Re: Re: Pregnant with twins

[Guest guest]

How did slay Goliath? With faith, not a stone.

s.

a,

I totally agree. I believe that God always gives us more than we can

handle when we are trying to handle it WITHOUT Him. WITH Him, we can

handle anything. But without Him? Nothing. He gives us more so we

realize how much we need Him and lets us know He is there and wants to

help if we just hand it to him. If we stop and realize that through

this trial He's actually carrying us, we would stop struggling so much

to fix it on our own. The phrase is usually misquoted. God nevers

gives us more TEMPTATION than we can handle...but problems and trials?

You betcha, because He wants to take care of it for us. We are going

to get through this by the grace of God and then look back and think

Whooo-hooo what a ride!! How wonderful when others are taking the

ride with you!

atypical bl cf 10-09-03

,

> >

> > I'm so sorry to hear about your problems with sores after using the

> > Markell shoes. I received an email reply from Dr Ponseti

> yesterday, he

> > mentioned that he uses the shoes almost exclusively now

> > 'because they are more comfortable' and the babies don't get any

> sores.

> >

> >

> > I'm holding thumbs that gets funding, or whatever he

> needs

> > to start making his brace in larger volumes so they can be

> exported and

> > supplied to more people outside those treated in Iowa.

> >

> > It doesn't affect us because is almost 2 and tolerates his

> Markells

> > well, but if I'd had the choice back then (April 2003) I'd have

> gone for

> > the 's!

> >

> > We are very happy that Dr Ponseti has just put onto night

> time only

> > wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> > because still walks like he's over-corrected (a little

> > duck-footed). We emailed a short video of walking and

> climbing for

> > Dr Ponseti to see (we live in South Africa).

> >

> > It feels like we've reached another milestone in this journey. I

> guess

> > that in the 'old' days they'd have taken him out of shoes around

> now

> > because of this, but Dr Ponseti revised it after they had some

> relapses

> > from too early release. He says must wear them at this

> reduced

> > angle and for shorter hours until he's 3 to avoid any chance of

> relapse.

> >

> >

> > I can understand your concern about the shoes, if you still have

> > problems, maybe you should discuss your concerns with your doctor

> and

> > see if you can order the s instead. It seems like they are

> > tried and proven to work already.

> >

> > and

> > 24 Jan 2003, bilateral cf

> > Treated by Dr Ponseti April 2003

> >

> > www.clubfoot.co.za

> >

> >

> > Re: Re: sores w/ DBB // allison

> >

> >

> > We too are in healing casts. The first time in the shoes within

> two

> > days Aidan had a blister on the inside of one foot and a blister

> on the

> > back of the other. This Friday 12/17 we are going to try the shoes

> > again. I'm dreading it and I wish their were another way. Does he

> > actually have a couple of kids wearing these new shoes now?

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks for listening guys. Sometimes i fill my self coming and and going. Yall

listen to what i did yesterday. Too funny! On the way to drop everyone off

yesterday morning i stopped by a local corner for gas. On the way gave

$5.00 for lunch, gave $5.00 for lunch. Stop at the pump gave

$20.00 to pay for the gas while pumped. Well me being brain dead sometimes

gave $20.00 more to to pay for gas also. Now both kids have $20.00 to pay

for the gas. Needless to say the store knows me well and call to tell me i now

have a $20.00 credit. I want my cash back. lol. Just wanted to share.

Number23 number23@...> wrote:

How did slay Goliath? With faith, not a stone.

s.

a,

I totally agree. I believe that God always gives us more than we can

handle when we are trying to handle it WITHOUT Him. WITH Him, we can

handle anything. But without Him? Nothing. He gives us more so we

realize how much we need Him and lets us know He is there and wants to

help if we just hand it to him. If we stop and realize that through

this trial He's actually carrying us, we would stop struggling so much

to fix it on our own. The phrase is usually misquoted. God nevers

gives us more TEMPTATION than we can handle...but problems and trials?

You betcha, because He wants to take care of it for us. We are going

to get through this by the grace of God and then look back and think

Whooo-hooo what a ride!! How wonderful when others are taking the

ride with you!

atypical bl cf 10-09-03

,

> >

> > I'm so sorry to hear about your problems with sores after using the

> > Markell shoes. I received an email reply from Dr Ponseti

> yesterday, he

> > mentioned that he uses the shoes almost exclusively now

> > 'because they are more comfortable' and the babies don't get any

> sores.

> >

> >

> > I'm holding thumbs that gets funding, or whatever he

> needs

> > to start making his brace in larger volumes so they can be

> exported and

> > supplied to more people outside those treated in Iowa.

