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In a message dated 8/19/2002 10:05:52 AM Pacific Daylight Time,

rebeccaannray@... writes:

> I was just looking for some input as to what others have faced in

> similar situations.

> Thank you!

>

Hi,

I am in the middle of trying to get disability. I think in the end I

will get it. I had not been working for over a year when I first applied. The

most important thing is to have a doctor that supports your claim. I had a

functional capacity evaluation to prove that I could not work (given by a

physical therapist) and I'm going to include it with the next application.

Don't be afraid to get a lawyer. My lawyer was the one that set me up with

the physical therapist. They are " friends " so I only had to pay $200 for a

$1200 evaluation.

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In a message dated 8/19/2002 10:05:52 AM Pacific Daylight Time,

rebeccaannray@... writes:

> I was just looking for some input as to what others have faced in

> similar situations.

> Thank you!

>

Hi,

I am in the middle of trying to get disability. I think in the end I

will get it. I had not been working for over a year when I first applied. The

most important thing is to have a doctor that supports your claim. I had a

functional capacity evaluation to prove that I could not work (given by a

physical therapist) and I'm going to include it with the next application.

Don't be afraid to get a lawyer. My lawyer was the one that set me up with

the physical therapist. They are " friends " so I only had to pay $200 for a

$1200 evaluation.

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In a message dated 8/19/2002 10:05:52 AM Pacific Daylight Time,

rebeccaannray@... writes:

> I was just looking for some input as to what others have faced in

> similar situations.

> Thank you!

>

Hi,

I am in the middle of trying to get disability. I think in the end I

will get it. I had not been working for over a year when I first applied. The

most important thing is to have a doctor that supports your claim. I had a

functional capacity evaluation to prove that I could not work (given by a

physical therapist) and I'm going to include it with the next application.

Don't be afraid to get a lawyer. My lawyer was the one that set me up with

the physical therapist. They are " friends " so I only had to pay $200 for a

$1200 evaluation.

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AnnRay wrote:

>

> I am new to this list, and perhaps this has been covered before, but

> I was wondering what kind of luck, if any, others have had with

> obtaining disability for Fibromyalgia.

Generally it's a matter of having a good doctor to back you, and great

documentation as to why you can't work. It's generally a couple of

years before you can get approved, if you get approved, which means you

need to have some kind of support for those years! They won't give it

to you if you're already working! Might want to check out the

disabilities group at yahoo groups for better info.

Darcy

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AnnRay wrote:

>

> I am new to this list, and perhaps this has been covered before, but

> I was wondering what kind of luck, if any, others have had with

> obtaining disability for Fibromyalgia.

Generally it's a matter of having a good doctor to back you, and great

documentation as to why you can't work. It's generally a couple of

years before you can get approved, if you get approved, which means you

need to have some kind of support for those years! They won't give it

to you if you're already working! Might want to check out the

disabilities group at yahoo groups for better info.

Darcy

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Hi ,

Will write more when my hands stop hurting, but we have Disability for 5 yrs,

will explain more about it later promise.

The only thing is that I am in the UK.

God Bless

Hugs

Odette

XxxxxX

www.chrisandodette.co.uk

" When we in our foolishness thought we were wise, He played the fool and He

opened our eyes. When we in our weakness believed we were strong, He became

helpless to show we were wrong And so we follow God's own fool, For only the

foolish can tell Believe the unbelievable, And come be a fool as well "

Disability

I am new to this list, and perhaps this has been covered before, but

I was wondering what kind of luck, if any, others have had with

obtaining disability for Fibromyalgia.

At this time, I am still working, however, that is only because my

employer hasn't fired me over my absenses. I am finding it harder

and harder to make it to work on a " normal " basis, and the mental

strain is terrible.

I was just looking for some input as to what others have faced in

similar situations.

Thank you!

Blessed Be!

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Hi

Its me again, I did say I would write more.... I gather you are in the US, so my

authority works differently.

