Dr.Schoffner/help please

[Guest guest]

I am looking for help from anyone who has seen Dr.Schoffner.

's doctor has just spoken with him. He received some of

's samples from her latest tests and still cannot find the

mito link (DNA deletion etc.)

He wants to see us. The whole family (4 of us). He says most

insurances cover this. He takes no money up front. I would like to

hear experiences from anyone who has done this.

Do they help set up anything other than the visit? What can I

expect during the two days we are there? Who will we see? What will

they do?

If we are going to do this (financially I don't know if I can), I

need to know what plan for. Are there any agencies in this country

that help with travel for those who cannot financially do this kind

of thing on there own?

This is frustrating. I know we have to do this. How can I say no?

But I am in the middle of a divorce and have no money. I cannot

count on my STBX to come through to help financially. But what if

this is the key to my family's problems, and we don't go?

Any advice or help would be appreciated.

Dawn Myers,(dysautonomia,POTS,hypogammaglobulinemia,

migraines,CFS)

Mom to:

(4)Complex III/IV ? Mito

bone marrow failure

hypogammaglobulinemia

cardiomyopathy

GAIII

dysautonomia

fatty liver

autistic-like tend.

Macrocephaly

Drew (13) Dysautonomic sx

hypoglycemia

Molly(2.7)dysautonomic sx.

hypoglycemia ?

Thanks for all of the birthday wishes for !!!