Re: Bone Marrow Suppresion Question

[Guest guest]

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We have these issues to and they were more exacerbated when was on TPN. His bone marrow biopsy was normal, however, they found that he had an underlying immunodeficiency. He then got septic and when they removed the port, they found underlying necrotic tissue. They think that because of his immunodeficiency his body was rejecting the port. He no longer has a central line, however, if the need arises in the future, it will have to be a broviac instead of a port. This way they would have better visualization of his bodies reaction to the line.

Right now he has been pretty stable with his blood counts. He is always slightly anemic or in the borderline normal range. His red cells are very big and he sometimes has oddly shaped red cells. His white count usually ranges between 2 - 3 and his platelets have been running just below normal. He also has a platelet aggregation defect and Von Willebrands Type 1 so his platelets don't clot properly.

son has Type 1 as his primary diagnosis with Pyruvate Dehydragenase as a secondary.

Good luck with this. I know how frustrating this can be.

Laurel