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Some Chairians also get diagnosed with Fibromyalgia, which is usually

what docs will diagnose when they can't figure out what the cause of

your joint pain is.

I don't know the incidence of Chiarians with joint pain, but I

remember it being statistically significant.

I never had it until after the onset of symptoms/decompression, and

now I do get it on occasion. I don't know what the correlation is... I

just sometimes seem to wake up and ache. For me, though, it's maybe a

couple of nights in a row, every two months. When it happens, I just

tend to spend more time in the bathtub with a good book :)

e

>

> Is joint pain something that is associated with Chiari? I've had

problems with joint pain in my ankles ever since I was a teen, but

after giving birth to each of my kids it seems to get worse and spread

more. Worst is in my knees and after my last child the joints in my

hand hurt. If it's not associated with Chiari (which I haven't even

been diagnosed with as yet) what else could cause it? I took it for

granted that it wasn't that unusual, but I'm starting to see it's not

all that common.

>

> Amazing how when you live with pain for so long you assume so much

of what you deal with is " normal " !

>

> ette

>

>

>

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Guest guest

Some Chairians also get diagnosed with Fibromyalgia, which is usually

what docs will diagnose when they can't figure out what the cause of

your joint pain is.

I don't know the incidence of Chiarians with joint pain, but I

remember it being statistically significant.

I never had it until after the onset of symptoms/decompression, and

now I do get it on occasion. I don't know what the correlation is... I

just sometimes seem to wake up and ache. For me, though, it's maybe a

couple of nights in a row, every two months. When it happens, I just

tend to spend more time in the bathtub with a good book :)

e

>

> Is joint pain something that is associated with Chiari? I've had

problems with joint pain in my ankles ever since I was a teen, but

after giving birth to each of my kids it seems to get worse and spread

more. Worst is in my knees and after my last child the joints in my

hand hurt. If it's not associated with Chiari (which I haven't even

been diagnosed with as yet) what else could cause it? I took it for

granted that it wasn't that unusual, but I'm starting to see it's not

all that common.

>

> Amazing how when you live with pain for so long you assume so much

of what you deal with is " normal " !

>

> ette

>

>

>

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Guest guest

Some Chairians also get diagnosed with Fibromyalgia, which is usually

what docs will diagnose when they can't figure out what the cause of

your joint pain is.

I don't know the incidence of Chiarians with joint pain, but I

remember it being statistically significant.

I never had it until after the onset of symptoms/decompression, and

now I do get it on occasion. I don't know what the correlation is... I

just sometimes seem to wake up and ache. For me, though, it's maybe a

couple of nights in a row, every two months. When it happens, I just

tend to spend more time in the bathtub with a good book :)

e

>

> Is joint pain something that is associated with Chiari? I've had

problems with joint pain in my ankles ever since I was a teen, but

after giving birth to each of my kids it seems to get worse and spread

more. Worst is in my knees and after my last child the joints in my

hand hurt. If it's not associated with Chiari (which I haven't even

been diagnosed with as yet) what else could cause it? I took it for

granted that it wasn't that unusual, but I'm starting to see it's not

all that common.

>

> Amazing how when you live with pain for so long you assume so much

of what you deal with is " normal " !

>

> ette

>

>

>

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  • 11 months later...
Guest guest

Hi! I am on digest and I don't respond too often due to issues... However, I

was surprised to find your questions on Joint Pain.

- undiagnosised (Suspision of Mito) - complains regularly about joint

pain. She complains about her wrists, hips and she always talks about

popping. " I popped a bone " Due to the low muscle tone, her joints dislocate

VERY often - mainly wrists, and hips. (She was born with congential hip

dysplasia) I think the dislocation of joints atribute to the pain...I MAY be

wrong... trust me I don't know everything... The way I look at it...

is and these things are NORMAL for her!

My 2 cents worth...

Dorothy

>

> Message: 3

> Date: Mon, 1 Mar 2004 12:51:20 -0800 (PST)

>

> Subject: Re: Question about daughter

>

> Curiously, our daughter bends her toes back and forth

> and indicates discomfort. Because she is a high pain

> tolerance and the way she does it we presumed it to be

> more self inflicted from her toe bedning activity. It

> may just be joint pain. She doesn't show it in any

> other part of her body though

>

> Gord and Carol.

>

> --- sarah smith zalexia27@...> wrote:

> >

> > I was curious to know if anyones non symptomatic

> > /diagnosed kids have had problems w/ joint pain.

> > Lexi usually complains of her legs hurting at night

> > but shes 5 so we think its growing pains. I called

> > the dr. about it once cause she really was whining.

> > She said that if it continues all day or during the

> > day not just at night then we have to look into

> > other possibilities. Today she just came in to me

> > and said her wrist and ankles hurt. I can tell they

> > do but i dont know what to think. I told her that if

> > she continues i'll take her in.

> >

> > I have auto immune problems such as fibromyalgia and

> > multiple joint pains so i know it could be a

> > possibility and ra runs in bills side of the family.

> >

> >

> > Just curious to what u think

> >

> >

> >

> > Mom to zach 3 , ga2 alexis 5

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