For the last 5 years me and my hubby have been trying to get some recognition

for this, but without a proper diagnoses at the time we had to fight tooth and

nail, well my hubby did, but we got it first in 1998 for 2 yrs low rate care and

low rate disability....... After that we only ended up with low rate care for

two years.

But this year we didn't have to fight for once, I had to renew my claim, and in

the middle of the renewal (12th July 02) I was actually diagnosed with

Fibro..... So they put me on middle rate care and high rate mobility.....

Like most of the people on this group have said that having a doctor that 1)

knows what they are talking about, 2) are sympathetic and 3) don't treat you as

you have two heads (and one of those heads is what's causing the problem).

I am thanking God everyday for this because it helps me get out and about in

taxis right now and is saving me a lot of pain.

Plus the kids get to go out with me more.

I hope you get somewhere

Hugs

Odette

XxxxxX

Click on the icon for our site:

Our Cottage

" When we in our foolishness thought we were wise, He played the fool and He

opened our eyes. When we in our weakness believed we were strong, He became

helpless to show we were wrong And so we follow God's own fool, For only the

foolish can tell Believe the unbelievable, And come be a fool as well "

Disability

I am new to this list, and perhaps this has been covered before, but

I was wondering what kind of luck, if any, others have had with

obtaining disability for Fibromyalgia.

At this time, I am still working, however, that is only because my

employer hasn't fired me over my absenses. I am finding it harder

and harder to make it to work on a " normal " basis, and the mental

strain is terrible.

I was just looking for some input as to what others have faced in

similar situations.

Thank you!

Blessed Be!

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Hi

Its me again, I did say I would write more.... I gather you are in the US, so my

authority works differently.

For the last 5 years me and my hubby have been trying to get some recognition

for this, but without a proper diagnoses at the time we had to fight tooth and

nail, well my hubby did, but we got it first in 1998 for 2 yrs low rate care and

low rate disability....... After that we only ended up with low rate care for

two years.

But this year we didn't have to fight for once, I had to renew my claim, and in

the middle of the renewal (12th July 02) I was actually diagnosed with

Fibro..... So they put me on middle rate care and high rate mobility.....

Like most of the people on this group have said that having a doctor that 1)

knows what they are talking about, 2) are sympathetic and 3) don't treat you as

you have two heads (and one of those heads is what's causing the problem).

I am thanking God everyday for this because it helps me get out and about in

taxis right now and is saving me a lot of pain.

Plus the kids get to go out with me more.

I hope you get somewhere

Hugs

Odette

XxxxxX

Click on the icon for our site:

Our Cottage

" When we in our foolishness thought we were wise, He played the fool and He

opened our eyes. When we in our weakness believed we were strong, He became

helpless to show we were wrong And so we follow God's own fool, For only the

foolish can tell Believe the unbelievable, And come be a fool as well "

Disability

I am new to this list, and perhaps this has been covered before, but

I was wondering what kind of luck, if any, others have had with

obtaining disability for Fibromyalgia.

At this time, I am still working, however, that is only because my

employer hasn't fired me over my absenses. I am finding it harder

and harder to make it to work on a " normal " basis, and the mental

strain is terrible.

I was just looking for some input as to what others have faced in

similar situations.

Thank you!

Blessed Be!

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Hi

Its me again, I did say I would write more.... I gather you are in the US, so my

authority works differently.

For the last 5 years me and my hubby have been trying to get some recognition

for this, but without a proper diagnoses at the time we had to fight tooth and

nail, well my hubby did, but we got it first in 1998 for 2 yrs low rate care and

low rate disability....... After that we only ended up with low rate care for

two years.

But this year we didn't have to fight for once, I had to renew my claim, and in

the middle of the renewal (12th July 02) I was actually diagnosed with

Fibro..... So they put me on middle rate care and high rate mobility.....

Like most of the people on this group have said that having a doctor that 1)

knows what they are talking about, 2) are sympathetic and 3) don't treat you as

you have two heads (and one of those heads is what's causing the problem).

I am thanking God everyday for this because it helps me get out and about in

taxis right now and is saving me a lot of pain.

