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Re: spina bifida

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susan,

leaving the shoes on 23/7 for years would create problems of its

own. for instance, keeping his knees in that slightly bent position

as well as his feet would pretty much assure that he would develop

joint contractures. sam will likely one day walk with the help of

braces and crutches/walker (like many sb kids). cant do that with

the bar 23/7, so keeping him in that would mean he would never learn

to walk at all. and even if he were in the bar forever, the muscle

imbalances never go away, so its not even clear that that would

help. at some point it becomes a choice of bad choices. keep him in

the bar forever to keep his feet straight or do some surgery to keep

his feet flat plantigrade so that he can learn to walk (such as it

is). i mean, he is not going to walk as you or i know that term, let

alone running or jumping, so surgery remains a possibility for us.

> Bill.

> What about leaving the shoes and bar on 23/7 for a longer time

(years).

> Will that help with reocurring relapses? Is leaving them on 23/7

not

> realistic over longer periods of time? The relapses has to be very

> frustrating at this point. I would be terrified to ever take the

shoes

> off.

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

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susan,

leaving the shoes on 23/7 for years would create problems of its

own. for instance, keeping his knees in that slightly bent position

as well as his feet would pretty much assure that he would develop

joint contractures. sam will likely one day walk with the help of

braces and crutches/walker (like many sb kids). cant do that with

the bar 23/7, so keeping him in that would mean he would never learn

to walk at all. and even if he were in the bar forever, the muscle

imbalances never go away, so its not even clear that that would

help. at some point it becomes a choice of bad choices. keep him in

the bar forever to keep his feet straight or do some surgery to keep

his feet flat plantigrade so that he can learn to walk (such as it

is). i mean, he is not going to walk as you or i know that term, let

alone running or jumping, so surgery remains a possibility for us.

> Bill.

> What about leaving the shoes and bar on 23/7 for a longer time

(years).

> Will that help with reocurring relapses? Is leaving them on 23/7

not

> realistic over longer periods of time? The relapses has to be very

> frustrating at this point. I would be terrified to ever take the

shoes

> off.

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

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Share on other sites

susan,

leaving the shoes on 23/7 for years would create problems of its

own. for instance, keeping his knees in that slightly bent position

as well as his feet would pretty much assure that he would develop

joint contractures. sam will likely one day walk with the help of

braces and crutches/walker (like many sb kids). cant do that with

the bar 23/7, so keeping him in that would mean he would never learn

to walk at all. and even if he were in the bar forever, the muscle

imbalances never go away, so its not even clear that that would

help. at some point it becomes a choice of bad choices. keep him in

the bar forever to keep his feet straight or do some surgery to keep

his feet flat plantigrade so that he can learn to walk (such as it

is). i mean, he is not going to walk as you or i know that term, let

alone running or jumping, so surgery remains a possibility for us.

> Bill.

> What about leaving the shoes and bar on 23/7 for a longer time

(years).

> Will that help with reocurring relapses? Is leaving them on 23/7

not

> realistic over longer periods of time? The relapses has to be very

> frustrating at this point. I would be terrified to ever take the

shoes

> off.

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

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Share on other sites

susan,

no worries...thanks for the thoughts. im sorry if my tone was such

that you thought i was offended.

it is worthwhile to point out, however, that surgery to correct

clubfoot is not never appropriate, depending on circumstances.

> Bill.

> I am not educated enough about sb, so I apologize if I was

offending in

> any way. It sounds like you have tough decisions to make daily.

As they

> say, one day at a time, one hurdle at a time. Best of luck with

all of

> Sam's treatments.

>

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

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