Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 8/19/2002 10:05:52 AM Pacific Daylight Time, rebeccaannray@... writes: > I was just looking for some input as to what others have faced in > similar situations. > Thank you! > Hi, I am in the middle of trying to get disability. I think in the end I will get it. I had not been working for over a year when I first applied. The most important thing is to have a doctor that supports your claim. I had a functional capacity evaluation to prove that I could not work (given by a physical therapist) and I'm going to include it with the next application. Don't be afraid to get a lawyer. My lawyer was the one that set me up with the physical therapist. They are " friends " so I only had to pay $200 for a $1200 evaluation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 8/19/2002 10:05:52 AM Pacific Daylight Time, rebeccaannray@... writes: > I was just looking for some input as to what others have faced in > similar situations. > Thank you! > Hi, I am in the middle of trying to get disability. I think in the end I will get it. I had not been working for over a year when I first applied. The most important thing is to have a doctor that supports your claim. I had a functional capacity evaluation to prove that I could not work (given by a physical therapist) and I'm going to include it with the next application. Don't be afraid to get a lawyer. My lawyer was the one that set me up with the physical therapist. They are " friends " so I only had to pay $200 for a $1200 evaluation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 In a message dated 8/19/2002 10:05:52 AM Pacific Daylight Time, rebeccaannray@... writes: > I was just looking for some input as to what others have faced in > similar situations. > Thank you! > Hi, I am in the middle of trying to get disability. I think in the end I will get it. I had not been working for over a year when I first applied. The most important thing is to have a doctor that supports your claim. I had a functional capacity evaluation to prove that I could not work (given by a physical therapist) and I'm going to include it with the next application. Don't be afraid to get a lawyer. My lawyer was the one that set me up with the physical therapist. They are " friends " so I only had to pay $200 for a $1200 evaluation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 AnnRay wrote: > > I am new to this list, and perhaps this has been covered before, but > I was wondering what kind of luck, if any, others have had with > obtaining disability for Fibromyalgia. Generally it's a matter of having a good doctor to back you, and great documentation as to why you can't work. It's generally a couple of years before you can get approved, if you get approved, which means you need to have some kind of support for those years! They won't give it to you if you're already working! Might want to check out the disabilities group at yahoo groups for better info. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 AnnRay wrote: > > I am new to this list, and perhaps this has been covered before, but > I was wondering what kind of luck, if any, others have had with > obtaining disability for Fibromyalgia. Generally it's a matter of having a good doctor to back you, and great documentation as to why you can't work. It's generally a couple of years before you can get approved, if you get approved, which means you need to have some kind of support for those years! They won't give it to you if you're already working! Might want to check out the disabilities group at yahoo groups for better info. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi , Will write more when my hands stop hurting, but we have Disability for 5 yrs, will explain more about it later promise. The only thing is that I am in the UK. God Bless Hugs Odette XxxxxX www.chrisandodette.co.uk " When we in our foolishness thought we were wise, He played the fool and He opened our eyes. When we in our weakness believed we were strong, He became helpless to show we were wrong And so we follow God's own fool, For only the foolish can tell Believe the unbelievable, And come be a fool as well " Disability I am new to this list, and perhaps this has been covered before, but I was wondering what kind of luck, if any, others have had with obtaining disability for Fibromyalgia. At this time, I am still working, however, that is only because my employer hasn't fired me over my absenses. I am finding it harder and harder to make it to work on a " normal " basis, and the mental strain is terrible. I was just looking for some input as to what others have faced in similar situations. Thank you! Blessed Be! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi Its me again, I did say I would write more.... I gather you are in the US, so my authority works differently. For the last 5 years me and my hubby have been trying to get some recognition for this, but without a proper diagnoses at the time we had to fight tooth and nail, well my hubby did, but we got it first in 1998 for 2 yrs low rate care and low rate disability....... After that we only ended up with low rate care for two years. But this year we didn't have to fight for once, I had to renew my claim, and in the middle of the renewal (12th July 02) I was actually diagnosed with Fibro..... So they put me on middle rate care and high rate mobility..... Like most of the people on this group have said that having a doctor that 1) knows what they are talking about, 2) are sympathetic and 3) don't treat you as you have two heads (and one of those heads is what's causing the problem). I am thanking God everyday for this because it helps me get out and about in taxis right now and is saving me a lot of pain. Plus the kids get to go out with me more. I hope you get somewhere Hugs Odette XxxxxX Click on the icon for our site: Our Cottage " When we in our foolishness thought we were wise, He played the fool and He opened our eyes. When we in our weakness believed we were strong, He became helpless to show we were wrong And so we follow God's own fool, For only the foolish can tell Believe the unbelievable, And come be a fool as well " Disability I am new to this list, and perhaps this has been covered before, but I was wondering what kind of luck, if any, others have had with obtaining disability for Fibromyalgia. At this time, I am still working, however, that is only because my employer hasn't fired me over my absenses. I am finding it harder and harder to make it to work on a " normal " basis, and the mental strain is terrible. I was just looking for some input as to what others have faced in similar situations. Thank you! Blessed Be! