Re: Dr. Ponseti on December 17th

[Guest guest]

My daughter will be seeing Dr. Ponseti next week and i was wondering

if anyone else from this board will be there? The only thing he had

available was a 9:00 appt. But I took it any way.

We will be leaving from Texas on the 15th and hopefully everything

will go well. The only thing i worry about is the road conditions.

I called the RMH and for some odd reason they could not find the

request i put in yesterday. So i had to fill out another one over

the phone. I hope we get to stay there because i have heard such

wonderful things about it.

The last thing we are waiting to hear about is our insurance. I am

praying that they will accept to pay to see Dr. Ponseti. My friend

that works for my daughter's dr. said they were going to send all

her file about her club feet to FirstCare as well as her ortho. I

also faxed her a copy of Dr. Ponseti's email to me with the

diagnosis and I am hoping that will further convince them about how

important this is.

I'm hoping to meet any one of yall there maybe.Thank You all for

listening and giving me some answer to my ?'s.

and

BL CF 12/16/03

[Guest guest]

That is very nice of you, thank you. I dont do the driving so im not

sure yet what route we will take. what part are yall from? we may

need a break because my daughter does not do very good traveling. my

son always did wonderful on trips since he was a baby but my

daughter is something else. she hates her car seat. she likes to be

able to look out the window and see what is going on. i will

definetly keep your offer in mind. ill let you know as we get closer

to leaving and thank you so much!

and

BL CF 12/16/03

> Not sure what route you're driving from Texas to Iowa but we're

in east-central Oklahoma if you need a pit stop

> s.

>

> Re: Dr. Ponseti on December 17th

>

>

>

>

> My daughter will be seeing Dr. Ponseti next week and i was

wondering

> if anyone else from this board will be there? The only thing he

had

> available was a 9:00 appt. But I took it any way.

> We will be leaving from Texas on the 15th and hopefully everything

> will go well. The only thing i worry about is the road conditions.

> I called the RMH and for some odd reason they could not find the

> request i put in yesterday. So i had to fill out another one over

> the phone. I hope we get to stay there because i have heard such

> wonderful things about it.

> The last thing we are waiting to hear about is our insurance. I am

> praying that they will accept to pay to see Dr. Ponseti. My friend

> that works for my daughter's dr. said they were going to send all

> her file about her club feet to FirstCare as well as her ortho. I

> also faxed her a copy of Dr. Ponseti's email to me with the

> diagnosis and I am hoping that will further convince them about

how

> important this is.

> I'm hoping to meet any one of yall there maybe.Thank You all for

> listening and giving me some answer to my ?'s.

> and

> BL CF 12/16/03

>

>

>

>

>

>

>

[Guest guest]

>

> My daughter will be seeing Dr. Ponseti next week and i was

wondering

> if anyone else from this board will be there? The only thing he had

> available was a 9:00 appt. But I took it any way.

> We will be leaving from Texas on the 15th and hopefully everything

> will go well. The only thing i worry about is the road conditions.

,

Did you know you can take Angel Flight to Iowa for free? You could go

there and back on the same day or go the day before. They are

wonderful! Here's their website. http://www.angelflightamerica.org/

[Guest guest]

We will be there! We don't even have an appointment yet, but we go

this coming monday and then back for the five day cast change again on

friday, so they will have to squeeze us in. I actually called

about the Angel flights and the only problem I had was due to the

early dark hours now and the weather, they can't guarentee flights out

and I can't tell for sure how long in the appointment I will be.

Since it gets dark in michigan around 5 now, there is now way we would

be home in time. and they won't fly in the dark. It's also all

volunteer based, so they have to work around the pilots schedules. We

just weren't that flexible with appointment times and trying to get

home. before dark for them. They also need to know 5 business days in

advance.

Hope to see you there!

atypical bl cf mitchells 23/7

> >

> > My daughter will be seeing Dr. Ponseti next week and i was

> wondering

> > if anyone else from this board will be there? The only thing he had

> > available was a 9:00 appt. But I took it any way.