> >

> > It doesn't affect us because is almost 2 and tolerates his

> Markells

> > well, but if I'd had the choice back then (April 2003) I'd have

> gone for

> > the 's!

> >

> > We are very happy that Dr Ponseti has just put onto night

> time only

> > wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> > because still walks like he's over-corrected (a little

> > duck-footed). We emailed a short video of walking and

> climbing for

> > Dr Ponseti to see (we live in South Africa).

> >

> > It feels like we've reached another milestone in this journey. I

> guess

> > that in the 'old' days they'd have taken him out of shoes around

> now

> > because of this, but Dr Ponseti revised it after they had some

> relapses

> > from too early release. He says must wear them at this

> reduced

> > angle and for shorter hours until he's 3 to avoid any chance of

> relapse.

> >

> >

> > I can understand your concern about the shoes, if you still have

> > problems, maybe you should discuss your concerns with your doctor

> and

> > see if you can order the s instead. It seems like they are

> > tried and proven to work already.

> >

> > and

> > 24 Jan 2003, bilateral cf

> > Treated by Dr Ponseti April 2003

> >

> > www.clubfoot.co.za

> >

> >

> > Re: Re: sores w/ DBB // allison

> >

> >

> > We too are in healing casts. The first time in the shoes within

> two

> > days Aidan had a blister on the inside of one foot and a blister

> on the

> > back of the other. This Friday 12/17 we are going to try the shoes

> > again. I'm dreading it and I wish their were another way. Does he

> > actually have a couple of kids wearing these new shoes now?

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

You drive 71/2 hours?! My goodness. I thought 2 hours was bad. Bless your

heart. What about this cavas thing the dr is talking about. do you know

anything about it?

a

Logan 07/12/04 bicf (serial casting)

Wold alicialwold@...> wrote:

Moms are awesome!! Mine is a teacher so she had this summer off. She

came with me to Iowa for over 8 weeks to stay and help with the kids

while saw dr. Ponseti. She chose to take 3 weeks off of the

beginning of school year to stay and help. Now that we are back in

casts again, grrr, she is driving with me to Iowa from Michigan (7 1/2

hour trip good weather) each week for castings. What would we do

without those moms that are so selfless? I sure hope my boys think of

me that way someday! I am so glad you have your mom to help you.

God is so good to provide us with the help we need to get through

anything.

atyp bl cf 10-09-03

,

> >

> > I'm so sorry to hear about your problems with sores after using the

> > Markell shoes. I received an email reply from Dr Ponseti

> yesterday, he

> > mentioned that he uses the shoes almost exclusively now

> > 'because they are more comfortable' and the babies don't get any

> sores.

> >

> >

> > I'm holding thumbs that gets funding, or whatever he

> needs

> > to start making his brace in larger volumes so they can be

> exported and

> > supplied to more people outside those treated in Iowa.

> >

> > It doesn't affect us because is almost 2 and tolerates his

> Markells

> > well, but if I'd had the choice back then (April 2003) I'd have

> gone for

> > the 's!

> >

> > We are very happy that Dr Ponseti has just put onto night

> time only

> > wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> > because still walks like he's over-corrected (a little

> > duck-footed). We emailed a short video of walking and

> climbing for

> > Dr Ponseti to see (we live in South Africa).

> >

> > It feels like we've reached another milestone in this journey. I

> guess

> > that in the 'old' days they'd have taken him out of shoes around

> now

> > because of this, but Dr Ponseti revised it after they had some

> relapses

> > from too early release. He says must wear them at this

> reduced

> > angle and for shorter hours until he's 3 to avoid any chance of

> relapse.

> >

> >

> > I can understand your concern about the shoes, if you still have

> > problems, maybe you should discuss your concerns with your doctor

> and

> > see if you can order the s instead. It seems like they are

> > tried and proven to work already.

> >

> > and

> > 24 Jan 2003, bilateral cf

> > Treated by Dr Ponseti April 2003

> >

> > www.clubfoot.co.za

> >

> >

> > Re: Re: sores w/ DBB // allison

> >

> >

> > We too are in healing casts. The first time in the shoes within

> two

> > days Aidan had a blister on the inside of one foot and a blister

> on the

> > back of the other. This Friday 12/17 we are going to try the shoes

> > again. I'm dreading it and I wish their were another way. Does he

> > actually have a couple of kids wearing these new shoes now?

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

ok here i go spilling my guts. i know that logan's dr is not ponseti certified

but i am having a hard enough time arranging going to Houston every Monday.

