Re: Re: our visit- Geri-Anne

[Guest guest]

Hey, no problem Geri-Anne. Our stay was pretty quick and painless. The girls adapted so well and actually enjoyed being there. My husband and I were pleasantly surprised. They didn't even mess with the electrodes. I think they were just happy to get out of the house for once and to play with some new and exciting toys.

Hopefully, we can catch up with you next time we are in town. Sorry your life has been so hectic. Thank goodness it's the weekend!

Take care

Kim

Re: our visit

Kim, Sorry I didn't get a chance to meet up with you or even call. I had conferences both Monday and Wed. of this week along with taking the kids to music class on Tuesday. By Thursday I was fried. And today our PCA called in sick. It is never ending. Hopefully the Klonipin will start to help. I'm glad they were able to give you some answers.Geri-Anne> Hello all. We had our 24 hour video EEG for and Lindsey and found out that we are seeing all myoclonic seizures. They also did a photosensitivity test and they seized during that too. They are having a large number of myoclonics in their sleep in addition to what we see during the day. I guess this answers our question if the episodes are myoclonus or seizures. We started Klonipin tonight and are hoping this will be the answer to our prayers. > > Kim - Mom to and Lindsey - (2) Partial Complex IPlease contact mito-owner with any problems or questions.