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi Its me again, I did say I would write more.... I gather you are in the US, so my authority works differently. For the last 5 years me and my hubby have been trying to get some recognition for this, but without a proper diagnoses at the time we had to fight tooth and nail, well my hubby did, but we got it first in 1998 for 2 yrs low rate care and low rate disability....... After that we only ended up with low rate care for two years. But this year we didn't have to fight for once, I had to renew my claim, and in the middle of the renewal (12th July 02) I was actually diagnosed with Fibro..... So they put me on middle rate care and high rate mobility..... Like most of the people on this group have said that having a doctor that 1) knows what they are talking about, 2) are sympathetic and 3) don't treat you as you have two heads (and one of those heads is what's causing the problem). I am thanking God everyday for this because it helps me get out and about in taxis right now and is saving me a lot of pain. Plus the kids get to go out with me more. I hope you get somewhere Hugs Odette XxxxxX Click on the icon for our site: Our Cottage " When we in our foolishness thought we were wise, He played the fool and He opened our eyes. When we in our weakness believed we were strong, He became helpless to show we were wrong And so we follow God's own fool, For only the foolish can tell Believe the unbelievable, And come be a fool as well " Disability I am new to this list, and perhaps this has been covered before, but I was wondering what kind of luck, if any, others have had with obtaining disability for Fibromyalgia. At this time, I am still working, however, that is only because my employer hasn't fired me over my absenses. I am finding it harder and harder to make it to work on a " normal " basis, and the mental strain is terrible. I was just looking for some input as to what others have faced in similar situations. Thank you! Blessed Be! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi Its me again, I did say I would write more.... I gather you are in the US, so my authority works differently. For the last 5 years me and my hubby have been trying to get some recognition for this, but without a proper diagnoses at the time we had to fight tooth and nail, well my hubby did, but we got it first in 1998 for 2 yrs low rate care and low rate disability....... After that we only ended up with low rate care for two years. But this year we didn't have to fight for once, I had to renew my claim, and in the middle of the renewal (12th July 02) I was actually diagnosed with Fibro..... So they put me on middle rate care and high rate mobility..... Like most of the people on this group have said that having a doctor that 1) knows what they are talking about, 2) are sympathetic and 3) don't treat you as you have two heads (and one of those heads is what's causing the problem). I am thanking God everyday for this because it helps me get out and about in taxis right now and is saving me a lot of pain. Plus the kids get to go out with me more. I hope you get somewhere Hugs Odette XxxxxX Click on the icon for our site: Our Cottage " When we in our foolishness thought we were wise, He played the fool and He opened our eyes. When we in our weakness believed we were strong, He became helpless to show we were wrong And so we follow God's own fool, For only the foolish can tell Believe the unbelievable, And come be a fool as well " Disability I am new to this list, and perhaps this has been covered before, but I was wondering what kind of luck, if any, others have had with obtaining disability for Fibromyalgia. At this time, I am still working, however, that is only because my employer hasn't fired me over my absenses. I am finding it harder and harder to make it to work on a " normal " basis, and the mental strain is terrible. I was just looking for some input as to what others have faced in similar situations. Thank you! Blessed Be! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 I don't know if it will help anyone at all, but when I first applied I printed out at least 50 documents on my medical condition and forwarded it along with my paperwork. I did get approved on the first try. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 I don't know if it will help anyone at all, but when I first applied I printed out at least 50 documents on my medical condition and forwarded it along with my paperwork. I did get approved on the first try. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 In a message dated 8/23/2002 7:52:51 PM Pacific Daylight Time, hansmprnc@... writes: > but I was denied the first time, who > knows why ... > > Reggie > Hello, I get the impression that many of the denials are random. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 In a message dated 8/23/2002 7:52:51 PM Pacific Daylight Time, hansmprnc@... writes: > but I was denied the first time, who > knows why ... > > Reggie > Hello, I get the impression that many of the denials are random. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 In a message dated 8/23/2002 7:52:51 PM Pacific Daylight Time, hansmprnc@... writes: > but I was denied the first time, who > knows why ... > > Reggie > Hello, I get the impression that many of the denials are random. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Missy, I included info from the CDC, NIH, JAMA and the Lancet with my file but I was denied the first time, who knows why ... Reggie --- parrot004@... wrote: > I don't know if it will help anyone at all, but when > I first applied I > printed out at least 50 documents on my medical > condition and forwarded it > along with my paperwork. > > I did get approved on the first try. > > Missy > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Missy, I included info from the CDC, NIH, JAMA and the Lancet with my file but I was denied the first time, who knows why ... Reggie --- parrot004@... wrote: > I don't know if it will help anyone at all, but when > I first applied I > printed out at least 50 documents on my medical > condition and forwarded it > along with my paperwork. > > I did get approved on the first try. > > Missy > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Missy, I included info from the CDC, NIH, JAMA and the Lancet with my file but I was denied the first time, who knows why ... Reggie --- parrot004@... wrote: > I don't know if it will help anyone at all, but when > I first applied I > printed out at least 50 documents on my medical > condition and forwarded it > along with my paperwork. > > I did get approved on the first try. > > Missy > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 , I was told by the clerk at the Soc. Sec. Admn. ofiice that when the economy slows down and unemployment is up they deny first claims more redily. She told me not to be discouraged but to re-apply if they denied my initial claim, of course I did and I have a strong feeling I'll be approved. Thanks for writing, Reggie --- GreenEyez1978@... wrote: > In a message dated 8/23/2002 7:52:51 PM Pacific > Daylight Time, > hansmprnc@... writes: > > > > but I was denied the first time, who > > knows why ... > > > > Reggie > > > > Hello, > I get the impression that many of the denials > are random. > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 , I was told by the clerk at the Soc. Sec. Admn. ofiice that when the economy slows down and unemployment is up they deny first claims more redily. She told me not to be discouraged but to re-apply if they denied my initial claim, of course I did and I have a strong feeling I'll be approved. Thanks for writing, Reggie --- GreenEyez1978@... wrote: > In a message dated 8/23/2002 7:52:51 PM Pacific > Daylight Time, > hansmprnc@... writes: > > > > but I was denied the first time, who > > knows why ... > > > > Reggie > > > > Hello, > I get the impression that many of the denials > are random. > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 , I was told by the clerk at the Soc. Sec. Admn. ofiice that when the economy slows down and unemployment is up they deny first claims more redily. She told me not to be discouraged but to re-apply if they denied my initial claim, of course I did and I have a strong feeling I'll be approved. Thanks for writing, Reggie --- GreenEyez1978@... wrote: > In a message dated 8/23/2002 7:52:51 PM Pacific > Daylight Time, > hansmprnc@... writes: > > > > but I was denied the first time, who > > knows why ... > > > > Reggie > > > > Hello, > I get the impression that many of the denials > are random. > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2002 Report Share Posted August 24, 2002 Hi All, As far as I know here in the UK, its more lack of knowledge of Fibro. The first time I had to go to two tribunals, both with 3 - 4 people there, the people that asked the questions and the other one was from the claims department.. ohh yeh and another one that was taking notes... Thats the way they do it over here. Talk about getting the third degree, they wanted to know all the nitty gritty. My GP is really nice he always makes things sound worse than they are but he knows what a day consists of, and he wrote me a lovely letter to the claims department. I was told by my solicitor that the best way to win is to go in and being as you would be on one of your worse days and answer the questions the same way, always bad days... never really give them the exact details of what you do on a good day. This is not lie according to my solicitor, he said all they are interested in is if you are capable to do certain things, going places etc.... and if you are on a bad day you can't do those things so your not lying. It sounded a bit dodgey to me at first but when my solicitor came with me it wasn't as hard as I thought, but they do ask a lot of questions that yourself can't answer, is more for the person who looks after you if you have a carer..... One question they like to ask a lot is 'How many times a night do you get up to go to the loo'? Do you need help in getting there My answer then was once/twice a night and Hubby helps me there and sometimes even has to pull my nightclothes back up. That is true but not every day. So they asked me about a normal day, my answer to that is what is normal to you? My normal is hubby helping me out of bed and downstairs and him doing the house work while I sit on here.... Their normal day according to one doctor is getting up at 6:30am and feeding the dog, and going to work. yeh right.... Sorry this is to much waffle, I am sick of being treated as a outcast and have to go through all this, my brother has mental problems (can't spell the name Schizophreiner) and he got Disablitity without a fight. And yet when it comes to people like us we have to fight tooth and nail, just to prove that 'its not in our heads'. Wow thats a lot of typing.... Ok will leave it there for now, but one thing is never give up, always appeal the decision. God Bless Odette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2002 Report Share Posted August 24, 2002 Hi All, As far as I know here in the UK, its more lack of knowledge of Fibro. The first time I had to go to two tribunals, both with 3 - 4 people there, the people that asked the questions and the other one was from the claims department.. ohh yeh and another one that was taking notes... Thats the way they do it over here. Talk about getting the third degree, they wanted to know all the nitty gritty. My GP is really nice he always makes things sound worse than they are but