Logan is in soft cast. i work for a bank that has less than 50 employees and

the FMLA does not apply to them.......yea you heard me. i am out of PTO (sick)

time. They have already taken me off of salary and put me on the clock. Dh is

in construction so the rain has put a damper on things. He has just left

Tuesday to go work out of state. How far is Iowa from Central Texas. I want

the best for Logan but WHAT DO I DO?

the cavas is the top part of his foot. kinda got a hump on them. oh yea and i

have the insurance with my job. about $400.00 withdrawn out of my check a

month.

Wold alicialwold@...> wrote:

Isn't that where the sole of the feet has a crease in it? I don't

know my terms very well. We've had just about everything, but dr.

ponseti, love him dearly, but I have a hard time understanding him.

hehe. Post it, i bet other moms know for sure what the terms are and

what they mean.

we go again on sunday so keep us in your prayers for good weather.

some of the moms are driving 12 hours and 15 hours to see dr. ponseti.

He is so worth it!!

alicia

,

> > >

> > > I'm so sorry to hear about your problems with sores after using the

> > > Markell shoes. I received an email reply from Dr Ponseti

> > yesterday, he

> > > mentioned that he uses the shoes almost exclusively now

> > > 'because they are more comfortable' and the babies don't get any

> > sores.

> > >

> > >

> > > I'm holding thumbs that gets funding, or whatever he

> > needs

> > > to start making his brace in larger volumes so they can be

> > exported and

> > > supplied to more people outside those treated in Iowa.

> > >

> > > It doesn't affect us because is almost 2 and tolerates his

> > Markells

> > > well, but if I'd had the choice back then (April 2003) I'd have

> > gone for

> > > the 's!

> > >

> > > We are very happy that Dr Ponseti has just put onto night

> > time only

> > > wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> > > because still walks like he's over-corrected (a little

> > > duck-footed). We emailed a short video of walking and

> > climbing for

> > > Dr Ponseti to see (we live in South Africa).

> > >

> > > It feels like we've reached another milestone in this journey. I

> > guess

> > > that in the 'old' days they'd have taken him out of shoes around

> > now

> > > because of this, but Dr Ponseti revised it after they had some

> > relapses

> > > from too early release. He says must wear them at this

> > reduced

> > > angle and for shorter hours until he's 3 to avoid any chance of

> > relapse.

> > >

> > >

> > > I can understand your concern about the shoes, if you still have

> > > problems, maybe you should discuss your concerns with your doctor

> > and

> > > see if you can order the s instead. It seems like they are

> > > tried and proven to work already.

> > >

> > > and

> > > 24 Jan 2003, bilateral cf

> > > Treated by Dr Ponseti April 2003

> > >

> > > www.clubfoot.co.za

> > >

> > >

> > > Re: Re: sores w/ DBB // allison

> > >

> > >

> > > We too are in healing casts. The first time in the shoes within

> > two

> > > days Aidan had a blister on the inside of one foot and a blister

> > on the

> > > back of the other. This Friday 12/17 we are going to try the shoes

> > > again. I'm dreading it and I wish their were another way. Does he

> > > actually have a couple of kids wearing these new shoes now?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

a,

I think that you do the best that you can for your family. I may be in

the minority here but I don't believe that always means that you have to

take your child to Iowa. What about the Doctors in Austin that

takes Aidan to. She seems pretty happy with them. Perhaps they would be

an option. I sympathize with the lack of FMLA etc. That happened with me

when I got pregnant with and was having lots of problems. That

sped up my choice to be a SAHM because my job was not cooperative. Hang

in there and don't beat yourself up for things that are out of your

control. We all have to do the best we can with the hand that we have

been dealt. It sounds to me like you are doing just that.

Jenni

a Holland wrote:

>ok here i go spilling my guts. i know that logan's dr is not ponseti certified

but i am having a hard enough time arranging going to Houston every Monday.

Logan is in soft cast. i work for a bank that has less than 50 employees and

the FMLA does not apply to them.......yea you heard me. i am out of PTO (sick)

time. They have already taken me off of salary and put me on the clock. Dh is

in construction so the rain has put a damper on things. He has just left

Tuesday to go work out of state. How far is Iowa from Central Texas. I want

the best for Logan but WHAT DO I DO?

>the cavas is the top part of his foot. kinda got a hump on them. oh yea and

i have the insurance with my job. about $400.00 withdrawn out of my check a

month.

>

> Wold alicialwold@...> wrote:

>

>Isn't that where the sole of the feet has a crease in it? I don't

>know my terms very well. We've had just about everything, but dr.

