Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 We went to see Dr. Shoffner in August of last year. We met with him for 2 hours. We were able to bring along the grandparents when we flew donw from Massachusetts so we had coverage for our daughter. There was so much info given at that time that having to look after your other children could be difficult. Just an opinion. Good Luck with everything. Mom to Nikki 9 Mito/CVS/GERD davonneatkins wrote: hi i am new to this group and mito disease. my daughter karlee rec'd her dx on 3-15-04, she had her peg tube placed 3-19-04. we are very sad and scared. she has an appt to see dr. shoffner on 3-30-04 at 1pm we are glad to see someone else. she had a muscle biopsy done in jan and dr shoffner read it. i would like to know what to expect at this appt. and how long we will be there we have 2 other kids. it will be hard leaving them, but right now we have to do whats best for karlee. thanks so much! please let me know!! davonne Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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