Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 You're most welcome, . Maybe I should mention that while everyone I know who has seen Dr. Haller sings his praises, they also tell me it can be a bit of a hassle to get in to see him--not so much long waiting times, but just working through all the layers of the system. Maybe that has improved. Thanks for sharing some of the family history. Certainly sounds like you have mito in the family, which (IMO) would make that a likely diagnosis for you. I am so glad you are getting connected to help-- you are on your way! Blessings, Barbara > Hey Barbara, > > Thanks for that information about Dr. Haller. My aunt has been seeing neuro's for about 7 to 8 years now and just recently lost her current neuro, but I think it is for the better because she has been giving Janette the runaround. > > I am the same way, I have seen 5 different Dr.s and now I am heading to Michigan on Tuesday to try one more. > > Thankfully I have a cousin that is a member of the Mito group that has helped both me and Janette get some answers. Joni Holycross is my cousin. Her mom was diagnosed with Atypical ALS, but we are all pretty sure she was misdiagnosed and really had a mitochondrial disease. But Donna passed away last year so se will never really know. Joni's son Collin has Mito and Joni is having her daughter , twin sister being checked also. > > Anyway, thanks again for you help. > > > > McCombs > 2 Cor 1:3-4 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 You're most welcome, . Maybe I should mention that while everyone I know who has seen Dr. Haller sings his praises, they also tell me it can be a bit of a hassle to get in to see him--not so much long waiting times, but just working through all the layers of the system. Maybe that has improved. Thanks for sharing some of the family history. Certainly sounds like you have mito in the family, which (IMO) would make that a likely diagnosis for you. I am so glad you are getting connected to help-- you are on your way! Blessings, Barbara > Hey Barbara, > > Thanks for that information about Dr. Haller. My aunt has been seeing neuro's for about 7 to 8 years now and just recently lost her current neuro, but I think it is for the better because she has been giving Janette the runaround. > > I am the same way, I have seen 5 different Dr.s and now I am heading to Michigan on Tuesday to try one more. > > Thankfully I have a cousin that is a member of the Mito group that has helped both me and Janette get some answers. Joni Holycross is my cousin. Her mom was diagnosed with Atypical ALS, but we are all pretty sure she was misdiagnosed and really had a mitochondrial disease. But Donna passed away last year so se will never really know. Joni's son Collin has Mito and Joni is having her daughter , twin sister being checked also. > > Anyway, thanks again for you help. > > > > McCombs > 2 Cor 1:3-4 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 , Good luck Tuesday. I take it you will be seeing Dr. S? McCombs wrote: >Hey Barbara, > >Thanks for that information about Dr. Haller. My aunt has been seeing neuro's for about 7 to 8 years now and just recently lost her current neuro, but I think it is for the better because she has been giving Janette the runaround. > >I am the same way, I have seen 5 different Dr.s and now I am heading to Michigan on Tuesday to try one more. > >Thankfully I have a cousin that is a member of the Mito group that has helped both me and Janette get some answers. Joni Holycross is my cousin. Her mom was diagnosed with Atypical ALS, but we are all pretty sure she was misdiagnosed and really had a mitochondrial disease. But Donna passed away last year so se will never really know. Joni's son Collin has Mito and Joni is having her daughter , twin sister being checked also. > >Anyway, thanks again for you help. > > > > McCombs >2 Cor 1:3-4 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Hi, The UMDF has a list of mito doctors by state and city. I am sure Dr. Haller is at the top of any list for Texas, but Dallas is not her area, the UMDF may have other names for you as well. Just a chance. Regards Sunny > Hey Barbara, > > Thanks for that information about Dr. Haller. My aunt has been > seeing neuro's for about 7 to 8 years now and just recently lost her > current neuro, but I think it is for the better because she has been > giving Janette the runaround. > > I am the same way, I have seen 5 different Dr.s and now I am heading > to Michigan on Tuesday to try one more. > > Thankfully I have a cousin that is a member of the Mito group that > has helped both me and Janette get some answers. Joni Holycross is my > cousin. Her mom was diagnosed with Atypical ALS, but we are all > pretty sure she was misdiagnosed and really had a mitochondrial > disease. But Donna passed away last year so se will never really > know. Joni's son Collin has Mito and Joni is having her daughter > , twin sister being checked also. > > Anyway, thanks again for you help. > > > > McCombs > 2 Cor 1:3-4 > > Quote Link to comment Share on other sites More sharing options...
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