Re: autistic traits

[Guest guest]

Thank you for sharing your experience with me. One question, what is DMG?

[Guest guest]

Thank you for sharing your experience with me. One question, what is DMG?

[Guest guest]

Hi :

Leah hasn't been diagnosed with autism; but her metabolic doctor when we

mentioned some things Leah was doing at school and even at home could bwe

autistic behavior is how he worded it. Same as you that Leah didn't like

people touching her in public or reaching out to touch her and she would

put her hands toward her eyes as if to hide herself and starting not really

screaming; but it would be to me like some one telling you quite loudly to

get a way from me. At school she would be fine with the kids in the classroom;

but as soon as they would go and Leah had time with just her theapist and

then the kids would be coming back down the hall; as soon as she would hear

them she would start this yelling episode. She would do this at home if

friends of the boys would come in to the house and she knew these kids. I

thought may be she was communicating that she didn't want these kids to take

her brothers away from her and leaving her a lone. But since we started

DMG a year a go, these episodes slowly decreased. She goes in waves. But

she doesn't yell anymore at school when kids come back in to the room. And

even , her oldest brother, noticed that she didn't yell when a friend

of his came over and walked in the door. And Leah has never met this person

before. Some people can reach out to her and say hello at church; but some

days are more overwhelming than others. I would consider her case very mild.

She doesn't walk or can only sit up for about 5 minutes. So she can't spin

in circles. But with autistic behavior she zeroes in and becomes very focused

on just one item. For example she use to absolutely love Rollie Pollie and

couldn't watch enough of it. Now it is Max and Ruby and reading those books.

Talk with an early education specialist in this field on how to start handling

this behavior. So it is easier on you. But it does throw one more thing

in to this mix that you want to say, why now and haven't I enough on my plate

to learn about mito to throw this one in. Good luck and let us know what

else you find out.

Nerenhausen

mom to Leah

albregra@... wrote:

I have been noticing some unusual behavior with Grace lately,

but I just kept relying on it being that she is almost two. But, her nurse

from the county came yesterday and mentioned something that struck me.

First of all, lately she has been very clumsy. She had a stone

cold normal EEG so we know it is not seizures (thank god). We switched her

allergy medicine and it helped some but it is now getting bad again. Secondly

her language has been a big issue. We know she is understanding everything

we say, yet she knows less than 5 words. She is learning to sign and she

uses it some (usually when she wants something). Also when she is out in

public she practically crawls into a little shell (although not always, but

most of the time) she will not use any words nor will use her signs. She

will clam up if someone tries to touch her (doctor visits are not fun).

And then about a month ago she started toe walking. She has been walking

normal for since 12 months now at 21 months she is on her toes, again not

all the time. (I did not think this was a big deal but just asked the nurse

because I had heard i! t was sometimes a sign of muscle control.) All of

this in mind I was telling the nurse how she was doing (her 22 month assessment).

She had mentioned a couple of things to contribute to the toe walking and

one of them was autism. She said this was the first to strike her. She did

not tell me that this is what it is, but suggested I bring it up with someone.

I started looking it up on the Internet and she has so many of the characteristics.

(We always think it is funny when she spins in circles, how did we know.)

This is why I come to you guys. I know autism is very common

with mito, but how mild can it be? When she is home she is like a normal

toddler, she laughs and is affectionate. Yes, she is totally different when

she is out of her element, but can't that just be her personality. I would

love it if anyone who has a child with autism (the more mild the better)

would share there story. How is it diagnosed? Is your child "labeled" even

if it is mild? Is there still the chance of going to a normal school classroom?

I am really afraid of pursuing this, if it will only hinder her with a label

that may not totally fit. I am trying so hard to give her a normal life.

I know she will always have her problems, but we try to not show them off.

Any advice would be greatly appreciated. Thank you in advance.

Mommy to Grace

Please contact mito-owner with any problems or questions.

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[Guest guest]

On my box from the health food store it says Pure N, N-Dimethylglycine.

It also says on the box, a supplement to support endurance and immune system

function*

Promotes oxygen utilization, reduces lactic acid buildup during workouts,

improves immune defense, energy enhancing, improves athletic performance,

supports glucose metabolism* all these have the stars after

each one and on the bottome it says this statement has not been evaluated

by the Food andDrug Administration. This product is not intended

to diagnose, treat, cure or prevent any disease. I decided to get

more information after Savage posted about it. They get theirs

from some one else. I get mine from the health food store and it

is from FoodScience. It is pure DMG. That is what our nurse

said we needed to get. I guess there are others out there that is

not pure DMG.

Nerenhausen

mom to Leah

albregra@... wrote:

Thank you for sharing your experience with

me. One question, what is DMG?

Please contact mito-owner with any problems or questions.

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[Guest guest]

I also have a 22 mo. old son with mito that has me concerned about

autistic tendencies. doesn't verbally communicate and only

occasionally mimics words that aren't intelligible. His receptive

language seems to be coming along though. He also has sensory

integration dysfunction and I wonder if that contributes to some of

the behaviors that concern me. My biggest concern is that he rarely

reciprocates affection. If I asked him to hug/kiss me 10 times (not

consecutively, over a period of 48 hours or so), he would most

likely only respond once. He doesn't like to be held although he

tolerates sitting in my lap. He seldom seeks comfort from me,

preferring to cry alone on the floor. He interacts with his

siblings and their friends but often inappropriately (biting,

scratching, swatting, etc.). This is only a partial list of the

behaviors that concern me, but I could go on forever:> I asked our

OT what she thinks and she doesn't think it's autism but I'm

certainly concerned.