Re: MDA clinic and doctors Need som advice

[Guest guest]

Jean,

This does not matter. 's children can go to camp if they have

been seen by the MDA Clinic in their area. They can go to the MDA

doctor for bi-annual checkups and this does not affect their

relationship with Dr's Boles and Cohen. The MDA requires a rigid

medical informational form for their files and although it's not

normal, there may be camps that don't have the medical teams needed

to take care of some of the more involved MD patients. The local

camp director will be the one who can advise on this but they

normally have medical personnel on site who deal with all the needs

of a child with any form of MD. They aren't going to take a child

they don't feel they are equipt to handle.

Mattie attends camp yearly. He has some very severe Mito

difficulties but this doesn't hold him back. If any child can be

accepted by their local MDA camp.. they should go. I have heard

that alternate camps are being made for children with higher medical

needs but I'm not familiar with them enough to give any

information. This is one of the reasons I have invited the National

Medical Director of MDA Camp to be our guest in the chat next month

so that questions like these can be answered.

If anyone cannot attend the chat - please forward questions to me

and I will do my best to get them answered by forwarding them to the

responsible parties at the MDA.

Alice

>

> > Hi guys,

> > I need some advice. I have been checking into the summer

camp

> > stuff for the kids as I am finally willing to let them try this

> > adventure, maybe. Anyway, I got a call from Camp Cuyamaca here

in Ca

> > who are an MDA camp. They said the kids diagnoses qualifies

them to

> > go to camp for free. I almost fell over as every other camp I

have

> > checked into that they fit, has been 1000.00 or more for the

week.

> > Which is way out of what we can do times 3. Here is my

question.

> > They said that I needed to register the kids with MDA, and then

they

> > needed to see an MDA doctor. We have always just seen Rick

Boles and

> > Bruce Cohen because of their MIDS diagnoses and the kids being

part of

> > the research Rick is doing. I was amazed at the services that

would

> > become available to us if we go the MDA route as well. Anyway,

do I

> > have to leave Rick and Bruce to go to the MDA doc? Does anyone

know?

> > Or can I use the MD

> > Thanks

> > O

> >

> > Please contact mito-owner with any problems or

questions.

> >

> >

> > -----------------------------------------------------------------

-------

> >