Plus the kids get to go out with me more.

I hope you get somewhere

Hugs

Odette

XxxxxX

Click on the icon for our site:

Our Cottage

" When we in our foolishness thought we were wise, He played the fool and He

opened our eyes. When we in our weakness believed we were strong, He became

helpless to show we were wrong And so we follow God's own fool, For only the

foolish can tell Believe the unbelievable, And come be a fool as well "

Disability

I am new to this list, and perhaps this has been covered before, but

I was wondering what kind of luck, if any, others have had with

obtaining disability for Fibromyalgia.

At this time, I am still working, however, that is only because my

employer hasn't fired me over my absenses. I am finding it harder

and harder to make it to work on a " normal " basis, and the mental

strain is terrible.

I was just looking for some input as to what others have faced in

similar situations.

Thank you!

Blessed Be!

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I don't know if it will help anyone at all, but when I first applied I

printed out at least 50 documents on my medical condition and forwarded it

along with my paperwork.

I did get approved on the first try.

Missy

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I don't know if it will help anyone at all, but when I first applied I

printed out at least 50 documents on my medical condition and forwarded it

along with my paperwork.

I did get approved on the first try.

Missy

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In a message dated 8/23/2002 7:52:51 PM Pacific Daylight Time,

hansmprnc@... writes:

> but I was denied the first time, who

> knows why ...

>

> Reggie

>

Hello,

I get the impression that many of the denials are random.

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In a message dated 8/23/2002 7:52:51 PM Pacific Daylight Time,

hansmprnc@... writes:

> but I was denied the first time, who

> knows why ...

>

> Reggie

>

Hello,

I get the impression that many of the denials are random.

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In a message dated 8/23/2002 7:52:51 PM Pacific Daylight Time,

hansmprnc@... writes:

> but I was denied the first time, who

> knows why ...

>

> Reggie

>

Hello,

I get the impression that many of the denials are random.

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Missy,

I included info from the CDC, NIH, JAMA and the Lancet

with my file but I was denied the first time, who

knows why ...

Reggie

--- parrot004@... wrote:

> I don't know if it will help anyone at all, but when

> I first applied I

> printed out at least 50 documents on my medical

> condition and forwarded it

> along with my paperwork.

>

> I did get approved on the first try.

>

> Missy

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Missy,

I included info from the CDC, NIH, JAMA and the Lancet

with my file but I was denied the first time, who

knows why ...

Reggie

--- parrot004@... wrote:

> I don't know if it will help anyone at all, but when

> I first applied I

> printed out at least 50 documents on my medical

> condition and forwarded it

> along with my paperwork.

>

> I did get approved on the first try.

>

> Missy

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Missy,

I included info from the CDC, NIH, JAMA and the Lancet

with my file but I was denied the first time, who

knows why ...

Reggie

--- parrot004@... wrote:

> I don't know if it will help anyone at all, but when

> I first applied I

> printed out at least 50 documents on my medical

> condition and forwarded it

> along with my paperwork.

>

> I did get approved on the first try.

>

> Missy

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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,

I was told by the clerk at the Soc. Sec. Admn. ofiice

that when the economy slows down and unemployment is

up they deny first claims more redily. She told me not

to be discouraged but to re-apply if they denied my

initial claim, of course I did and I have a strong

feeling I'll be approved.

Thanks for writing,

Reggie

--- GreenEyez1978@... wrote:

> In a message dated 8/23/2002 7:52:51 PM Pacific

> Daylight Time,

> hansmprnc@... writes:

>

>

> > but I was denied the first time, who

> > knows why ...

> >

> > Reggie

> >

>

> Hello,

> I get the impression that many of the denials

> are random.

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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,

I was told by the clerk at the Soc. Sec. Admn. ofiice

that when the economy slows down and unemployment is

up they deny first claims more redily. She told me not

to be discouraged but to re-apply if they denied my

initial claim, of course I did and I have a strong

feeling I'll be approved.

