Re: Re: Jolly Jumper - good or bad for CF - Holly's baby

[Guest guest]

Hi ,

It's a puzzler with my kids. was born to a previous marriage where there

was no cf issues on either side of our family, so it was a total surprise when

he came with them. Like you I hadn't gone for any testing but a routine early

u/s that did not pick them up. My midwife on the other hand was NOT sweet.

More like she was offended to deliver a defected product. Myself, I was not

the least bit concerned until she started telling me (immediately post partum!)

it was probably my fault and I'm lucky it was his feet and not his head I

ruined. I cried for days. The orthos finally convinced me it wasn't my

fault.

With Everett, yes there is cf on his father's side, two cases of it. So with

and those other two, we had teh u/s look for cf and found them. We

expected it, honestly, and we wanted to be prepared this time so we could

arrange to go to Iowa asap.

ee

Re: Jolly Jumper - good or bad for CF - Holly's

baby

S-

Didn't you write that your BIL had CF too? Or was that someone

different? It's really strange how you have 2 for 2, and others have

only 1 out of 3 or more. I really wish they could find out what

causes it. I know for us we had 2 healthy kids, so it wasn't even a

thought in my head that something could be wrong. We had a low-level

U/S at 18 weeks, but of course they didn't find anything. We didn't

want to know the sex, so she didn't spend much time on the " bottom

half " . It's funny, because they offered us a " Level 2 " U/S because

we hadn't had any other testing done, and we said no. Now I wonder

if they had done a Level 2--would they have found her CF? What would

my reaction have been? I was so calm when they told me after she was

born--of course, my midwife was so cute about it: " her foot's just a

little bent, but the pediatrician will look at it. " Plus there's

that natural 'who cares?' feeling you have after delivering...you

just want to SLEEP!!! I didn't get upset until our first visit with

the ortho. And for some reason, all along people were telling us it

was probably positional, and when the ortho told us no, it was a

congenital club foot, hereditary, that REALLY got me upset. I can't

explain why... Anyway, all this is more than I'm sure you wanted to

know, but CF is stress. I don't want to have any more kids, for a

variety of reasons, but the CF is one. Not because the child might

have a " birth defect " or whatever, we never get much testing when pg

because we just don't care about that. But because it would be #4

(OMG!!!), and I know now how much time the treatment involves. Of

course, having said all that--I must admit I didn't have much " say "

over the conception of numbers 1,2 or 3--so what makes me think I'm

going to be able to stop here????

, mommy of:

Guinevere, on, Ava (my 3 little accidents...I mean angels!!!)

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