> > We will be leaving from Texas on the 15th and hopefully everything

> > will go well. The only thing i worry about is the road conditions.

>

>

> ,

>

> Did you know you can take Angel Flight to Iowa for free? You could go

> there and back on the same day or go the day before. They are

> wonderful! Here's their website. http://www.angelflightamerica.org/

[Guest guest]

us too! What time is your appt on monday?

> >

> > My daughter will be seeing Dr. Ponseti next week and i was

> wondering

> > if anyone else from this board will be there? The only thing he had

> > available was a 9:00 appt. But I took it any way.

> > We will be leaving from Texas on the 15th and hopefully everything

> > will go well. The only thing i worry about is the road conditions.

>

>

> ,

>

> Did you know you can take Angel Flight to Iowa for free? You could go

> there and back on the same day or go the day before. They are

> wonderful! Here's their website. http://www.angelflightamerica.org/

>

>

>

>

>

>

[Guest guest]

LOL, should have read all the replies first hunh??

Our appt is at 10:00. Monday he will still have the shoes with the

huge wedges on the bottoms. I cant believe I'm saying this, but I am

really going to miss those.

> > >

> > > My daughter will be seeing Dr. Ponseti next week and i was

> > wondering

> > > if anyone else from this board will be there? The only thing

he had

> > > available was a 9:00 appt. But I took it any way.

> > > We will be leaving from Texas on the 15th and hopefully

everything

> > > will go well. The only thing i worry about is the road conditions.

> >

> >

> > ,

> >

> > Did you know you can take Angel Flight to Iowa for free? You

could go

> > there and back on the same day or go the day before. They are

> > wonderful! Here's their website. http://www.angelflightamerica.org/

>

>

>

>

>

>

[Guest guest]

We are actually staying at the red roof inn.

After spending 8 1/2 weeks at the rmh, I just couldn't do it again.

plus, since we are going for a night and heading home the next day, I

honestly didn't want to clean the room before leaving. You get a

reduced rate at the rrinn as well. 40.00 a night. Where are you staying?

> > >

> > > My daughter will be seeing Dr. Ponseti next week and i was

> > wondering

> > > if anyone else from this board will be there? The only thing

he had

> > > available was a 9:00 appt. But I took it any way.

> > > We will be leaving from Texas on the 15th and hopefully

everything

> > > will go well. The only thing i worry about is the road

conditions.

> >

> >

> > ,

> >

> > Did you know you can take Angel Flight to Iowa for free? You

could go

> > there and back on the same day or go the day before. They are

> > wonderful! Here's their website.

http://www.angelflightamerica.org/

> >

> >

> >

> >

> >

> >

[Guest guest]

What time will you be getting into town on Sunday night? How long

have you been out of the casts? I love the bath time too. I will

really miss that, but hopefully not for too long.

> > > >

> > > > My daughter will be seeing Dr. Ponseti next week and i was

> > > wondering

> > > > if anyone else from this board will be there? The only thing

> he had

> > > > available was a 9:00 appt. But I took it any way.

> > > > We will be leaving from Texas on the 15th and hopefully

> everything

> > > > will go well. The only thing i worry about is the road

conditions.

> > >

> > >

> > > ,

> > >

> > > Did you know you can take Angel Flight to Iowa for free? You

> could go

> > > there and back on the same day or go the day before. They are

> > > wonderful! Here's their website.

http://www.angelflightamerica.org/

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi ,

yep, we are getting recasted...if you want to revisit one of the

postings it's in the " here we go again " one. But to do a little

update. We had the wedges put on the bottoms of his shoes which has

helped the toe walking tremendously. Only we didn't get it quick

enough. and considering we did it after a month of being in the

shoes, that's kinda scary.

Toe walking is not good at all. Not only does it hinder the

stretching of the heel cord, but it also doesn't not help to stretch

the tendons on the bottoms of the feet, the ones that when pulled

together form a crease on the soles of their feet. has very big

creases and very tight heels. Because of the toe walking or standing

in our case, it made the tightness worse, thus the recasting. grrr.

very frustrating, but I trust Dr. P and I trust the One who gave him

his gifts even more. So I know we are in the best of hands!