he knows what a day consists of, and he wrote me a lovely letter to the claims department. I was told by my solicitor that the best way to win is to go in and being as you would be on one of your worse days and answer the questions the same way, always bad days... never really give them the exact details of what you do on a good day. This is not lie according to my solicitor, he said all they are interested in is if you are capable to do certain things, going places etc.... and if you are on a bad day you can't do those things so your not lying. It sounded a bit dodgey to me at first but when my solicitor came with me it wasn't as hard as I thought, but they do ask a lot of questions that yourself can't answer, is more for the person who looks after you if you have a carer..... One question they like to ask a lot is 'How many times a night do you get up to go to the loo'? Do you need help in getting there My answer then was once/twice a night and Hubby helps me there and sometimes even has to pull my nightclothes back up. That is true but not every day. So they asked me about a normal day, my answer to that is what is normal to you? My normal is hubby helping me out of bed and downstairs and him doing the house work while I sit on here.... Their normal day according to one doctor is getting up at 6:30am and feeding the dog, and going to work. yeh right.... Sorry this is to much waffle, I am sick of being treated as a outcast and have to go through all this, my brother has mental problems (can't spell the name Schizophreiner) and he got Disablitity without a fight. And yet when it comes to people like us we have to fight tooth and nail, just to prove that 'its not in our heads'. Wow thats a lot of typing.... Ok will leave it there for now, but one thing is never give up, always appeal the decision. God Bless Odette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2002 Report Share Posted August 24, 2002 Hi All, As far as I know here in the UK, its more lack of knowledge of Fibro. The first time I had to go to two tribunals, both with 3 - 4 people there, the people that asked the questions and the other one was from the claims department.. ohh yeh and another one that was taking notes... Thats the way they do it over here. Talk about getting the third degree, they wanted to know all the nitty gritty. My GP is really nice he always makes things sound worse than they are but he knows what a day consists of, and he wrote me a lovely letter to the claims department. I was told by my solicitor that the best way to win is to go in and being as you would be on one of your worse days and answer the questions the same way, always bad days... never really give them the exact details of what you do on a good day. This is not lie according to my solicitor, he said all they are interested in is if you are capable to do certain things, going places etc.... and if you are on a bad day you can't do those things so your not lying. It sounded a bit dodgey to me at first but when my solicitor came with me it wasn't as hard as I thought, but they do ask a lot of questions that yourself can't answer, is more for the person who looks after you if you have a carer..... One question they like to ask a lot is 'How many times a night do you get up to go to the loo'? Do you need help in getting there My answer then was once/twice a night and Hubby helps me there and sometimes even has to pull my nightclothes back up. That is true but not every day. So they asked me about a normal day, my answer to that is what is normal to you? My normal is hubby helping me out of bed and downstairs and him doing the house work while I sit on here.... Their normal day according to one doctor is getting up at 6:30am and feeding the dog, and going to work. yeh right.... Sorry this is to much waffle, I am sick of being treated as a outcast and have to go through all this, my brother has mental problems (can't spell the name Schizophreiner) and he got Disablitity without a fight. And yet when it comes to people like us we have to fight tooth and nail, just to prove that 'its not in our heads'. Wow thats a lot of typing.... Ok will leave it there for now, but one thing is never give up, always appeal the decision. God Bless Odette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 I am new to this group and i am grateful I have found it. I have had severe pain on the left side of my body for 2 and a half years.some days i can't walk, and if i get out of the house i can only be out about and hour and a half then i must rush home, i hardly drive, shop, or clean hose. recently I was diagnosed with post traumatic fibromyalgia as well because my right side is now affected along with all the other symptons that go with fibro. I hired an attorney who specializes in fibro, i have a team of doctors i have been seeing for 2and half years, no of course that is not good enough i have to go see the states doctors next. I am terrified because i look normal etc. they will not get the picture. please help i live in california can anyone give me input as to their experience or any helpful hints to ease ny mind its really bothering me!!!! god bless you all, nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 mchnurse1111 wrote: > > i have a team of doctors i have > been seeing for 2and half years, no of course that is not good enough > i have to go see the states doctors next. I am terrified because i > look normal etc. they will not get the picture. please help i live in > california can anyone give me input as to their experience or any > helpful hints to ease ny mind its really bothering me!!!! I really suggest you join the disabilities group on yahoo, they will give you a ton of help. They can give you all kinds of tips on how to handle the state doctors, and how to have your doctors present your case in the best possible light. Good luck, I wish I could give better help, but these people are living the procedure, I haven't done it yet. Darcy Quote Link to comment Share on other sites More sharing options...
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