>ponseti, love him dearly, but I have a hard time understanding him.

>hehe. Post it, i bet other moms know for sure what the terms are and

>what they mean.

>

>we go again on sunday so keep us in your prayers for good weather.

>some of the moms are driving 12 hours and 15 hours to see dr. ponseti.

>He is so worth it!!

>

>alicia

>

>,

>>>>

>>>>I'm so sorry to hear about your problems with sores after using the

>>>>Markell shoes. I received an email reply from Dr Ponseti

>>>>

>>>>

>>>yesterday, he

>>>

>>>

>>>>mentioned that he uses the shoes almost exclusively now

>>>>'because they are more comfortable' and the babies don't get any

>>>>

>>>>

>>>sores.

>>>

>>>

>>>>I'm holding thumbs that gets funding, or whatever he

>>>>

>>>>

>>>needs

>>>

>>>

>>>>to start making his brace in larger volumes so they can be

>>>>

>>>>

>>>exported and

>>>

>>>

>>>>supplied to more people outside those treated in Iowa.

>>>>

>>>>It doesn't affect us because is almost 2 and tolerates his

>>>>

>>>>

>>>Markells

>>>

>>>

>>>>well, but if I'd had the choice back then (April 2003) I'd have

>>>>

>>>>

>>>gone for

>>>

>>>

>>>>the 's!

>>>>

>>>>We are very happy that Dr Ponseti has just put onto night

>>>>

>>>>

>>>time only

>>>

>>>

>>>>wear (10-12 hours), with a reduced rotation angle of 50 degrees -

>>>>because still walks like he's over-corrected (a little

>>>>duck-footed). We emailed a short video of walking and

>>>>

>>>>

>>>climbing for

>>>

>>>

>>>>Dr Ponseti to see (we live in South Africa).

>>>>

>>>>It feels like we've reached another milestone in this journey. I

>>>>

>>>>

>>>guess

>>>

>>>

>>>>that in the 'old' days they'd have taken him out of shoes around

>>>>

>>>>

>>>now

>>>

>>>

>>>>because of this, but Dr Ponseti revised it after they had some

>>>>

>>>>

>>>relapses

>>>

>>>

>>>>from too early release. He says must wear them at this

>>>>

>>>>

>>>reduced

>>>

>>>

>>>>angle and for shorter hours until he's 3 to avoid any chance of

>>>>

>>>>

>>>relapse.

>>>

>>>

>>>>I can understand your concern about the shoes, if you still have

>>>>problems, maybe you should discuss your concerns with your doctor

>>>>

>>>>

>>>and

>>>

>>>

>>>>see if you can order the s instead. It seems like they are

>>>>tried and proven to work already.

>>>>

>>>> and

>>>>24 Jan 2003, bilateral cf

>>>>Treated by Dr Ponseti April 2003

>>>>

>>>>www.clubfoot.co.za

>>>>

>>>>

>>>> Re: Re: sores w/ DBB // allison

>>>>

>>>>

>>>>We too are in healing casts. The first time in the shoes within

>>>>

>>>>

>>>two

>>>

>>>

>>>>days Aidan had a blister on the inside of one foot and a blister

>>>>

>>>>

>>>on the

>>>

>>>

>>>>back of the other. This Friday 12/17 we are going to try the shoes

>>>>again. I'm dreading it and I wish their were another way. Does he

>>>>actually have a couple of kids wearing these new shoes now?

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

[Guest guest]

We drive about 11 or 12. Some here drive two days! Other's fly half way around

the world. It's incredible that Ponseti is THAT good and finding cf treatment

elsewhere is THAT bad.

s.

Re: Re: sores w/ DBB // allison

> >

> >

> > We too are in healing casts. The first time in the shoes within

> two

> > days Aidan had a blister on the inside of one foot and a blister

> on the

> > back of the other. This Friday 12/17 we are going to try the shoes

> > again. I'm dreading it and I wish their were another way. Does he

> > actually have a couple of kids wearing these new shoes now?

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

a - I understand you are between a rock and a hard place, but I swear it'll

be OK. What those of us here know that others don't (until they experience it

first hand) is that Dr. Ponseti is a a vessel of the Lord. I'm not a big bible

thumper and I would have rolled my eyes at that statement had I heard it prior

to seeing him but you cannot see Dr. Ponseti and come away with any other

impression....I swear I go in to his clinic and feel like I'm entering a church

only because I feel so at peace there, so secure and loved and safe and you just

KNOW that your baby will be OK......and because of all that, I can make my

little promise that it would, in the end, SOME HOW, be OK if you took the time

from work and traveled to see him. Maybe losing your job would be a blessing

in disguise, who knows? I'm not saying quit - Im just trying to stress my

belief that right now your #1 priority is to get you baby the care he needs

because he's not getting it now. The rest can take care of itself later, but

his feet cannot be delayed after this many months of improper treatment - he's

headed for a disaster and I can say that cuz I went through it with my own kid.

