Re: Are all CF kids poor sleepers?

November 6, 2004

Lori,

I don't know, sometimes these doctors overstep their expertise and give you

their personal opinions...and sometimes they think they're doing you some

sort of favor by saying what they THINK you want to hear.

I'll advise what it seems everyone else did: trust your instincts. He's your

little

boy and you are getting to know one another---don't do that by anyone's plan

but your own!

In our case, Devlin always needed to be coaxed into sleep. However, once

she was down she would usually sleep through the night---at only a few

weeks old! Unfortunately, we're still doing it (10 months old now). It's

always

something---casts, DBB, weaning, etc. So, I'm sure may " experts " would say

that we're not doing the " right: " thing, but Devlin is a happy baby who sleeps

through the night, wakes in her crib in the morning and plays with her toys

until we come get her ...who's to say what the " right " thing to do is?

Devlin DID seem uncomfortable in some of her casts---especially the early

ones. Sometimes propping them up with a towel would help. Each set

seemed to have its own quirks. The WORST was once the DBB started. But,

we were given the wrong size shoes, the wrong rotation, and her feet weren't

corrected yet when they put her in the DBB. So, I'm sure you'll have a better

time with that. These babies are so adaptable!

BTW, I don't think you'll find any true expert that would say a 7-week old can

" train " anyone!

Welcome to the group and enjoy taking care of that little baby!

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his DBB

> this Thursday. My question is... Are all infants going through this

> as poor a sleeper as Weston? He has to be rocked to sleep for about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

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