Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 I'll jump in too, but with the opposite story. With my first child I was really sick with the flu very early in the pregnancy and stressed the entire pregnancy because I had miscarried my first and the doctors kept thinking that something was wrong with him because I had low ammniotic fluid. This would almost point to a definite case of clubfoot when you factor in all those things. His feet were and are prefectly straight. I was never sick with Livie, not stressed in the least, and had a very uneventful and normal pregnancy. She was born with a severe left clubfoot. No family history on either side of our family and it was a complete surprise to us as they never caught it on ultrasound. The only other difference between the two pregnancies was that I was on Clomid when I conceived Livie, but not with Josh. Jen & Livie i read an article > > > My friend emailed this article to me. Seems medically inaccurate to me > because Christian was diagnosed at my 18 week u/s and no-one mentioned any > problems with my fluid at that point but I did develop oligohydramnios > during my pregnancy and delivered a month early because of it. > > > > > > > > In the rare event that your level of amniotic fluid remains very low for > much of the second trimester, your baby's lungs may not be able to develop > properly (this is called pulmonary hypoplasia) and he may not be able to > live outside the uterus. Severe oligohydramnios can also lead to limited > range of motion in the arms and legs or deformities (such as clubfoot) > caused by not having enough space to move around in the womb. > > > > > > > > > > Mommy to (12-17-98) and > > Christian (1-30-04) LCF - DBB 23/7 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 What hospital did you deliver, I delivered at Beth Isreal in Boston. Dawn fabegirls fabegirls@...> wrote: We found out at 20wk US. Of course looking for it due to me having CF. More intrestingly though, I was contacted by University of Boston about a month ago. They are doing research with the hospital I delivered at on " all congenital defects " . They asked if I wanted to participate. Of course I did. It was about an hour long via telelphone many questions. They date back 6mnths prior to conception with everything from over the counters to precriptions you might have taken. Tylenol,tums,laxitives,vitamins,etc. They even sent me a booklet of medications. How was the pregnency? etc. It was pretty intresting. Afterwards they sent me swabs for me,dh,baby, they feel it has to do with the way we process medications. They said there are two ways the body can process. Of course we don't get to know the results but I can contact them if I want the results of the study when finished. KK Livi Ava BL Atypical CF/ s 21/7 > > Hmm.. We found out at 15 weeks.... I'm sure there was plenty of > room..LOL > > i read an article > > > > > > My friend emailed this article to me. Seems medically inaccurate > to me > > because Christian was diagnosed at my 18 week u/s and no-one > mentioned any > > problems with my fluid at that point but I did develop > oligohydramnios > > during my pregnancy and delivered a month early because of it. > > > > > > > > > > > > > > > > In the rare event that your level of amniotic fluid remains very > low for > > much of the second trimester, your baby's lungs may not be able > to develop > > properly (this is called pulmonary hypoplasia) and he may not be > able to > > live outside the uterus. Severe oligohydramnios can also lead to > limited > > range of motion in the arms and legs or deformities (such as > clubfoot) > > caused by not having enough space to move around in the womb. > > > > > > > > > > > > > > > > > > > > Mommy to (12-17-98) and > > > > Christian (1-30-04) LCF - DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 What hospital did you deliver, I delivered at Beth Isreal in Boston. Dawn fabegirls fabegirls@...> wrote: We found out at 20wk US. Of course looking for it due to me having CF. More intrestingly though, I was contacted by University of Boston about a month ago. They are doing research with the hospital I delivered at on " all congenital defects " . They asked if I wanted to participate. Of course I did. It was about an hour long via telelphone many questions. They date back 6mnths prior to conception with everything from over the counters to precriptions you might have taken. Tylenol,tums,laxitives,vitamins,etc. They even sent me a booklet of medications. How was the pregnency? etc. It was pretty intresting. Afterwards they sent me swabs for me,dh,baby, they feel it has to do with the way we process medications. They said there are two ways the body can process. Of course we don't get to know the results but I can contact them if I want the results of the study when finished. KK Livi Ava BL Atypical CF/ s 21/7 > > Hmm.. We found out at 15 weeks.... I'm sure there was plenty of > room..LOL > > i read an article > > > > > > My friend emailed this article to me. Seems medically inaccurate > to me > > because Christian was diagnosed at my 18 week u/s and no-one > mentioned any > > problems with my fluid at that point but I did develop > oligohydramnios > > during