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Re: Our rights as Mito parents!

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Tamara:

What do they mean by disabilities? Does need to use any " equipment " in

the school room? Is it because of the teachers? Is there no special K

teacher for at his brothers school? Now with Leah they did testing to

see if she still qualified for special help. I know, I know, smile at that

one. Being in Appleton, WI the schools here are known to have very good

special education; especially with autism. We were able to view two

classrooms to see which one Leah may benefit more from. I'm glad we were

given that opportunity because the one classroom would not have done very

well for Leah and her kidkart. But also there are only a few schools that

can accomodate, in this case, Leah's needs. We are able to continue at the

school she goes to now but once first grade comes a long, she will be at

another school because her school can't accommodate severe learning delays.

So we will cross that bridge when it comes. But Leah's school is only 3

miles from our house vs. 45 minutes like you have. If that was the case I

would be questioning it myself. I know Leah would not do well on that long

of a trip.

On another topic, may be you as a parent will be able to form a group to find

out why these children need to be transported so far away. Try to organize

and get your thoughts together about what is so special about this school and

why other schools can't have some of this in their schools. Did I make any

sense there? Leah does not go to her brother's school not because they can't

accommodate her, but room size is an issue. So as much as we would have

liked her to go to Edison, it just wouldn't let her expand her surroundings

because of room size and kids possibly stepping on her.

Write all of your thoughts down so you are prepared when you meet with this

person again. And can you have any one go with you to listen to what is

being said between you both. It helps to have another pair of eyes, ears,

etc. with you. They do have the standard that they always say they are

thinking of your child in their best interests; but budgets do have a lot to

say. We found that out last year in trying to get an aide for Leah. But

this year they really listened to us and took our thoughts really in to

consideration. Leah will be in an integrated classroom. She will be with

about 20 kids instead of 9 kids. So that should be interesting. They have

one reg. kindergarten teacher, and a special ed teacher and an aide. So will

see how things progress next school year. But learn first, then process,

then ask questions. It may take awhile for this process; but you don't have

to solve everything in the one IEP. Take your time. Get your answers and do

what you feel is right for . You may not get everything you want; but

start small and go from there. It's amazing how as parents when some one

tells us no, or that can't be done; a little mother lion comes out in all of

us and we (try) to get our children to the front of the line and be noticed

that they are special and not in that way, but as each child is so special.

Good luck.

Nerenhausen

mom to Leah

fairgrovejoe wrote:

> We are getting ready to register for Kindergarden soon, and the

> school is already saying thing I do not agree on.

> For instance today the Special Ed Coor., mentioned there is a school

> can go to that is more equipped for disabilities, instead of the

> school his brothers go to. The school is 45 minutes away from our

> house, and he would have to ride the bus.

> Trust me that is not a option!!!!! I feel like the school is trying

> to push me that way so they do not have to deal with him. is

> still able to walk(with AFO's), can potty by himself and can feed

> himself, yet does have many problems, alot to do with Dysautomia.

> They act like it is a burden to have to mess with it!

> How can I find out our rights and s rights. I know they are out

> there, I just do not know where to start to find them.

> I want to feel very normal, because I know one of these days he

> will be very aware,he is different.

> Any help would be great!!!!

> Tamara

>

> Please contact mito-owner with any problems or questions.

>

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