Re: Re: Dr. Ponseti on December 17th

[Guest guest]

Not sure what route you're driving from Texas to Iowa but we're in east-central

Oklahoma if you need a pit stop

s.

Re: Dr. Ponseti on December 17th

My daughter will be seeing Dr. Ponseti next week and i was wondering

if anyone else from this board will be there? The only thing he had

available was a 9:00 appt. But I took it any way.

We will be leaving from Texas on the 15th and hopefully everything

will go well. The only thing i worry about is the road conditions.

I called the RMH and for some odd reason they could not find the

request i put in yesterday. So i had to fill out another one over

the phone. I hope we get to stay there because i have heard such

wonderful things about it.

The last thing we are waiting to hear about is our insurance. I am

praying that they will accept to pay to see Dr. Ponseti. My friend

that works for my daughter's dr. said they were going to send all

her file about her club feet to FirstCare as well as her ortho. I

also faxed her a copy of Dr. Ponseti's email to me with the

diagnosis and I am hoping that will further convince them about how

important this is.

I'm hoping to meet any one of yall there maybe.Thank You all for

listening and giving me some answer to my ?'s.

and

BL CF 12/16/03

[Guest guest]

We may yet get scheduled for the 17th. We start recasting on the 13th. I'd

love to get it done and coming back on Friday for that would be fine. I'll let

you know!

Chris

Re: Dr. Ponseti on December 17th

>

> My daughter will be seeing Dr. Ponseti next week and i was

wondering

> if anyone else from this board will be there? The only thing he had

> available was a 9:00 appt. But I took it any way.

> We will be leaving from Texas on the 15th and hopefully everything

> will go well. The only thing i worry about is the road conditions.

,

Did you know you can take Angel Flight to Iowa for free? You could go

there and back on the same day or go the day before. They are

wonderful! Here's their website. http://www.angelflightamerica.org/

[Guest guest]

,

I'll be there this Monday, too! First thing in the morning. And I hope they

squeeze us in for a cast change on Friday as well. It would be neat to get to

meet some of you there!

Chris

Re: Dr. Ponseti on December 17th

We will be there! We don't even have an appointment yet, but we go

this coming monday and then back for the five day cast change again on

friday, so they will have to squeeze us in. I actually called

about the Angel flights and the only problem I had was due to the

early dark hours now and the weather, they can't guarentee flights out

and I can't tell for sure how long in the appointment I will be.

Since it gets dark in michigan around 5 now, there is now way we would

be home in time. and they won't fly in the dark. It's also all

volunteer based, so they have to work around the pilots schedules. We

just weren't that flexible with appointment times and trying to get

home. before dark for them. They also need to know 5 business days in

advance.

Hope to see you there!

atypical bl cf mitchells 23/7

> >

> > My daughter will be seeing Dr. Ponseti next week and i was

> wondering

> > if anyone else from this board will be there? The only thing he had

> > available was a 9:00 appt. But I took it any way.

> > We will be leaving from Texas on the 15th and hopefully everything

> > will go well. The only thing i worry about is the road conditions.

>

>

> ,

>

> Did you know you can take Angel Flight to Iowa for free? You could go

> there and back on the same day or go the day before. They are

> wonderful! Here's their website. http://www.angelflightamerica.org/

[Guest guest]

,

Is getting re-casted? I'm curious what Dr. Ponseti has to say about his

toe walking. Please let me know.. we might actually take another trip to see

him..

Thanks

-------------- Original message --------------

LOL, should have read all the replies first hunh??

Our appt is at 10:00. Monday he will still have the shoes with the

huge wedges on the bottoms. I cant believe I'm saying this, but I am

really going to miss those.

> > >

> > > My daughter will be seeing Dr. Ponseti next week and i was

> > wondering

> > > if anyone else from this board will be there? The only thing

he had

> > > available was a 9:00 appt. But I took it any way.

> > > We will be leaving from Texas on the 15th and hopefully

everything

> > > will go well. The only thing i worry about is the road conditions.

> >

> >

> > ,

> >

> > Did you know you can take Angel Flight to Iowa for free? You

could go

> > there and back on the same day or go the day before. They are

> > wonderful! Here's their website. http://www.angelflightamerica.org/

>

>

>

>

>

>

[Guest guest]

8:30! Where are you staying?

Re: Dr. Ponseti on December 17th

us too! What time is your appt on monday?

> >

> > My daughter will be seeing Dr. Ponseti next week and i was

> wondering

> > if anyone else from this board will be there? The only thing he had

> > available was a 9:00 appt. But I took it any way.

> > We will be leaving from Texas on the 15th and hopefully everything

> > will go well. The only thing i worry about is the road conditions.

>

>

> ,

>

> Did you know you can take Angel Flight to Iowa for free? You could go

> there and back on the same day or go the day before. They are

> wonderful! Here's their website. http://www.angelflightamerica.org/

>

>

>

>

>

>

[Guest guest]

The wedges or the shoes? LOL

Knowing we are heading back to several weeks of casts made me say " oh good - I

can use really pj's " and then " bummer. I like showering her! " LOL LOL

I think we might still be there at 10! I'll look for you!!!