my pregnancy and delivered a month early because of it. > > > > > > > > > > > > > > > > In the rare event that your level of amniotic fluid remains very > low for > > much of the second trimester, your baby's lungs may not be able > to develop > > properly (this is called pulmonary hypoplasia) and he may not be > able to > > live outside the uterus. Severe oligohydramnios can also lead to > limited > > range of motion in the arms and legs or deformities (such as > clubfoot) > > caused by not having enough space to move around in the womb. > > > > > > > > > > > > > > > > > > > > Mommy to (12-17-98) and > > > > Christian (1-30-04) LCF - DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 I just had to comment on the original post. My has VERY atypical club feet. One of the two was so effected that it is hard to imagine but her leg bones stopped and were covered with skin and then next to her bones was her foot, curled closed and facing her butt. It was not the norm, that's for sure. The other was a 'normal' atypical foot. LOL I had POLYHYDRAMNIOS. And there is no family history on either side. Ever. So this theory at least doesn't hold true on our end. Oh, and I found out on our 29 week U/S - it didn't show up before then. Chris ----- Original Message ----- > > > > My friend emailed this article to me. Seems medically inaccurate > to me > > because Christian was diagnosed at my 18 week u/s and no-one > mentioned any > > problems with my fluid at that point but I did develop > oligohydramnios > > during my pregnancy and delivered a month early because of it. > > > > > > > > > > > > > > > > In the rare event that your level of amniotic fluid remains very > low for > > much of the second trimester, your baby's lungs may not be able > to develop > > properly (this is called pulmonary hypoplasia) and he may not be > able to > > live outside the uterus. Severe oligohydramnios can also lead to > limited > > range of motion in the arms and legs or deformities (such as > clubfoot) > > caused by not having enough space to move around in the womb. > > > > > > > > > > > > > > > > > > > > Mommy to (12-17-98) and > > > > Christian (1-30-04) LCF - DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 I just had to comment on the original post. My has VERY atypical club feet. One of the two was so effected that it is hard to imagine but her leg bones stopped and were covered with skin and then next to her bones was her foot, curled closed and facing her butt. It was not the norm, that's for sure. The other was a 'normal' atypical foot. LOL I had POLYHYDRAMNIOS. And there is no family history on either side. Ever. So this theory at least doesn't hold true on our end. Oh, and I found out on our 29 week U/S - it didn't show up before then. Chris ----- Original Message ----- > > > > My friend emailed this article to me. Seems medically inaccurate > to me > > because Christian was diagnosed at my 18 week u/s and no-one > mentioned any > > problems with my fluid at that point but I did develop > oligohydramnios > > during my pregnancy and delivered a month early because of it. > > > > > > > > > > > > > > > > In the rare event that your level of amniotic fluid remains very > low for > > much of the second trimester, your baby's lungs may not be able > to develop > > properly (this is called pulmonary hypoplasia) and he may not be > able to > > live outside the uterus. Severe oligohydramnios can also lead to > limited > > range of motion in the arms and legs or deformities (such as > clubfoot) > > caused by not having enough space to move around in the womb. > > > > > > > > > > > > > > > > > > > > Mommy to (12-17-98) and > > > > Christian (1-30-04) LCF - DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 . I think it may be a stretch to say that IMO. I took Tylenol sinus continuously through both of my pregnancies and my first son is very healthy and straight feet. I didn't do anything different in my second pregnacy (that I am aware of) and has clubfeet. I am certainly no expert in these areas, but wouldn't the affect be the same with both pregnancies if that were the case? If over the counter drugs was (is) one of the causes of clubfoot, wouldn't they have determined that by now? I don't know, I am just speculating. , please don't feel like you caused your daughters clubfoot because of the one time you used Sudefed (sp?). P.S. Can someone tell me what oligohydramnios is? Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 . I think it may be a stretch to say that IMO. I took Tylenol sinus continuously through both of my pregnancies and my first son is very healthy and straight feet. I didn't do anything different in my second pregnacy (that I am aware of) and has clubfeet. I am certainly no expert in these areas, but wouldn't the affect be the same with both pregnancies if that were the case? If over the counter drugs was (is) one of the causes of clubfoot, wouldn't they have determined that by now? I don't know, I am just speculating. , please don't feel like you caused your daughters clubfoot because of the one time you used Sudefed (sp?). P.S. Can someone tell me what oligohydramnios is? Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 I agree 100%. chris Re: Re: i read an article . I think it may be a stretch to say that IMO. I took Tylenol sinus continuously through both of my pregnancies and my first son is very healthy and straight feet. I didn't do anything different in my second pregnacy (that I am aware of) and has clubfeet. I am certainly no expert in these areas, but wouldn't the affect be the same with both pregnancies if that were the case? If over the counter drugs was (is) one of the causes of clubfoot, wouldn't they have determined that by now? I don't know, I am just speculating. , please don't feel like you caused your daughters clubfoot because of the one time you used Sudefed (sp?). P.S. Can someone tell me what oligohydramnios is? Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 I agree 100%. chris Re: Re: i read an article . I think it may be a stretch to say that IMO. I took Tylenol sinus continuously through both of my pregnancies and my first son is very healthy and straight feet. I didn't do anything different in my second pregnacy (that I am aware of) and has clubfeet. I am certainly no expert in these areas, but wouldn't the affect be the same with both pregnancies if that were the case? If over the counter drugs was (is) one of the causes of clubfoot, wouldn't they have determined that by now? I don't know, I am just speculating. , please don't feel like you caused your daughters clubfoot because of the one time you used Sudefed (sp?). P.S. Can someone tell me what oligohydramnios is? Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Oligohydramnios is basically low volume of amniotic fluid. And I agree about the medications. I took medications when pregnant with my first daughter and she has no clubfoot and perfectly healthy. The only difference with Kelsey was that I required IV medications occasionally but I took tylenol, sudafed and occasionally benadryl when pregnant with both. With , my non-CF child, I even took Tylenol 3 with codeine in the last 4 weeks of my pregnancy because she was causing me so much pain, I could not sleep otherwise. From what I have been told by several Doctors, no one really knows what causes clubfoot so all of these are just theories. Sometimes I know it can accompany other disorders such as spina bifida etc but most of it is guesswork as to what causes it but I have been reassured by many Doctors that nothing I did differently would have changed the outcome for kelsey's foot so there is no sense in berating myself for anything. I choose to look as it that God felt we had something to learn from Kelsey and her foot and boy have I learned plenty and not just about the technical issues. I have learned so much about courage, grace, strength, patience and love from this small child. She inspires me daily. Jenni susan.shook@... wrote: >. >I think it may be a stretch to say that IMO. I took Tylenol sinus >continuously through both of my pregnancies and my first son is very >healthy and straight feet. I didn't do anything different in my second >pregnacy (that I am aware of) and has clubfeet. I am certainly no >expert in these areas, but wouldn't the affect be the same with both >pregnancies if that were the case? If over the counter drugs was (is) one >of the causes of clubfoot, wouldn't they have determined that by now? I >don't know, I am just speculating. , please don't feel like you >caused your daughters clubfoot because of the one time you used Sudefed >(sp?). > >P.S. Can someone tell me what oligohydramnios is? > > > > > > > Shook >Retail Operations Manager/Baking Instructor >Vie de France Yamazaki, Inc. >2070 Chain Bridge Rd. Suite 500 >Vienna, VA 22182 > x374 > x374 > fax > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 The cause of clubfoot is partly genetic and partly other factors given that there is only a 32.5% chance that if one identical twin has it that the other will as well. The " other factors " have not been determined. Think of all the cases of clubfoot in Africa and other parts of the world where Tylenol Sinus and other meds are probably not readily available. I would take guesses more at vitamins/minerals and the abundance or lack of them pre-conception and in the early weeks of pregnancy. Low folic acid intake increases the risk of spina bifida for example. For more info here is an exerpt from Egbert's " A Parent's Research Paper on Clubfoot " which he continually updates: Incidence There are differing estimates of incidence rates ranging from 1:500 to 1:1,000 births (web sites) Ratio of Male to Female is between 2:1 to 3:1, 40% of cases are bilateral (web sites) If one child in a family has it the chances for a second child are 2.9% In identical twins, both children have it only 32.5% of the time, (which would imply that it is not totally genetic or I believe that 100% of identical twins would have it) In non-identical twins, the chances are the same as for a second child, 2.9% Where one parent has clubfeet the incidence for their child is 3% Rate among the Japanese is ½ that of Caucasians Rate among South African Blacks is 3 times as frequently as Caucasians Rate among Polynesians is 6 times as frequently as Caucasians (Dr. Ponseti's Book, 1996) If both parents have it, I believe that it can occur for