There is a window of opportunity your child has and after this age your window

is shutting!

There is a program called Angel Flights, very helpful in providing

transportation for kids who need far away doctors. There is the Mc

House to stay in once you arrive. Probaby stay in Iowa City for a few weeks,

then finish out from home with just a few follow up appts. at first, then they

become annual.

There is a Ponseti doctor at a Shriner's too - help me out here guys, where is

that? No matter where it is exactly, but the point is he needs your attention

asap. Go look through the photo links and stuff here, you'll see with your own

two eyes the difference in treatments compared to what you have now. If that

won't convince you to pull the rug out from under your life to get the right

help nothing will.

s.

Re: Re: sores w/ DBB // allison

> > >

> > >

> > > We too are in healing casts. The first time in the shoes within

> > two

> > > days Aidan had a blister on the inside of one foot and a blister

> > on the

> > > back of the other. This Friday 12/17 we are going to try the shoes

> > > again. I'm dreading it and I wish their were another way. Does he

> > > actually have a couple of kids wearing these new shoes now?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

You are difinitely in a difficult sittuation. I was frantic when I knew in my

heart that Iowa was the only logical place to take Kai. We had to borrow money

from my dad because Angel Flights would not go as far as we needed (Seattle to

Iowa) and had to rely heavily on family to help with the other kids, but we did

it.

Honestly, if you are dealing with unusual cavus, there are only a handful of

doctors that are suggested. There may be one closer to you than Iowa.

(searching for Dr P's e-mail that has the info .... )

Okay, here is the confirmed US list:

Dr Ponseti, Iowa City, Iowa

Dr Mosca, Seattle, Washington

Dr Colburn, California (dont remember the city)

Dr Herzenberg, (help here, I dont remember!)

Dr Dobbs (again, dont remember!)

There may be more than that, but that is the confirmed list I have from Dr

Ponseti as of July for doctors that are able to correct a foot that is atypical

in any way or that has responded badly to previous casting. These are also the

doctors that have proven track records with " older " children.

Angel

Re: Re: Pregnant with twins

ok here i go spilling my guts. i know that logan's dr is not ponseti certified

but i am having a hard enough time arranging going to Houston every Monday.

Logan is in soft cast. i work for a bank that has less than 50 employees and

the FMLA does not apply to them.......yea you heard me. i am out of PTO (sick)

time. They have already taken me off of salary and put me on the clock. Dh is

in construction so the rain has put a damper on things. He has just left

Tuesday to go work out of state. How far is Iowa from Central Texas. I want

the best for Logan but WHAT DO I DO?

the cavas is the top part of his foot. kinda got a hump on them. oh yea and i

have the insurance with my job. about $400.00 withdrawn out of my check a

month.

[Guest guest]

a, I can tell you from San it's about 13 hrs.

Wold alicialwold@...> wrote:

First off, I would see if there are any dr.'s ponseti certified in the

area or surrounding area. If not, send pictures to dr. p. get some

with his feet flat on ground, weight bearing. side shots, top shots,

bottom shots and then instep shots. Dr. P will be able to help you

with pictures. Is your dr. willing to converse with dr. p about

Logans feet? We went through the problems of dr.s that said they used

ponseti method and didn't. My son had a surgery he shouldn't have and

we are still doing damage control from that. Dr. ponseti has a lot of

experience and a lot of practice...drive as far as you have to if you

can. do what you have to do to ensure logan gets the best.

I sure hope this helps!

,

> > > >

> > > > I'm so sorry to hear about your problems with sores after

using the

> > > > Markell shoes. I received an email reply from Dr Ponseti

> > > yesterday, he

> > > > mentioned that he uses the shoes almost exclusively now

> > > > 'because they are more comfortable' and the babies don't get any

> > > sores.

> > > >

> > > >

> > > > I'm holding thumbs that gets funding, or

whatever he

> > > needs

> > > > to start making his brace in larger volumes so they can be

> > > exported and

> > > > supplied to more people outside those treated in Iowa.

> > > >

> > > > It doesn't affect us because is almost 2 and tolerates his

> > > Markells

> > > > well, but if I'd had the choice back then (April 2003) I'd have

> > > gone for

> > > > the 's!

