Re: Ergots for migraine. What would you tell your genie-in-a-bottle?

[Guest guest]

You know, that's a very difficult question for me. I hated the migraines when I

had them and was very grateful that they went away. I could say my " ears " but

then I wouldn't have met a lot of wonderful people that I know both physically

and online. I could say my mobility but my equipment takes me where I need to

go with the help of my family. I'm sick of going to doctors so maybe I should

name that but then I feel selfish. I think I'd have to say the gene that caused

this because I look at so many members of my family affected and some in very

difficult ways that I just wish I could take it away from them. So for me it's

not a symptom that I want to name but a cause.

This is a thought provoking question, . I'm looking forward to seeing the

answers. One thing I know, this disease brought me some wonderful friendships

here because of Mitoldies so I guess there can be a silver lining in everything

life gives you if you look for it.

Alice

Listmates, if your genie would let you remove just one symptom, just one

medical problem, from the mito picture, which would you choose to have

disappear? Poof: gone!

I'd like to hear your choices.

Everyone, take care.

Sincerely,

S.

[Guest guest]

Never ending fatigue/weakness.

BDS31@... wrote:

>Dear Laurie,

>It is too bad that no regimen has been foolproof for migraine-control

>for your son.

>I think it is a very complicated illness to manage, and I certainly wish

>him well.

>

>When my children were little, I tried Fiorinal, one of the ergot-derived

>meds that was designed to stop a migraine at an early stage. As I

>remember, it was touted as the first real advance for migraine relief.

>It is derived from a fungus that grows on the rye plant, and is related

>to hallucenogenics in molecular structure.

>It did not work for me, and even made me feel worse--kind of " out of

>it, " and weird, which was not a pleasant experience.

>Of all of the medical problems I have had, migraine is the one I would

>get rid of if there were a genie who would grant me just one wish.

>That's an interesting question actually.

>

>Listmates, if your genie would let you remove just one symptom, just one

>medical problem, from the mito picture, which would you choose to have

>disappear? Poof: gone!

>I'd like to hear your choices.

>Everyone, take care.

>Sincerely,

> S.

>

>

>

>

[Guest guest]

I would have to say the air hunger. This so often keeps me from doing some

of the things I might be able to do physically. Of course, I might have more

crashes if the air hunger didn't stop me.

I think my wish would change over time. At one time it was myoclonus, at

another dysmotility and still another time it would have been the cramping.

As the disease changes, my wishes change. I guess I would rather look at

what mito has given me. This group is one of them.

laurie

> From: BDS31@...

> Reply-To:

> Date: Sat, 16 Oct 2004 18:31:30 -0400

> To:

> Subject: Ergots for migraine. What would you tell your

> genie-in-a-bottle?

>

> Dear Laurie,

> It is too bad that no regimen has been foolproof for migraine-control

> for your son.

> I think it is a very complicated illness to manage, and I certainly wish

> him well.

>

> When my children were little, I tried Fiorinal, one of the ergot-derived

> meds that was designed to stop a migraine at an early stage. As I

> remember, it was touted as the first real advance for migraine relief.

> It is derived from a fungus that grows on the rye plant, and is related

> to hallucenogenics in molecular structure.

> It did not work for me, and even made me feel worse--kind of " out of

> it, " and weird, which was not a pleasant experience.

> Of all of the medical problems I have had, migraine is the one I would

> get rid of if there were a genie who would grant me just one wish.

> That's an interesting question actually.

>

> Listmates, if your genie would let you remove just one symptom, just one

> medical problem, from the mito picture, which would you choose to have

> disappear? Poof: gone!

> I'd like to hear your choices.

> Everyone, take care.

> Sincerely,

> S.

>

>

>

>

[Guest guest]

I would have to say the air hunger. This so often keeps me from doing some

of the things I might be able to do physically. Of course, I might have more

crashes if the air hunger didn't stop me.

I think my wish would change over time. At one time it was myoclonus, at

another dysmotility and still another time it would have been the cramping.

As the disease changes, my wishes change. I guess I would rather look at

what mito has given me. This group is one of them.

laurie

> From: BDS31@...

> Reply-To:

> Date: Sat, 16 Oct 2004 18:31:30 -0400

> To:

> Subject: Ergots for migraine. What would you tell your

> genie-in-a-bottle?

>

> Dear Laurie,

> It is too bad that no regimen has been foolproof for migraine-control

> for your son.

> I think it is a very complicated illness to manage, and I certainly wish

> him well.

>

> When my children were little, I tried Fiorinal, one of the ergot-derived

> meds that was designed to stop a migraine at an early stage. As I

> remember, it was touted as the first real advance for migraine relief.

> It is derived from a fungus that grows on the rye plant, and is related

> to hallucenogenics in molecular structure.

> It did not work for me, and even made me feel worse--kind of " out of

> it, " and weird, which was not a pleasant experience.

> Of all of the medical problems I have had, migraine is the one I would

> get rid of if there were a genie who would grant me just one wish.

> That's an interesting question actually.

>

> Listmates, if your genie would let you remove just one symptom, just one

> medical problem, from the mito picture, which would you choose to have

> disappear? Poof: gone!

> I'd like to hear your choices.

> Everyone, take care.

> Sincerely,

> S.

>

>

>

>