i should do. Thanks Guys!

December 12, 2004

Hi there and welcome to the group!

I have to say that I believe that whenever the 'mom' feels that

something is not quite right, chances are, she is right! After all,

who knows your child more than you do?

I don't have any personal experience with AFO's but to my knowledge

(what I've learned here and across the web), AFO's are not successful

in preventing relapse. Perhaps some other parents here who have

experience with AFO's can give you some better insight.

If at all possible, I would suggest taking your son to another doctor

for a second opinion. From your screen name, I'm assuming that

you're in Australia. There are 3 doctors in Australia listed on Dr.

Ponseti's site who use The Ponseti (non-surgical) Method of

treatment. Perhaps one of them is close enough to where you live and

you could get in to see them.

Here is the list:

Bellemore, M.D.

Suite 3, Ground Floor

Children's Hospital Centre

Hainsworth Street

Westmead, NSW 2145, Australia

Tel: (02) 9893-7394

Haemish Crawford, M.D.

Starship Children's Hospital

Private Bag 92024

Aukland, New Zealand

Tel: 09-379-7440

Email Dr. Crawford

Ponseti Club Foot Clinic

Monash Medical Centre, Clinic- B

Clayton, Melbourne

Tel: 9594 6666

Email Dr. Patel

Hope this helps! Take care and keep us posted!

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

>

> Hello all this is my first time here. I have a son who is 2 and a

> half, born with clubfoot, he has had the casts, AFO's, Acillies

> tendon extension surgery but his feet seem to still be affecting

> himand the way he is walking (trips himself alot) and i have spoken

> to our doctor but he seems to think that his feet are ok because

the

> joint is not tight anymore and that it is now up to cody (my son)

to

> learn to correct his feet. i have been told by my mother in-law

that

> takeing him to massage therapy me help...anyone who has had sucess

> with massage please let me know! I am worried that Cody is use to

> the way his feet are and he isnt going to correct them. Would like

> to hear any ideas as what i should do. Thanks Guys!

December 12, 2004

Aw poor Cody. He isn't going to correct his feet that I'm aware of. This

sounds very much like my oldest son who went through casting then AFO's. He

could hardly walk either and ended up having Dr. Ponseti's ATTT operation to

correct his feet because he was too old by then to do the traditional casting to

correct him. Each child is different, your child may not be too old for

casting if you found the right doctor.

Good luck!

s.

Not Sure what to do...am i being ignored?