Re: Suhad-A recommendation from Dr. Cohen about COQ10/

[Guest guest]

Hi Suhad,

Go to Epic4Health.com. They also sell L-Carnitine. I don't know if

there is a difference between their brand and others as we do not use it

ourselves. Maybe someone could inform you of this. We get our B-50

complex vits. from GNC. I don't know if there is a better place to go

and buy them. My oldest son who had a low COQ10 level started taking

Tischcon Brand (from Epic), and as of his last test, his CoQ10 levels

are back to normal. I know some people respond to CoQ10 and others

don't.

Praying for your little girl.

Shirley, mom to and Jordan

On Wednesday, February 18, 2004, at 05:37 PM, suhad1970@...>

wrote:

> Dear Joni,

>

>     Thank you so much for the information on the CoQ10. Our mito doctor

> just told us to give Leanna vitamins and gave us the dosage. He did not

> seem to know much about what the best kind were etc. In fact, Leanna

> has been on CoQ10, L-Carnitine, and Vit B50 complex from GNC for a year

> now, and I am not seeing any change. I want to try the CoQ10 from Epic

> health. I also want to know if the same goes for the L-Carnitine and

> Vit B50. Do they carry a superior brand of these also, or is the GNC

> brand just fine. I hate wasting my time giving her vitamins which are

> not doing the best job they could. God knows how hard it is for our

> kids to take them to begin with. It seems to me that I can never find

> someone to tell me what is the best. I want to give Leanna only the

> best, but I need help from people with experience. In fact, I was

> giving her the COQ10 from Costco for about 7 months when someone told

> me that kind was not hydrosoluble, and then I went to the GNC brand.

> What a wast, huh?

>

>  I very much appreciate your help, and anyone else’s.

>

>                                                                          

>                          Thanks,

>

>  

>

>  

>

>  

>

> Suhad Haddad --  Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna

> with same disease.

>

> Samya's Memorial Site:www.Samya.org

>

> Email: Suhad1970@...

>

> Alt Email: Suhad@...

>

> AiM Chat: Suhad1970

>

>  

>

>

>

> From:loerco333

> Sent: Wednesday, February 18, 2004 12:09 PM

> To: Mito

> Subject: A recommendation from Dr. Cohen about COQ10

>

>  

>

>   We have consulted Dr. Cohen at Cleveland Clinic Foundation regarding

> the mito disorder.  He recommended that we get our COQ10 at a company

> named Epic

> ( www.epic4health.com ) (1-) because it is 100%

> hydrosoluble.  It is called Q-Gel Mega COQ10.  We were getting it at

> GNC before our visit at CCF but this one does work better because of

> it's special formulation.  It is expensive but worth it if the patient

> gets more benefit.  Dr. Cohen's patients get a 10% discount if you

> tell them you are his patient and it's for mito.  He DOES NOT have any

> personal benefit by recommending this one over others.  He said this

> one simply  gives more benefit than other brands.  We testify that it

> does work better than others that we used before.  I am not selling

> or dealing it, just wanted to put the info. out there and let you

> decide

> if you wanted to check it out for yourself.  Our insurance does not

> cover anything except his amytriptylin, Carnitor and cyproheptad.

> We have to buy out of pocket but COQ10 has helped more than anything

> else he has taken.  Best wishes to all of you.  Hope our experience

> helps someone.   Joni

>

>

>

> Please contact mito-owner with any problems or

> questions.

>

>

>

>

>

> Please contact mito-owner with any problems or

> questions.

>

>

>

>

>

>