RE: : Re: how lack of brain energy impacts behavior/ C nightmare

[Guest guest]

Thanks Anne

Our DR has written many letters throughout the years. I wrote a note to the teacher, and she called me already, this morning apoligizing and saying she had nothing to do with the letter, and the vice principal said she did. Who do you believe. My 16 old son has been homeschooling and is now working online to get caught up with peers. Well this has been going on for a year and a half, and I guess we did not sign the proper form when he started, and after a year and a half, the police came to the door, handcuffed him and took him to juvenile hall. Meanwhile I was at the Doctor, finding out that I had Osteoporosis,YEAH! and my husband was paged home from work because there was noone home to get Colby off the bus, and we were frantic not knowing where our 16 year old son, who is very dependable, was. We findly found out and the whole time I'm at the Dr. office talking to my husband on a cell phone. You know I should write a book. But who would read it! Sorry to go on and on.

Hope today is happy

mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy> >Reply-To: Mito >To: <Mito > >Subject: : Re: how lack of brain energy impacts behavior/ >Date: Thu, 15 Apr 2004 20:44:13 -0700 > >, > >Zach and Sam both have what is called 'waived absences". Any doctor can request this. Ours simply writes a letter each year stating that the child has a mito disease which is a disease of energy production. due to child's easy fatigability and frequent hospitalizations he will need to leave school earlier, start school later and will incur many absences. doctor requests absences be waived and that home bound instruction to supplement school time be provided. > >by law they have to honor the request to waive absences. they still take attendance and even mark it on the report card but the child is not penalized. you don't even need to have an iep for this (my kids do have ieps but it is section 504 that allows this accommodation for some children to access education). > >have the doc write it - it can be very brief -he does not owe them some big long explanation. at the bottom our doc always says that the amount of time kids are in school will be left up to my discretion and that he fully supports my judgment. if they have questions they should feel free to call him any time. Zach is in 5th grade and sam in kindergarten and they have yet to call him. > >then in the iep you an make a plan to address what will happen with the many absences. will there be home bound instruction to supplement? extra set of books at home? communication via fax or email or phone when lessons are missed so that the child can get it, etc. we don't leave anything out. we have a wonderful school system that has supported us every step of the way but even so if it is not laid out in the iep, they get busy and my kids suffer. so we make very specific plans for how they will access education when they are too tired to go to school but well enough to still learn. > >Anne > > >Anne >www.caringbridge.org/wi/zachsam From must-see cities to the best beaches, plan a getaway with the Spring Travel Guide!