Are you having problems with that? If you are I would encourage you

to send pictures immediately or see about getting pt.

Hope this helps,

> > > >

> > > > My daughter will be seeing Dr. Ponseti next week and i was

> > > wondering

> > > > if anyone else from this board will be there? The only thing

> he had

> > > > available was a 9:00 appt. But I took it any way.

> > > > We will be leaving from Texas on the 15th and hopefully

> everything

> > > > will go well. The only thing i worry about is the road

conditions.

> > >

> > >

> > > ,

> > >

> > > Did you know you can take Angel Flight to Iowa for free? You

> could go

> > > there and back on the same day or go the day before. They are

> > > wonderful! Here's their website.

http://www.angelflightamerica.org/

> >

> >

> >

> >

> >

> >

[Guest guest]

I don't think it's shallow at all, that's how we felt too.

Actually there may be a change of plans as my mom just got the next

two weeks off and she and my husband are very concerned about me

driving that much in winter. soooo...we may be staying for a week to

two weeks at the rmh. oiy!! I DON'T KNOW WHAT TO DO!!!!!

> > > >

> > > > My daughter will be seeing Dr. Ponseti next week and i was

> > > wondering

> > > > if anyone else from this board will be there? The only thing

> he had

> > > > available was a 9:00 appt. But I took it any way.

> > > > We will be leaving from Texas on the 15th and hopefully

> everything

> > > > will go well. The only thing i worry about is the road

> conditions.

> > >

> > >

> > > ,

> > >

> > > Did you know you can take Angel Flight to Iowa for free? You

> could go

> > > there and back on the same day or go the day before. They are

> > > wonderful! Here's their website.

> http://www.angelflightamerica.org/

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I know, we still need to get our tree. After spending that much time

at the rmh, I just don't want to, but the thought of going and getting

caught in a snowstorm missing an appointment or whatever with two kids

in the car...well, it makes me nervous. I just gotta pray and wait

for an answer. Hurry up Lord! hehe

The thought of not being there for christmas...oiy! I'm starting to

cry again! grrr...

> > > > >

> > > > > My daughter will be seeing Dr. Ponseti next week and

i was

> > > > wondering

> > > > > if anyone else from this board will be there? The

only thing

> > he had

> > > > > available was a 9:00 appt. But I took it any way.

> > > > > We will be leaving from Texas on the 15th and hopefully

> > everything

> > > > > will go well. The only thing i worry about is the road

> > conditions.

> > > >

> > > >

> > > > ,

> > > >

> > > > Did you know you can take Angel Flight to Iowa for

free? You

> > could go

> > > > there and back on the same day or go the day before.

They are

> > > > wonderful! Here's their website.

> > http://www.angelflightamerica.org/

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Gosh , before you go through all that, see about getting referred

by your pediatrician and try out Physical therapy. It certainly can't

hurt and make sure the Physical therapist is consulting with dr. p or

dr. h. It has made a huge difference in what jason does, she was the

one that got the wedges made for him. Working with her in PT for 2

times a week has helped his mobility a lot.

Dr. p right now is thinking 3 more casts, but he has only seen

pictures. nontheless I am hopeful. We will actually be going into

AFO's that our PT got through our ortho in town. I am bringing those

with me to show dr. p, he knows about them and helped the ortho here

intown design them for jason. They are free moving, so I am pretty

excited about that. He will go into the mitchells then at night.

they have a foam wedge on the bottom of the shoe up by the toes that

forces him to put his ankle down when he stands. They are pretty cool

and I would highly recommend them for moms who are in the bar full

time right now with a stander-walker to talk to dr. p about getting

them. They just make sense. I can't wait to show them to .

good luck. There are so many hard decisions to make. Lord bless you

as you make them.

