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Hi members,

I hope some of you can give me your advice. My nine year old

daughter has N.A.R.P. mito. Like alot of mito patients, she has

sluggish bowels. Over the years I have tried everything for her.

The powdered fiber drinks, fiber wafers, Fletchers, and

suppositories. Everything seems to work great for awhile until her

system begins to get use to it. She is not on a feeding tube and

swallowing a pill is impossible for her. She is affected cognitively

so she is very scared of things like having to have a suppository.

She does eat a good diet with adequate fiber and fluids. Does

anyone have any ideas for me to try with her?

Also does anyone else have a N.A.R.P. child or know of anyone

who does? So far in her nine years I haven't ran across any other

N.A.R.P. children.

Thank you,

Kim

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