Chris

Re: Dr. Ponseti on December 17th

LOL, should have read all the replies first hunh??

Our appt is at 10:00. Monday he will still have the shoes with the

huge wedges on the bottoms. I cant believe I'm saying this, but I am

really going to miss those.

> > >

> > > My daughter will be seeing Dr. Ponseti next week and i was

> > wondering

> > > if anyone else from this board will be there? The only thing

he had

> > > available was a 9:00 appt. But I took it any way.

> > > We will be leaving from Texas on the 15th and hopefully

everything

> > > will go well. The only thing i worry about is the road conditions.

> >

> >

> > ,

> >

> > Did you know you can take Angel Flight to Iowa for free? You

could go

> > there and back on the same day or go the day before. They are

> > wonderful! Here's their website. http://www.angelflightamerica.org/

>

>

>

>

>

>

[Guest guest]

We haven't decided yet but RR was at the top of our list. We really don't want

to do chores after driving all day and then doing it again that day... shallow?

Oh well. LOL I have enough chores waiting here!

Re: Dr. Ponseti on December 17th

We are actually staying at the red roof inn.

After spending 8 1/2 weeks at the rmh, I just couldn't do it again.

plus, since we are going for a night and heading home the next day, I

honestly didn't want to clean the room before leaving. You get a

reduced rate at the rrinn as well. 40.00 a night. Where are you staying?

> > >

> > > My daughter will be seeing Dr. Ponseti next week and i was

> > wondering

> > > if anyone else from this board will be there? The only thing

he had

> > > available was a 9:00 appt. But I took it any way.

> > > We will be leaving from Texas on the 15th and hopefully

everything

> > > will go well. The only thing i worry about is the road

conditions.

> >

> >

> > ,

> >

> > Did you know you can take Angel Flight to Iowa for free? You

could go

> > there and back on the same day or go the day before. They are

> > wonderful! Here's their website.

http://www.angelflightamerica.org/

> >

> >

> >

> >

> >

> >

[Guest guest]

Yes.. My stands fine on his left foot but his right is always on the toes.

I emailed his doctor, Dr Herzenberg, and he spoke of botox.. Which I might add

I'm not thrilled about.. I think that would be a last resort.. Did Dr P say how

many casts he would need before going back into the shoes? What did you use for

the " wedges " ? 's feet are still very flexible. The left one more so.. I

don't want to wait too long to get this corrected tho.. I hope to talk to his

doc and see if we can try casting alone first. Than if that doesn't do like

it's supposed to I guess we'll be visiting Dr P again...

Thanks for the info!

-------------- Original message --------------

Hi ,

yep, we are getting recasted...if you want to revisit one of the

postings it's in the " here we go again " one. But to do a little

update. We had the wedges put on the bottoms of his shoes which has

helped the toe walking tremendously. Only we didn't get it quick

enough. and considering we did it after a month of being in the

shoes, that's kinda scary.

Toe walking is not good at all. Not only does it hinder the

stretching of the heel cord, but it also doesn't not help to stretch

the tendons on the bottoms of the feet, the ones that when pulled

together form a crease on the soles of their feet. has very big

creases and very tight heels. Because of the toe walking or standing

in our case, it made the tightness worse, thus the recasting. grrr.

very frustrating, but I trust Dr. P and I trust the One who gave him

his gifts even more. So I know we are in the best of hands!

Are you having problems with that? If you are I would encourage you

to send pictures immediately or see about getting pt.

Hope this helps,

> > > >

> > > > My daughter will be seeing Dr. Ponseti next week and i was

> > > wondering

> > > > if anyone else from this board will be there? The only thing

> he had

> > > > available was a 9:00 appt. But I took it any way.

> > > > We will be leaving from Texas on the 15th and hopefully

> everything

> > > > will go well. The only thing i worry about is the road

conditions.

> > >

> > >

> > > ,

> > >

> > > Did you know you can take Angel Flight to Iowa for free? You

> could go

> > > there and back on the same day or go the day before. They are

> > > wonderful! Here's their website.

http://www.angelflightamerica.org/

> >

> >

> >

> >

> >

> >

[Guest guest]

We've been out at least 5 mos now...

I don't know when we'll get in. Traffic and weather will make a difference. DH

and I will be leaving some time Sunday morning and it's an 8 hour drive without

stops for feeding, diaper changes, etc. Let alone the need to walk a bit. I

imagine we won't get there until evening.

I'll ask if you've checked in when we do. What time are you expecting to get

there?

Chris

Re: Dr. Ponseti on December 17th

What time will you be getting into town on Sunday night? How long

have you been out of the casts? I love the bath time too. I will

really miss that, but hopefully not for too long.

> > > >

> > > > My daughter will be seeing Dr. Ponseti next week and i was

> > > wondering

> > > > if anyone else from this board will be there? The only thing

> he had

> > > > available was a 9:00 appt. But I took it any way.