> > > >

> > > > We are very happy that Dr Ponseti has just put onto night

> > > time only

> > > > wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> > > > because still walks like he's over-corrected (a little

> > > > duck-footed). We emailed a short video of walking and

> > > climbing for

> > > > Dr Ponseti to see (we live in South Africa).

> > > >

> > > > It feels like we've reached another milestone in this journey. I

> > > guess

> > > > that in the 'old' days they'd have taken him out of shoes around

> > > now

> > > > because of this, but Dr Ponseti revised it after they had some

> > > relapses

> > > > from too early release. He says must wear them at this

> > > reduced

> > > > angle and for shorter hours until he's 3 to avoid any chance of

> > > relapse.

> > > >

> > > >

> > > > I can understand your concern about the shoes, if you still have

> > > > problems, maybe you should discuss your concerns with your doctor

> > > and

> > > > see if you can order the s instead. It seems like they are

> > > > tried and proven to work already.

> > > >

> > > > and

> > > > 24 Jan 2003, bilateral cf

> > > > Treated by Dr Ponseti April 2003

> > > >

> > > > www.clubfoot.co.za

> > > >

> > > >

> > > > Re: Re: sores w/ DBB // allison

> > > >

> > > >

> > > > We too are in healing casts. The first time in the shoes within

> > > two

> > > > days Aidan had a blister on the inside of one foot and a blister

> > > on the

> > > > back of the other. This Friday 12/17 we are going to try the shoes

> > > > again. I'm dreading it and I wish their were another way. Does he

> > > > actually have a couple of kids wearing these new shoes now?

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

a, I can tell you from San it's about 13 hrs.

Wold alicialwold@...> wrote:

First off, I would see if there are any dr.'s ponseti certified in the

area or surrounding area. If not, send pictures to dr. p. get some

with his feet flat on ground, weight bearing. side shots, top shots,

bottom shots and then instep shots. Dr. P will be able to help you

with pictures. Is your dr. willing to converse with dr. p about

Logans feet? We went through the problems of dr.s that said they used

ponseti method and didn't. My son had a surgery he shouldn't have and

we are still doing damage control from that. Dr. ponseti has a lot of

experience and a lot of practice...drive as far as you have to if you

can. do what you have to do to ensure logan gets the best.

I sure hope this helps!

,

> > > >

> > > > I'm so sorry to hear about your problems with sores after

using the

> > > > Markell shoes. I received an email reply from Dr Ponseti

> > > yesterday, he

> > > > mentioned that he uses the shoes almost exclusively now

> > > > 'because they are more comfortable' and the babies don't get any

> > > sores.

> > > >

> > > >

> > > > I'm holding thumbs that gets funding, or

whatever he

> > > needs

> > > > to start making his brace in larger volumes so they can be

> > > exported and

> > > > supplied to more people outside those treated in Iowa.

> > > >

> > > > It doesn't affect us because is almost 2 and tolerates his

> > > Markells

> > > > well, but if I'd had the choice back then (April 2003) I'd have

> > > gone for

> > > > the 's!

> > > >

> > > > We are very happy that Dr Ponseti has just put onto night

> > > time only

> > > > wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> > > > because still walks like he's over-corrected (a little

> > > > duck-footed). We emailed a short video of walking and

> > > climbing for

> > > > Dr Ponseti to see (we live in South Africa).

> > > >

> > > > It feels like we've reached another milestone in this journey. I

> > > guess

> > > > that in the 'old' days they'd have taken him out of shoes around

> > > now

> > > > because of this, but Dr Ponseti revised it after they had some

> > > relapses

> > > > from too early release. He says must wear them at this

> > > reduced

> > > > angle and for shorter hours until he's 3 to avoid any chance of

> > > relapse.

> > > >

> > > >

> > > > I can understand your concern about the shoes, if you still have

> > > > problems, maybe you should discuss your concerns with your doctor

> > > and

> > > > see if you can order the s instead. It seems like they are

> > > > tried and proven to work already.

> > > >

> > > > and

> > > > 24 Jan 2003, bilateral cf

> > > > Treated by Dr Ponseti April 2003

> > > >

> > > > www.clubfoot.co.za

> > > >

> > > >

> > > > Re: Re: sores w/ DBB // allison

> > > >

> > > >

> > > > We too are in healing casts. The first time in the shoes within

> > > two

> > > > days Aidan had a blister on the inside of one foot and a blister

> > > on the

> > > > back of the other. This Friday 12/17 we are going to try the shoes

> > > > again. I'm dreading it and I wish their were another way. Does he

> > > > actually have a couple of kids wearing these new shoes now?