Thanks for writing,

Reggie

--- GreenEyez1978@... wrote:

> In a message dated 8/23/2002 7:52:51 PM Pacific

> Daylight Time,

> hansmprnc@... writes:

>

>

> > but I was denied the first time, who

> > knows why ...

> >

> > Reggie

> >

>

> Hello,

> I get the impression that many of the denials

> are random.

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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,

I was told by the clerk at the Soc. Sec. Admn. ofiice

that when the economy slows down and unemployment is

up they deny first claims more redily. She told me not

to be discouraged but to re-apply if they denied my

initial claim, of course I did and I have a strong

feeling I'll be approved.

Thanks for writing,

Reggie

--- GreenEyez1978@... wrote:

> In a message dated 8/23/2002 7:52:51 PM Pacific

> Daylight Time,

> hansmprnc@... writes:

>

>

> > but I was denied the first time, who

> > knows why ...

> >

> > Reggie

> >

>

> Hello,

> I get the impression that many of the denials

> are random.

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Hi All,

As far as I know here in the UK, its more lack of knowledge of Fibro.

The first time I had to go to two tribunals, both with 3 - 4 people there, the

people that asked the questions and the other one was from the claims

department.. ohh yeh and another one that was taking notes... Thats the way

they do it over here.

Talk about getting the third degree, they wanted to know all the nitty gritty.

My GP is really nice he always makes things sound worse than they are but he

knows what a day consists of, and he wrote me a lovely letter to the claims

department.

I was told by my solicitor that the best way to win is to go in and being as you

would be on one of your worse days and answer the questions the same way, always

bad days... never really give them the exact details of what you do on a good

day.

This is not lie according to my solicitor, he said all they are interested in is

if you are capable to do certain things, going places etc.... and if you are on

a bad day you can't do those things so your not lying.

It sounded a bit dodgey to me at first but when my solicitor came with me it

wasn't as hard as I thought, but they do ask a lot of questions that yourself

can't answer, is more for the person who looks after you if you have a

carer.....

One question they like to ask a lot is 'How many times a night do you get up to

go to the loo'? Do you need help in getting there

My answer then was once/twice a night and Hubby helps me there and sometimes

even has to pull my nightclothes back up.

That is true but not every day.

So they asked me about a normal day, my answer to that is what is normal to you?

My normal is hubby helping me out of bed and downstairs and him doing the house

work while I sit on here.... Their normal day according to one doctor is getting

up at 6:30am and feeding the dog, and going to work. yeh right....

Sorry this is to much waffle, I am sick of being treated as a outcast and have

to go through all this, my brother has mental problems (can't spell the name

Schizophreiner)

and he got Disablitity without a fight. And yet when it comes to people like us

we have to fight tooth and nail, just to prove that 'its not in our heads'.

Wow thats a lot of typing....

Ok will leave it there for now, but one thing is never give up, always appeal

the decision.

God Bless

Odette

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Hi All,

As far as I know here in the UK, its more lack of knowledge of Fibro.

The first time I had to go to two tribunals, both with 3 - 4 people there, the

people that asked the questions and the other one was from the claims

department.. ohh yeh and another one that was taking notes... Thats the way

they do it over here.

Talk about getting the third degree, they wanted to know all the nitty gritty.

My GP is really nice he always makes things sound worse than they are but he

knows what a day consists of, and he wrote me a lovely letter to the claims

department.

I was told by my solicitor that the best way to win is to go in and being as you

would be on one of your worse days and answer the questions the same way, always

bad days... never really give them the exact details of what you do on a good

day.

This is not lie according to my solicitor, he said all they are interested in is

if you are capable to do certain things, going places etc.... and if you are on

a bad day you can't do those things so your not lying.

It sounded a bit dodgey to me at first but when my solicitor came with me it

wasn't as hard as I thought, but they do ask a lot of questions that yourself

can't answer, is more for the person who looks after you if you have a

carer.....

One question they like to ask a lot is 'How many times a night do you get up to

go to the loo'? Do you need help in getting there

My answer then was once/twice a night and Hubby helps me there and sometimes

even has to pull my nightclothes back up.

