Re: Need a Good Motility gastro

[Guest guest]

,

I have an article regarding a stomach pacemaker that was being used by doctors at Temple University in Philadelphia. This is used for people suffering from nausea and vomiting mostly associated with gastroparesis. This is mainly associated with delayed gastric emptying. It is designed to be similar to a heart pacemaker. My son Lucas is having somewhat similiar but different problems than you are having. His EGD came back as normal with normal biopsies. My son's GI doctor is not sure how to proceed. Lucas' is J-tube fed 21 hours a day. We have been venting and draining GI fluid of approximately 150 to 200 cc's per day. Constipation has only been relieved by milk of magnesia every 1 to 2 days. One of the GI doctors we saw as inpatient felt that he may have reverse peristalsis. Having an ileostomy for yourself seems as quite a drastic step and I do agree it would not change the rest of your GI system. I sure hope someone on this sight can help you find an answer. Have you ever used zelnorm? It is supposed to be one of the drugs that aids in motility too. Lucas used erithromycin (an antibiotic) for a short period of time that seemed to help some until he developed hives and itching from it. Another medication that was discussed at one time was using mestinon for motility.

HTH,

Loriann

[Guest guest]

,

I have an article regarding a stomach pacemaker that was being used by doctors at Temple University in Philadelphia. This is used for people suffering from nausea and vomiting mostly associated with gastroparesis. This is mainly associated with delayed gastric emptying. It is designed to be similar to a heart pacemaker. My son Lucas is having somewhat similiar but different problems than you are having. His EGD came back as normal with normal biopsies. My son's GI doctor is not sure how to proceed. Lucas' is J-tube fed 21 hours a day. We have been venting and draining GI fluid of approximately 150 to 200 cc's per day. Constipation has only been relieved by milk of magnesia every 1 to 2 days. One of the GI doctors we saw as inpatient felt that he may have reverse peristalsis. Having an ileostomy for yourself seems as quite a drastic step and I do agree it would not change the rest of your GI system. I sure hope someone on this sight can help you find an answer. Have you ever used zelnorm? It is supposed to be one of the drugs that aids in motility too. Lucas used erithromycin (an antibiotic) for a short period of time that seemed to help some until he developed hives and itching from it. Another medication that was discussed at one time was using mestinon for motility.

HTH,

Loriann

[Guest guest]

,

I have an article regarding a stomach pacemaker that was being used by doctors at Temple University in Philadelphia. This is used for people suffering from nausea and vomiting mostly associated with gastroparesis. This is mainly associated with delayed gastric emptying. It is designed to be similar to a heart pacemaker. My son Lucas is having somewhat similiar but different problems than you are having. His EGD came back as normal with normal biopsies. My son's GI doctor is not sure how to proceed. Lucas' is J-tube fed 21 hours a day. We have been venting and draining GI fluid of approximately 150 to 200 cc's per day. Constipation has only been relieved by milk of magnesia every 1 to 2 days. One of the GI doctors we saw as inpatient felt that he may have reverse peristalsis. Having an ileostomy for yourself seems as quite a drastic step and I do agree it would not change the rest of your GI system. I sure hope someone on this sight can help you find an answer. Have you ever used zelnorm? It is supposed to be one of the drugs that aids in motility too. Lucas used erithromycin (an antibiotic) for a short period of time that seemed to help some until he developed hives and itching from it. Another medication that was discussed at one time was using mestinon for motility.

HTH,

Loriann

[Guest guest]

,

I saw a show on TV (Montel, I think) the other day about a girl who had been fine till "one day" (kinda like you)...... She lost 40lbs. Dr's told her mom she was anorexic, blah, blah, blah,.....

She had terrible stomach pains, the whole works. She was wasting away to nothing.

Long story short, she had dysmotility and so on.. She wound up with an "implanted" gastric pace maker. The battery has to be replace every 10 yrs but otherwise it has saved her life!

She's a young lady now (like mid 20's ) and doing fine.

I'd look into this. I'd be getting second and third opinions.

I have found that just because one dr and one particular clinic is GREAT, that doesn't speak for the rest of the physicians there! I hated every other dr ( besides our regular met. dr) we met when Caden was admitted to CCF! VERY arrogant and extremely rude!

Krystena s

Need a Good Motility gastro

As you know I had some really unpleasant lower gastro testing done last week while at Cleveland Clinic. I thought the doc. I was seeing was top in the field and would be able to help me. Well after numerous phone calls to get the results from my tests he called personally late this afternoon with NO help at all. He spoke so non-chalantly about the whole thing. He said that my colonic transit study and manometry were abnormal and that my muscles just do not work. He said the key is just to get things as liquified as possible but that there isn't really anything to do about the prob except removing my colon and giving me an ileostomy. I just don't think that will solve the prob. I have dysmotility in my stomach and most likely my small bowel as well. Nothing is moving right now and I am distending and miserable. I need a gastro who is good with motility and can think out of the box and really try and help his/her patients. I know there has to be other options to try whether it be Propulsid, NT3 Injections, IV anti-cholinergic's, etc.