between 15- 25% of their children. If one parent and one child have it, then subsequent children have a 25% risk (web site of the American Academy of Pediatrics - http://www.aap.org/pubserv/essenexp.htm ) Lochmiller et al. reported that 24.4% of affected individuals have a family history of idiopathic talipes equinovarus Cause The cause is currently unknown (idiopathic) although genetic and perhaps environmental factors may play some role. Some general information and a Genetics Self Study guide at the U of Iowa can be found through a message at http://groups.yahoo.com/group/nosurgery4clubfoot/message/2415 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 I took antibiotics during my first pg and his feet are perfect. No drug second time and he has club feet. Both children were concieve during stress full times. 1st was 7 months after my cousin died and 2nd was 7 months after sister died. Just a thought, but maybe it is just part of the plan for our lives...... Dawn redskline123@...> wrote: OK, now this has me thinking. I'm the type who doesn't even take a tylenol when I'm pg--nothing!! So my 1st thought was, no I didn't take any drugs when pg with Ava. But then I remembered I got really sick with the flu & bad cough in May, which I would have suffered through, but my grandfather died and the combination of the 2 was too much. So my midwife said I could take Sudafed & a cough suppressant (sp?)...which I did for the day of the funeral! Ok, this is seeming a little strange, because I never took anything with the other two (non CF). Like I said, not even a tylenol. But then again, that was in May, and she was born in August, so I was already like 6 months or something. Gee, now that I'm thinking about it, this was a heck of a pregnancy! My FIL also had major heart surgery when I was 5 months, thought he had pneumonia, turned out it was a bad valve & they did emergency surgery 5 days later. Okay, the drugs/stress/CF combo might carry some weight! , mommy of: Guinevere, on, Ava 8/4/04 right CF DBB 23/7 > > Hmm.. We found out at 15 weeks.... I'm sure there was plenty of > room..LOL > > i read an article > > > > > > My friend emailed this article to me. Seems medically inaccurate > to me > > because Christian was diagnosed at my 18 week u/s and no-one > mentioned any > > problems with my fluid at that point but I did develop > oligohydramnios > > during my pregnancy and delivered a month early because of it. > > > > > > > > > > > > > > > > In the rare event that your level of amniotic fluid remains very > low for > > much of the second trimester, your baby's lungs may not be able > to develop > > properly (this is called pulmonary hypoplasia) and he may not be > able to > > live outside the uterus. Severe oligohydramnios can also lead to > limited > > range of motion in the arms and legs or deformities (such as > clubfoot) > > caused by not having enough space to move around in the womb. > > > > > > > > > > > > > > > > > > > > Mommy to (12-17-98) and > > > > Christian (1-30-04) LCF - DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 I wish we were neighbors , we sound like two peas in a pod s. Re: i read an article , I really don't think I " caused " Ava's CF. I made my peace with that a long time ago! And while I personally don't like to take any medications during pg, I know many (most?) people do, without any harm to their baby. I'm that way about my life in general, I just don't like to take medicines unless absolutely necessary (which is why I'm not on the pill, which is why I have 3 kids LOL ) But I don't begrudge anyone their " mother's little helper " (hehe) as long as the doc says OK. I just thought it was interesting that everyone kept mentioning the OTC drugs they had taken while pg. And things are constantly changing in the medical world (remember Thalidomide (sp?) babies?). As my midwife said, There's no such thing as a " safe " drug--every drug has risks. It's just my personal feelings. But don't get me wrong, my kids get their immunizations, and cold syrup when they're sick (and Benadryl when I want them to sleep hehe). For myself though, I'd rather suffer through it unless I'm really bad. , mommy of: Guinevere, on, Ava 8/4/04 right CF DBB 23/7 > . > I think it may be a stretch to say that IMO. I took Tylenol sinus > continuously through both of my pregnancies and my first son is very > healthy and straight feet. I didn't do anything different in my second > pregnacy (that I am aware of) and has clubfeet. I am certainly no > expert in these areas, but wouldn't the affect be the same with both > pregnancies if that were the case? If over the counter drugs was (is) one > of the causes of clubfoot, wouldn't they have determined that by now? I > don't know, I am just speculating. , please don't feel like you > caused your daughters clubfoot because of the one time you used Sudefed > (sp?). > > P.S. Can someone tell me what oligohydramnios is? > > > > > > > Shook > Retail Operations Manager/Baking Instructor > Vie de France Yamazaki, Inc. > 2070 Chain Bridge Rd. Suite 500 > Vienna, VA 22182 > x374 > x374 > fax > > Quote Link to comment Share on other sites More sharing options...
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