> > > > >

> > > > > My daughter will be seeing Dr. Ponseti next week and i was

> > > > wondering

> > > > > if anyone else from this board will be there? The only thing

> > he had

> > > > > available was a 9:00 appt. But I took it any way.

> > > > > We will be leaving from Texas on the 15th and hopefully

> > everything

> > > > > will go well. The only thing i worry about is the road

> conditions.

> > > >

> > > >

> > > > ,

> > > >

> > > > Did you know you can take Angel Flight to Iowa for free? You

> > could go

> > > > there and back on the same day or go the day before. They are

> > > > wonderful! Here's their website.

> http://www.angelflightamerica.org/

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hopefully we will get to meet! My daughter's appointment is at 9:00

but, since we are from out of town and its our first time i thought

we needed to be there early. we too are looking at getting recasted.

i sent Dr.P pictures last month and he said she had a relapse and

she would need maybe 2 more sets of casts. but her ortho here in

texas says she is fine and her feet are still very flexible. so

these to very different opinions explain our trip to Iowa.

when you say " they will have to squeeze us in " will they really do

that? WOW!

I received an email from the RMH and they said they would try to get

us in because we are coming from so far but suggested a backup

reservation at the red roof inn which may not be a bad idea.

well you cant miss our noisy kiddos, so we will be there at 9:00

hopefully we get to meet and anybody else that will be there!

Mchelle and

BL CF 12/16/03 DBB 23/7

> > >

> > > My daughter will be seeing Dr. Ponseti next week and i was

> > wondering

> > > if anyone else from this board will be there? The only thing

he had

> > > available was a 9:00 appt. But I took it any way.

> > > We will be leaving from Texas on the 15th and hopefully

everything

> > > will go well. The only thing i worry about is the road

conditions.

> >

> >

> > ,

> >

> > Did you know you can take Angel Flight to Iowa for free? You

could go

> > there and back on the same day or go the day before. They are

> > wonderful! Here's their website.

http://www.angelflightamerica.org/

[Guest guest]

>

> We will be there! We don't even have an appointment yet, but we go

> this coming monday and then back for the five day cast change again

on

> friday, so they will have to squeeze us in. I actually called

> about the Angel flights and the only problem I had was due to the

> early dark hours now and the weather, they can't guarentee flights

out

> and I can't tell for sure how long in the appointment I will be.

> Since it gets dark in michigan around 5 now, there is now way we

would

> be home in time. and they won't fly in the dark.

That must be something different with the midwest organization

because I have flown many times in the dark. It's dark in Maine by

4:00 PM, I can rarely get home before 4:00 from an appointment at

Shriner's Hospital. In fact, the last pilot told me Angel Flight

requires that pilots are instrument rated so they can fly in the dark

and in the clouds. One thing you could do is fly there one day and

come home the next day, that way you wouldn't have to fly in the dark.

The northeast branch can't guarantee flights either, but I've never

had a flight cancelled (I've now flown with Angel Flight eight times)

and that included on a day when there were 50 mile per hour winds. I

was scared to death, but neither pilot minded the wind at all. I've

even had a pilot come pick us up at the last minute when our pilot

didn't show once (he had the wrong day). Most of the pilots that have

taken us to Shriner's tell me the only thing they stay away from is

ice and they can fly below the clouds to avoid ice. Some pilots have

de-icing capability too. There are all different types of planes.

As far as length of appointment, I usually just guess at about 3

hours. The pilot will wait for you if you're late and sometimes they

are late as well. I'm really surprised they told their pilots

wouldn't fly in the dark.

As far as working around pilots' schedules, what they do at the

northeast branch is put your name, number of passengers, date and

time of your appointment on a list and pilots sign up for you if it

fits their schedule and where they live. I've had pilots from New

York City fly us from Massachusetts to Maine, although usually it's a

New England based pilot. I've given them as much as three weeks'

notice and as little as three days' notice and never had a problem

getting a flight. Maybe next time you go if you have more notice you

could arrange a flight. I highly recommend them, they have been

wonderful and saved us from an incredibly long and arduous trip.

and 11/10/03 bilateral clubfeet