Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 I have had two people tell me about people that they know who has a child with club foot. I try to tell them that they should tell their friends about Dr. Ponseti and his method, but one of them the child has already 4 surgeries and is age two. The other one I'm not sure what they did but it sounded like casting for six months then some shoe, or boot. What my question is can the Ponseti method correct even feet that have had surgeries? I don't know much about the method other than I am very grateful the first DR I went to knew about it and I didn't have to go through a lot of stress finding out after my son had had treatment done by a non-Ponseti DR. I would recommend it to everyone I knew that has a kid with clubfoot, but how do you get someone to go against their DR who they trusted to fix their child's foot the safest way they knew how. I'm just a bit nervous about pushing the issue with someone who doesn't really know what the whole situation is with their friends' child, especially since I do know much about it myself. I tell them how it is definetly a better option then surgery, and how if it doesn't work (which it usually does) then surgery could be done. Whereas surgery you can't go back on it once it's done it's done and you can't take back the pain the child and parent went through. Anyway this is long and maybe confusing, any advice is appriciated. Holly athan 9/03/04 LCF, DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Hi Holly, Every child is different. I don't know at what age the ponseti method stops being effective. Your best bet would be to call and talk to him directly. he's in his clinic every mwf, best time to reach him is mid morning and he will call you back in the afternoon. My son went through treatment by a non ponseti dr. He has survived one surgery pre ponseti, but because of it, needed another surgery after seeing Dr. Ponseti to remove a lot of the scar tissue and to help acheive correction. He was one when Dr. Ponseti, through the aid of Dr. Morcuende performed hopefully 's last surgery. Each time surgery is performed, it's harder to avoid scar tissue which can prevent stretching. Call Dr. Ponseti, get as well informed as you can and then discuss it with them when you have all the facts for that situation. Because we went with the first surgery and because jason was older, it is a very slow process. We are facing possibly one more surgery as we have already lost some ofour correction. But I trust Dr. Ponseti completely, he loves these kids and has a great team and a great mind God has blessed him with. Call and talk, the more time that goes by, the harder it will be. Lord bless you and give you the wisdom and opportunity to approach these people! jason 10-09-03 atypical bl cf mitchells 23/7 > > I have had two people tell me about people that they know who has a > child with club foot. I try to tell them that they should tell their > friends about Dr. Ponseti and his method, but one of them the child > has already 4 surgeries and is age two. The other one I'm not sure > what they did but it sounded like casting for six months then some > shoe, or boot. What my question is can the Ponseti method correct even > feet that have had surgeries? I don't know much about the method other > than I am very grateful the first DR I went to knew about it and I > didn't have to go through a lot of stress finding out after my son had > had treatment done by a non-Ponseti DR. I would recommend it to > everyone I knew that has a kid with clubfoot, but how do you get > someone to go against their DR who they trusted to fix their child's > foot the safest way they knew how. I'm just a bit nervous about > pushing the issue with someone who doesn't really know what the whole > situation is with their friends' child, especially since I do know > much about it myself. I tell them how it is definetly a better option > then surgery, and how if it doesn't work (which it usually does) then > surgery could be done. Whereas surgery you can't go back on it once > it's done it's done and you can't take back the pain the child and > parent went through. Anyway this is long and maybe confusing, any > advice is appriciated. > > Holly > athan 9/03/04 LCF, DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Hi Holly, Every child is different. I don't know at what age the ponseti method stops being effective. Your best bet would be to call and talk to him directly. he's in his clinic every mwf, best time to reach him is mid morning and he will call you back in the afternoon. My son went through treatment by a non ponseti dr. He has survived one surgery pre ponseti, but because of it, needed another surgery after seeing Dr. Ponseti to remove a lot of the scar tissue and to help acheive correction. He was one when Dr. Ponseti, through the aid of Dr. Morcuende performed hopefully 's last surgery. Each time surgery is performed, it's harder to avoid scar tissue which can prevent stretching. Call Dr. Ponseti, get as well informed as you can and then discuss it with them when you have all the facts for that situation. Because we went with the first surgery and because jason was older, it is a very slow process. We are facing possibly one more surgery as we have already lost some ofour correction. But I trust Dr. Ponseti completely, he loves these kids and has a great team and a great mind God has blessed him with. Call and talk, the more time that goes by, the harder it will be. Lord bless you and give you the wisdom and opportunity to approach these people! jason 10-09-03 atypical bl cf mitchells 23/7 > > I have had two people tell me about people that they know who has a > child with club foot. I try to tell them that they should tell their > friends about Dr. Ponseti and his method, but one of them the child > has already 4 surgeries and is age two. The other one I'm not sure > what they did but it sounded like casting for six months then some > shoe, or boot. What my question is can the Ponseti method correct even > feet that have had surgeries? I don't know much about the method other > than I am very grateful the first DR I went to knew about it and I > didn't have to go through a lot of stress finding out after my son had > had treatment done by a non-Ponseti DR. I would recommend it to > everyone I knew that has a kid with clubfoot, but how do you get > someone to go against their DR who they trusted to fix their child's > foot the safest way they knew how. I'm just a bit nervous about > pushing the issue with