Re: sores w/ DBB // allison

[Guest guest]

Hi !! Just wanted to chime in on the s subject...I

know that $380 is A LOT OF MONEY...trust me, I had to borrow it. I am

a SAHM and that really is a chunk of change. The bar is adjustable so

when Aidan outgrows the shoes you just need to order new shoes which

is $130 a shot...still not cheap but more manageable! And honestly,

after all Ethans issues with the Markells, I would pay the $380 every

single time if I had to. He is a completely different baby now...so

happy!! And he has been in the same pair of s since July and

they should last another month or so.

Sorry to go on and on...I just love the sandals and wouldn't

want the price to stop anyone from getting them!!

Tina

Dylan 3-21-00

Ethan 3-06-04 bcf Happy baby 15/7

#3 EDD 5-25-05

,

>

> I'm so sorry to hear about your problems with sores after using the

> Markell shoes. I received an email reply from Dr Ponseti yesterday, he

> mentioned that he uses the shoes almost exclusively now

> 'because they are more comfortable' and the babies don't get any sores.

>

>

> I'm holding thumbs that gets funding, or whatever he needs

> to start making his brace in larger volumes so they can be exported and

> supplied to more people outside those treated in Iowa.

>

> It doesn't affect us because is almost 2 and tolerates his Markells

> well, but if I'd had the choice back then (April 2003) I'd have gone for

> the 's!

>

> We are very happy that Dr Ponseti has just put onto night time only

> wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> because still walks like he's over-corrected (a little

> duck-footed). We emailed a short video of walking and climbing for

> Dr Ponseti to see (we live in South Africa).

>

> It feels like we've reached another milestone in this journey. I guess

> that in the 'old' days they'd have taken him out of shoes around now

> because of this, but Dr Ponseti revised it after they had some relapses

> from too early release. He says must wear them at this reduced

> angle and for shorter hours until he's 3 to avoid any chance of relapse.

>

>

> I can understand your concern about the shoes, if you still have

> problems, maybe you should discuss your concerns with your doctor and

> see if you can order the s instead. It seems like they are

> tried and proven to work already.

>

> and

> 24 Jan 2003, bilateral cf

> Treated by Dr Ponseti April 2003

>

> www.clubfoot.co.za

>

>

> Re: Re: sores w/ DBB // allison

>

>

> We too are in healing casts. The first time in the shoes within two

> days Aidan had a blister on the inside of one foot and a blister on the

> back of the other. This Friday 12/17 we are going to try the shoes

> again. I'm dreading it and I wish their were another way. Does he

> actually have a couple of kids wearing these new shoes now?

>

>

>

>

>

>

>

[Guest guest]

My doc said the same thing. He was in Iowa a few weeks ago (I think

at the seminars) and said Dr. P wasn't really using the Markells

anymore. We were originally just going to get the s because

of that, even though Ava doesn't have atypical CF. But we tried the

Markells and she hasn't had any problems. The cost is a big factor.

It would be nice if insurance would cover the s too.

, mommy of:

Guinevere, on, Ava 8/4/04 right CF DBB 23/7

> ,

>

> I'm so sorry to hear about your problems with sores after using the

> Markell shoes. I received an email reply from Dr Ponseti

yesterday, he

> mentioned that he uses the shoes almost exclusively now

> 'because they are more comfortable' and the babies don't get any

sores.

>

>

> I'm holding thumbs that gets funding, or whatever he

needs

> to start making his brace in larger volumes so they can be

exported and

> supplied to more people outside those treated in Iowa.

>

> It doesn't affect us because is almost 2 and tolerates his

Markells

> well, but if I'd had the choice back then (April 2003) I'd have

gone for

> the 's!

>

> We are very happy that Dr Ponseti has just put onto night

time only

> wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> because still walks like he's over-corrected (a little

> duck-footed). We emailed a short video of walking and

climbing for

> Dr Ponseti to see (we live in South Africa).

>

> It feels like we've reached another milestone in this journey. I

guess

> that in the 'old' days they'd have taken him out of shoes around

now

> because of this, but Dr Ponseti revised it after they had some

relapses

> from too early release. He says must wear them at this

reduced

> angle and for shorter hours until he's 3 to avoid any chance of

relapse.

>

>

> I can understand your concern about the shoes, if you still have

> problems, maybe you should discuss your concerns with your doctor

and

> see if you can order the s instead. It seems like they are

> tried and proven to work already.

>

> and

> 24 Jan 2003, bilateral cf

> Treated by Dr Ponseti April 2003

>

> www.clubfoot.co.za

>

>

> Re: Re: sores w/ DBB // allison

>

>

> We too are in healing casts. The first time in the shoes within

two

> days Aidan had a blister on the inside of one foot and a blister

on the

> back of the other. This Friday 12/17 we are going to try the shoes

> again. I'm dreading it and I wish their were another way. Does he

> actually have a couple of kids wearing these new shoes now?