> > > > We will be leaving from Texas on the 15th and hopefully

> everything

> > > > will go well. The only thing i worry about is the road

conditions.

> > >

> > >

> > > ,

> > >

> > > Did you know you can take Angel Flight to Iowa for free? You

> could go

> > > there and back on the same day or go the day before. They are

> > > wonderful! Here's their website.

http://www.angelflightamerica.org/

> >

> >

> >

> >

> >

> >

[Guest guest]

I can't stay because my boys have school so I just get to go and come. But if

you do have to stay a while, RMH is it. My dh is worried about the weather and

traveling as well... but you do what you have to do.

I have so much to do for christmas I can't imagine not being here! LOL

Re: Dr. Ponseti on December 17th

I don't think it's shallow at all, that's how we felt too.

Actually there may be a change of plans as my mom just got the next

two weeks off and she and my husband are very concerned about me

driving that much in winter. soooo...we may be staying for a week to

two weeks at the rmh. oiy!! I DON'T KNOW WHAT TO DO!!!!!

> > > >

> > > > My daughter will be seeing Dr. Ponseti next week and i was

> > > wondering

> > > > if anyone else from this board will be there? The only thing

> he had

> > > > available was a 9:00 appt. But I took it any way.

> > > > We will be leaving from Texas on the 15th and hopefully

> everything

> > > > will go well. The only thing i worry about is the road

> conditions.

> > >

> > >

> > > ,

> > >

> > > Did you know you can take Angel Flight to Iowa for free? You

> could go

> > > there and back on the same day or go the day before. They are

> > > wonderful! Here's their website.

> http://www.angelflightamerica.org/

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Don't worry. The Lord will take care of it. He always does.

Let me know where you are going to stay and we'll be sure to check in with you

while we are in town!!! We still haven't made reservations yet either...

Chris

Re: Dr. Ponseti on December 17th

I know, we still need to get our tree. After spending that much time

at the rmh, I just don't want to, but the thought of going and getting

caught in a snowstorm missing an appointment or whatever with two kids

in the car...well, it makes me nervous. I just gotta pray and wait

for an answer. Hurry up Lord! hehe

The thought of not being there for christmas...oiy! I'm starting to

cry again! grrr...

> > > > >

> > > > > My daughter will be seeing Dr. Ponseti next week and

i was

> > > > wondering

> > > > > if anyone else from this board will be there? The

only thing

> > he had

> > > > > available was a 9:00 appt. But I took it any way.

> > > > > We will be leaving from Texas on the 15th and hopefully

> > everything

> > > > > will go well. The only thing i worry about is the road

> > conditions.

> > > >

> > > >

> > > > ,

> > > >

> > > > Did you know you can take Angel Flight to Iowa for

free? You

> > could go

> > > > there and back on the same day or go the day before.

They are

> > > > wonderful! Here's their website.

> > http://www.angelflightamerica.org/

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks so much for the info. We actually just called Dr Herzenberg and made an

appointment for Dec 20th.. I told his secretary we weren't interested in the

botox now.. LOL.. Don't want him ta think that's why we're going. Hopefully

casting will take care of it.. But I'm a bit bummed that he'll be in casts over

Christmas and he just started walking.. Ack What am I gonna do????

-------------- Original message --------------

Gosh , before you go through all that, see about getting referred

by your pediatrician and try out Physical therapy. It certainly can't

hurt and make sure the Physical therapist is consulting with dr. p or

dr. h. It has made a huge difference in what jason does, she was the

one that got the wedges made for him. Working with her in PT for 2

times a week has helped his mobility a lot.

Dr. p right now is thinking 3 more casts, but he has only seen

pictures. nontheless I am hopeful. We will actually be going into

AFO's that our PT got through our ortho in town. I am bringing those

with me to show dr. p, he knows about them and helped the ortho here

intown design them for jason. They are free moving, so I am pretty

excited about that. He will go into the mitchells then at night.

they have a foam wedge on the bottom of the shoe up by the toes that

forces him to put his ankle down when he stands. They are pretty cool

and I would highly recommend them for moms who are in the bar full

time right now with a stander-walker to talk to dr. p about getting

them. They just make sense. I can't wait to show them to .

good luck. There are so many hard decisions to make. Lord bless you

as you make them.

> > > > >

> > > > > My daughter will be seeing Dr. Ponseti next week and i was

> > > > wondering

> > > > > if anyone else from this board will be there? The only thing

> > he had

> > > > > available was a 9:00 appt. But I took it any way.

> > > > > We will be leaving from Texas on the 15th and hopefully

> > everything

> > > > > will go well. The only thing i worry about is the road

> conditions.

> > > >

> > > >

> > > > ,

> > > >

> > > > Did you know you can take Angel Flight to Iowa for free? You

> > could go

> > > > there and back on the same day or go the day before. They are

> > > > wonderful! Here's their website.

> http://www.angelflightamerica.org/

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

,

I am sorry about the news. I hope isn't in casts too long and you

never know, maybe he will be able to walk with the casts on. LOL! Can

you imagine? Good luck and keep us posted.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

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fax