someone who doesn't really know what the whole > situation is with their friends' child, especially since I do know > much about it myself. I tell them how it is definetly a better option > then surgery, and how if it doesn't work (which it usually does) then > surgery could be done. Whereas surgery you can't go back on it once > it's done it's done and you can't take back the pain the child and > parent went through. Anyway this is long and maybe confusing, any > advice is appriciated. > > Holly > athan 9/03/04 LCF, DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Holly, Here is a link to a prior message about trying to use the Ponseti method after a prior surgery. http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/16957 > > I have had two people tell me about people that they know who has a > child with club foot. I try to tell them that they should tell their > friends about Dr. Ponseti and his method, but one of them the child > has already 4 surgeries and is age two. The other one I'm not sure > what they did but it sounded like casting for six months then some > shoe, or boot. What my question is can the Ponseti method correct even > feet that have had surgeries? I don't know much about the method other > than I am very grateful the first DR I went to knew about it and I > didn't have to go through a lot of stress finding out after my son had > had treatment done by a non-Ponseti DR. I would recommend it to > everyone I knew that has a kid with clubfoot, but how do you get > someone to go against their DR who they trusted to fix their child's > foot the safest way they knew how. I'm just a bit nervous about > pushing the issue with someone who doesn't really know what the whole > situation is with their friends' child, especially since I do know > much about it myself. I tell them how it is definetly a better option > then surgery, and how if it doesn't work (which it usually does) then > surgery could be done. Whereas surgery you can't go back on it once > it's done it's done and you can't take back the pain the child and > parent went through. Anyway this is long and maybe confusing, any > advice is appriciated. > > Holly > athan 9/03/04 LCF, DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Thanks for the link, I e-mailed the person who knows the grandparent of a child with club feet and had surgery and told them to mention DR Ponseti to their friends and have them get a second opinion before more surgery is done. I'm going to e-mail my other friend and let them know before their neice or nephew ends up with surgery. Both children are in states that may not have Ponesti trained DRs, I lookedat the list and neither of the states were on there. Anyway thanks again to everyone who answered my question Holly athan 9/03/04 LCF, DBB 23/7 > > > > I have had two people tell me about people that they know who has a > > child with club foot. I try to tell them that they should tell > their > > friends about Dr. Ponseti and his method, but one of them the child > > has already 4 surgeries and is age two. The other one I'm not sure > > what they did but it sounded like casting for six months then some > > shoe, or boot. What my question is can the Ponseti method correct > even > > feet that have had surgeries? I don't know much about the method > other > > than I am very grateful the first DR I went to knew about it and I > > didn't have to go through a lot of stress finding out after my son > had > > had treatment done by a non-Ponseti DR. I would recommend it to > > everyone I knew that has a kid with clubfoot, but how do you get > > someone to go against their DR who they trusted to fix their > child's > > foot the safest way they knew how. I'm just a bit nervous about > > pushing the issue with someone who doesn't really know what the > whole > > situation is with their friends' child, especially since I do know > > much about it myself. I tell them how it is definetly a better > option > > then surgery, and how if it doesn't work (which it usually does) > then > > surgery could be done. Whereas surgery you can't go back on it once > > it's done it's done and you can't take back the pain the child and > > parent went through. Anyway this is long and maybe confusing, any > > advice is appriciated. > > > > Holly > > athan 9/03/04 LCF, DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Thanks for the link, I e-mailed the person who knows the grandparent of a child with club feet and had surgery and told them to mention DR Ponseti to their friends and have them get a second opinion before more surgery is done. I'm going to e-mail my other friend and let them know before their neice or nephew ends up with surgery. Both children are in states that may not have Ponesti trained DRs, I lookedat the list and neither of the states were on there. Anyway thanks again to everyone who answered my question Holly athan 9/03/04 LCF, DBB 23/7 > > > > I have had two people tell me about people that they know who has a > > child with club foot. I try to tell them that they should tell > their > > friends about Dr. Ponseti and his method, but one of them the child > > has already 4 surgeries and is age two. The other one I'm not sure > > what they did but it sounded like casting for six months then some > > shoe, or boot. What my question is can the Ponseti method correct > even > > feet that have had surgeries? I don't know much about the method > other > > than I am very grateful the first DR I went to knew about it and I > > didn't have to go through a lot of stress finding out after my son > had > > had treatment done by a non-Ponseti DR. I would recommend it to > > everyone I knew that has a kid with clubfoot, but how do you get > > someone to go against their DR who they trusted to fix their > child's > > foot the safest way they knew how. I'm just a bit nervous about > > pushing the issue with someone who doesn't really know what the > whole > > situation is with their friends' child, especially since I do know > > much about it myself. I tell them how it is definetly a better > option > > then surgery, and how if it doesn't work (which it usually does) > then > > surgery could be done. Whereas surgery you can't go back on it once > > it's done it's done and you can't take back the pain the child and > > parent went through. Anyway this is long and maybe confusing, any > > advice is appriciated. > > > > Holly > > athan 9/03/04 LCF, DBB 23/7 Quote Link to comment Share on other sites More sharing options...
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