Our Rights as Mito Parents

[Guest guest]

Patty,

I tried to respond to you directly but my e-mail was kicked back as

undeliverable, so I posted my response to the Mito group. (Sorry

everyone)

I do have some suggestions -- but, I'm off to the hospital with my son

for testing this morning and will not be back until this evening. Just

wanted to let you know that I got your message but I want to respond in

detail when I have a little more time to type.

Sue Ann Bube

Our Rights as Mito Parents

Sue Ann,

I have an Almost 11 year old son with Complex one. Weve been through

it all, litagation for 2 years4 years ago. Currently we are looking

at pulling him from public and placing him into private, non sped. My

son is very high functioning. He needs a lot of accomodation and

flexibility.

He is bright.

I have been attempting to locate other parents who have have done the

same as us.

Any contacts would be greatly appreciated or even advice.

Thnk you

Patty

Mom to with complex one

I was misdiagnosed with MS myself