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks you pretty much put it in a nut shell. I know what i have to do

now. Just getting it done will take a little time. Since my DH can not go will

they let my mom fly with me at no cost? Just wondering i have never flown

before and just a little scared about the whole process.

a

Logan 07/12/04 bicf serial casting

Number23 number23@...> wrote:

a - I understand you are between a rock and a hard place, but I swear it'll

be OK. What those of us here know that others don't (until they experience it

first hand) is that Dr. Ponseti is a a vessel of the Lord. I'm not a big bible

thumper and I would have rolled my eyes at that statement had I heard it prior

to seeing him but you cannot see Dr. Ponseti and come away with any other

impression....I swear I go in to his clinic and feel like I'm entering a church

only because I feel so at peace there, so secure and loved and safe and you just

KNOW that your baby will be OK......and because of all that, I can make my

little promise that it would, in the end, SOME HOW, be OK if you took the time

from work and traveled to see him. Maybe losing your job would be a blessing

in disguise, who knows? I'm not saying quit - Im just trying to stress my

belief that right now your #1 priority is to get you baby the care he needs

because he's not getting it now. The rest can take care

of itself later, but his feet cannot be delayed after this many months of

improper treatment - he's headed for a disaster and I can say that cuz I went

through it with my own kid. There is a window of opportunity your child has and

after this age your window is shutting!

There is a program called Angel Flights, very helpful in providing

transportation for kids who need far away doctors. There is the Mc

House to stay in once you arrive. Probaby stay in Iowa City for a few weeks,

then finish out from home with just a few follow up appts. at first, then they

become annual.

There is a Ponseti doctor at a Shriner's too - help me out here guys, where is

that? No matter where it is exactly, but the point is he needs your attention

asap. Go look through the photo links and stuff here, you'll see with your own

two eyes the difference in treatments compared to what you have now. If that

won't convince you to pull the rug out from under your life to get the right

help nothing will.

s.

Re: Re: sores w/ DBB // allison

> > >

> > >

> > > We too are in healing casts. The first time in the shoes within

> > two

> > > days Aidan had a blister on the inside of one foot and a blister

> > on the

> > > back of the other. This Friday 12/17 we are going to try the shoes

> > > again. I'm dreading it and I wish their were another way. Does he

> > > actually have a couple of kids wearing these new shoes now?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

a,

Being scared is OK.

You can go to Angelflights.com (I think, if not do a search for Angel Flights)

and they can give you the most local group to you - then call them up and go

from there. They might let your mother go, I'm not sure - I would hope so.

Try to let them know you really need her to help you.

Can you send digital pictures? Maybe have your 35mm film put on a disc or

something and forward some photos of your child's feet to Dr. Ponseti to look

at. People on here do it all the time. I did it four years ago myself. He's

so sweet to look at all the photos we send and respond with his opinion. That

would be a good starting point, also. If he thought they could be fixed rather

simply he may refer you to a dr. closer to home, if he thinks they look atypical

or otherwise a tough case he may suggest you come straight to Iowa.

Start by talking to him, talking to Angel Flights, taking to yourself, your mom,

your coworkers, and to God and soon you'll get it all falling in to place.

We're here for you.

s.

----

Thanks you pretty much put it in a nut shell. I know what i have to do

now. Just getting it done will take a little time. Since my DH can not go will

they let my mom fly with me at no cost? Just wondering i have never flown

before and just a little scared about the whole process.

[Guest guest]

Thanks . Just sitting here at my desk with tears rolling. I feel like i

have just found a whole new group of friends in the past couple of days. Thanks

to yall i feel more at peace today than any other day. I borrowed the banks

ditial camera and will take the pics monday morning when i take the cast off.

Everyone have a good weekend and say a few prayers that Logan sleeps more that

two hours tonight. I need some sleep.

ps. are you the one that lives in California? My dh is wanting to get on

some shut downs over there. He would be gone for a while but if he did that i

would and could be a really good SAHM!!!!!!!!!!!!! Saying my prayers

a

Logan 07/12/04 bicf serial casting

Number23 number23@...> wrote:

a,

Being scared is OK.

You can go to Angelflights.com (I think, if not do a search for Angel Flights)

and they can give you the most local group to you - then call them up and go

from there. They might let your mother go, I'm not sure - I would hope so.

Try to let them know you really need her to help you.