That is true but not every day.

So they asked me about a normal day, my answer to that is what is normal to you?

My normal is hubby helping me out of bed and downstairs and him doing the house

work while I sit on here.... Their normal day according to one doctor is getting

up at 6:30am and feeding the dog, and going to work. yeh right....

Sorry this is to much waffle, I am sick of being treated as a outcast and have

to go through all this, my brother has mental problems (can't spell the name

Schizophreiner)

and he got Disablitity without a fight. And yet when it comes to people like us

we have to fight tooth and nail, just to prove that 'its not in our heads'.

Wow thats a lot of typing....

Ok will leave it there for now, but one thing is never give up, always appeal

the decision.

God Bless

Odette

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Hi All,

As far as I know here in the UK, its more lack of knowledge of Fibro.

The first time I had to go to two tribunals, both with 3 - 4 people there, the

people that asked the questions and the other one was from the claims

department.. ohh yeh and another one that was taking notes... Thats the way

they do it over here.

Talk about getting the third degree, they wanted to know all the nitty gritty.

My GP is really nice he always makes things sound worse than they are but he

knows what a day consists of, and he wrote me a lovely letter to the claims

department.

I was told by my solicitor that the best way to win is to go in and being as you

would be on one of your worse days and answer the questions the same way, always

bad days... never really give them the exact details of what you do on a good

day.

This is not lie according to my solicitor, he said all they are interested in is

if you are capable to do certain things, going places etc.... and if you are on

a bad day you can't do those things so your not lying.

It sounded a bit dodgey to me at first but when my solicitor came with me it

wasn't as hard as I thought, but they do ask a lot of questions that yourself

can't answer, is more for the person who looks after you if you have a

carer.....

One question they like to ask a lot is 'How many times a night do you get up to

go to the loo'? Do you need help in getting there

My answer then was once/twice a night and Hubby helps me there and sometimes

even has to pull my nightclothes back up.

That is true but not every day.

So they asked me about a normal day, my answer to that is what is normal to you?

My normal is hubby helping me out of bed and downstairs and him doing the house

work while I sit on here.... Their normal day according to one doctor is getting

up at 6:30am and feeding the dog, and going to work. yeh right....

Sorry this is to much waffle, I am sick of being treated as a outcast and have

to go through all this, my brother has mental problems (can't spell the name

Schizophreiner)

and he got Disablitity without a fight. And yet when it comes to people like us

we have to fight tooth and nail, just to prove that 'its not in our heads'.

Wow thats a lot of typing....

Ok will leave it there for now, but one thing is never give up, always appeal

the decision.

God Bless

Odette

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I am new to this group and i am grateful I have found it. I have

had severe pain on the left side of my body for 2 and a half

years.some days i can't walk, and if i get out of the house i can

only be out about and hour and a half then i must rush home, i hardly

drive, shop, or clean hose. recently I was diagnosed with post

traumatic fibromyalgia as well because my right side is now affected

along with all the other symptons that go with fibro. I hired an

attorney who specializes in fibro, i have a team of doctors i have

been seeing for 2and half years, no of course that is not good enough

i have to go see the states doctors next. I am terrified because i

look normal etc. they will not get the picture. please help i live in

california can anyone give me input as to their experience or any

helpful hints to ease ny mind its really bothering me!!!! god bless

you all, nancy

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mchnurse1111 wrote:

>

> i have a team of doctors i have

> been seeing for 2and half years, no of course that is not good enough

> i have to go see the states doctors next. I am terrified because i

> look normal etc. they will not get the picture. please help i live in

> california can anyone give me input as to their experience or any

> helpful hints to ease ny mind its really bothering me!!!!

I really suggest you join the disabilities group on yahoo, they will

give you a ton of help. They can give you all kinds of tips on how to

handle the state doctors, and how to have your doctors present your case

in the best possible light. Good luck, I wish I could give better help,

but these people are living the procedure, I haven't done it yet.

Darcy

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