Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 The appointment went well and now we are stuck out at Mayo in the Mc House because the doc wants to check her trachea out before doing the surgery on Friday. There was no hesitation in doing the operation and I think Dr. Whiteman spoke to him prior to our visit today. The mic-key button will be placed right away as was done for Asenath and she will be released in about three days following that. That is when Asenath will be put in and then her brain scans will take place. A muscle and skin biopsy WILL be done on Friday as well and hopefully it will give more concrete answers than Asenath's did. We will be here until next Wednesday but will try to update as we can. Darla: mommy to: Asenath (4) Mito, brain vasculitis, strokes, migraines, seizures, g-tube, disautonomia issues, hypotonia, heat/exercise intolerance, oxygen use, asthma... Zipporrah,(5 mon.)Mito, strokes, sensory issues, feeding/breathing issues... >From: albregra@... >Reply-To: Mito >To: Mito >Subject: Re: Mayo trip today >Date: Wed, 21 Apr 2004 16:50:32 EDT > >Best wishes that everything goes well. You really should not have a >problem >if they can see that she is triving using the NG tube, even with it's >problems. It looks like it is about her only option, so why not. Our GI >gave us >problems, at first, about doing the g tube. But after a conversation with >Dr. >Cohen, she was willing to do it herself. Now, she has made many comments >about >how much better she is doing since the tube. Do you know if they will be >willing to go straight to the mic-key, or do they want the g tube first? >Grace had >to had the tube first, but it was not that bad. Have they considered doing >a >muscle biopsy on her also? Maybe it will give you some concrete answers to >her problems. I am sure Asenath had a muscle biopsy done, but as we all >know >every child is different. Best wishes, praying her recovery is fast. > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.