Can you send digital pictures? Maybe have your 35mm film put on a disc or

something and forward some photos of your child's feet to Dr. Ponseti to look

at. People on here do it all the time. I did it four years ago myself. He's

so sweet to look at all the photos we send and respond with his opinion. That

would be a good starting point, also. If he thought they could be fixed rather

simply he may refer you to a dr. closer to home, if he thinks they look atypical

or otherwise a tough case he may suggest you come straight to Iowa.

Start by talking to him, talking to Angel Flights, taking to yourself, your mom,

your coworkers, and to God and soon you'll get it all falling in to place.

We're here for you.

s.

----

Thanks you pretty much put it in a nut shell. I know what i have to do

now. Just getting it done will take a little time. Since my DH can not go will

they let my mom fly with me at no cost? Just wondering i have never flown

before and just a little scared about the whole process.

[Guest guest]

Well, tears are OK too. I've shed my fair share of them going through my two

cf boys and it ain't over yet. I'm in Oklahoma - and you DO have a big new

group of friends! We're glad to have you among us. Actually I'm ee,

not , maybe I should write my name more often, sorry. In any event I hope

you get some sleep tonight and we'll send happy thoughts your dh gets the job he

needs. Keep the faith!

s.

Thanks . Just sitting here at my desk with tears rolling. I feel like i

have just found a whole new group of friends in the past couple of days. Thanks

to yall i feel more at peace today than any other day. I borrowed the banks

ditial camera and will take the pics monday morning when i take the cast off.

Everyone have a good weekend and say a few prayers that Logan sleeps more that

two hours tonight. I need some sleep.

ps. are you the one that lives in California? My dh is wanting to get on

some shut downs over there. He would be gone for a while but if he did that i

would and could be a really good SAHM!!!!!!!!!!!!! Saying my prayers

a

Logan 07/12/04 bicf serial casting

[Guest guest]

Logan's visit went ok yesterday. Talk to dr about the cavas and he said that he

consults with on of dr. ponsite's helpers.? someone with the name starting with

an M maybe. dont know. we did not get the MRI done. they messed up on the

schudeling. it is now set for January 8th. i have to tell yall. when logan

was waiting in the casting room another baby (7 weeks) came in for his first set

of cast. the mom was crying just like i did when logan got his first, second,

third. lol i know it is not funny but it does get better so i hear until you

get into the shoes. anyway back to my point. this lady was just crying. me

also.....feeling her pain inside. i didnt even know her and wanted to go up and

give her a hug and tell her that her baby would be ok...........the husband did

talk to me a little. i told him that it would be ok and just to be there for

his wife because this is a very emontional time and alot of support is needed.

Took pics of Logan's feet and will be

emailing to dr. ponsetti tomorrow to see what we need to do. thanks for

listening

paula

logan 07/12/04 bicf serial casting

onemorebb tristan2@...> wrote:

> Thanks you pretty much put it in a nut shell. I know what i

have to do now. Just getting it done will take a little time. Since

my DH can not go will they let my mom fly with me at no cost? Just

wondering i have never flown before and just a little scared about

the whole process.

>

> a

> Logan 07/12/04 bicf serial casting

Yes, they'll let your mom go with you. Most of the patients I have

flown with bring someone along with them.

I was afraid of flying in small planes. I have flown many times in

jets, but never in a four-seater. But the Angel Flight pilots I have

met, and I've met quite a few since we had to go for weekly casting,

are all very experienced and very cautious. If the weather is iffy

they won't fly. Plus, if it's an Angel Flight the major airports

along the way keep track of your location at all times. The pilots

let you wear headphones so you can hear them talking and the control

towers talking. You can also communicate with the pilots that way.

One pilot told me that flying in a small plane has the same amount of

risk as riding a motorcycle. That's not too bad really.

The way I look at it is that if it means the difference between

seeing a Ponseti doctor or not it's worth it to me to fly Angel

Flight. Their website is www.angelflight.org and there's a place to

click for the part of the country you live in.

Good luck and keep us posted. I was in your same shoes, it was 4 days

before 's scheduled surgery when I found this group. They

convinced me to cancel the surgery and wait for the Ponseti doctor to

see us. I have absolutely no regrets, especially when I look at my

baby's perfect little feet.

and 11/10/03 bilateral clubfeet dbb 23/7

[Guest guest]

I understand about hearing the mom crying. That is the very thing that made me

start this foundation. I wish I could be with every mom for at least every

first casting..... No one really understands how it feels until you go through

it....

www.pediatric-orthopedic-foundation.org

[Guest guest]

I understand about hearing the mom crying. That is the very thing that made me

start this foundation. I wish I could be with every mom for at least every

first casting..... No one really understands how it feels until you go through

it....

www.pediatric-orthopedic-foundation.org