Please help! Thank you! Please contact mito-owner with any problems or questions.

[Guest guest]

,

I saw a show on TV (Montel, I think) the other day about a girl who had been fine till "one day" (kinda like you)...... She lost 40lbs. Dr's told her mom she was anorexic, blah, blah, blah,.....

She had terrible stomach pains, the whole works. She was wasting away to nothing.

Long story short, she had dysmotility and so on.. She wound up with an "implanted" gastric pace maker. The battery has to be replace every 10 yrs but otherwise it has saved her life!

She's a young lady now (like mid 20's ) and doing fine.

I'd look into this. I'd be getting second and third opinions.

I have found that just because one dr and one particular clinic is GREAT, that doesn't speak for the rest of the physicians there! I hated every other dr ( besides our regular met. dr) we met when Caden was admitted to CCF! VERY arrogant and extremely rude!

Krystena s

Need a Good Motility gastro

As you know I had some really unpleasant lower gastro testing done last week while at Cleveland Clinic. I thought the doc. I was seeing was top in the field and would be able to help me. Well after numerous phone calls to get the results from my tests he called personally late this afternoon with NO help at all. He spoke so non-chalantly about the whole thing. He said that my colonic transit study and manometry were abnormal and that my muscles just do not work. He said the key is just to get things as liquified as possible but that there isn't really anything to do about the prob except removing my colon and giving me an ileostomy. I just don't think that will solve the prob. I have dysmotility in my stomach and most likely my small bowel as well. Nothing is moving right now and I am distending and miserable. I need a gastro who is good with motility and can think out of the box and really try and help his/her patients. I know there has to be other options to try whether it be Propulsid, NT3 Injections, IV anti-cholinergic's, etc.

Please help! Thank you! Please contact mito-owner with any problems or questions.

[Guest guest]

,

I saw a show on TV (Montel, I think) the other day about a girl who had been fine till "one day" (kinda like you)...... She lost 40lbs. Dr's told her mom she was anorexic, blah, blah, blah,.....

She had terrible stomach pains, the whole works. She was wasting away to nothing.

Long story short, she had dysmotility and so on.. She wound up with an "implanted" gastric pace maker. The battery has to be replace every 10 yrs but otherwise it has saved her life!

She's a young lady now (like mid 20's ) and doing fine.

I'd look into this. I'd be getting second and third opinions.

I have found that just because one dr and one particular clinic is GREAT, that doesn't speak for the rest of the physicians there! I hated every other dr ( besides our regular met. dr) we met when Caden was admitted to CCF! VERY arrogant and extremely rude!

Krystena s

Need a Good Motility gastro

As you know I had some really unpleasant lower gastro testing done last week while at Cleveland Clinic. I thought the doc. I was seeing was top in the field and would be able to help me. Well after numerous phone calls to get the results from my tests he called personally late this afternoon with NO help at all. He spoke so non-chalantly about the whole thing. He said that my colonic transit study and manometry were abnormal and that my muscles just do not work. He said the key is just to get things as liquified as possible but that there isn't really anything to do about the prob except removing my colon and giving me an ileostomy. I just don't think that will solve the prob. I have dysmotility in my stomach and most likely my small bowel as well. Nothing is moving right now and I am distending and miserable. I need a gastro who is good with motility and can think out of the box and really try and help his/her patients. I know there has to be other options to try whether it be Propulsid, NT3 Injections, IV anti-cholinergic's, etc.

Please help! Thank you! Please contact mito-owner with any problems or questions.

[Guest guest]

It's not the GASTRIC pacemaker used to make people feel full. It's something else. It regulates the motility or something... Sorry, I'm probably more confusing that helpful but just wanted to encourage you to get at least a second opion before considering an ileostomy.

Krystena

Need a Good Motility gastro

As you know I had some really unpleasant lower gastro testing done last week while at Cleveland Clinic. I thought the doc. I was seeing was top in the field and would be able to help me. Well after numerous phone calls to get the results from my tests he called personally late this afternoon with NO help at all. He spoke so non-chalantly about the whole thing. He said that my colonic transit study and manometry were abnormal and that my muscles just do not work. He said the key is just to get things as liquified as possible but that there isn't really anything to do about the prob except removing my colon and giving me an ileostomy. I just don't think that will solve the prob. I have dysmotility in my stomach and most likely my small bowel as well. Nothing is moving right now and I am distending and miserable. I need a gastro who is good with motility and can think out of the box and really try and help his/her patients. I know there has to be other options to try whether it be Propulsid, NT3 Injections, IV anti-cholinergic's, etc.

Please help! Thank you! Please contact mito-owner with any problems or questions.

[Guest guest]

It's not the GASTRIC pacemaker used to make people feel full. It's something else. It regulates the motility or something... Sorry, I'm probably more confusing that helpful but just wanted to encourage you to get at least a second opion before considering an ileostomy.

Krystena

Need a Good Motility gastro

As you know I had some really unpleasant lower gastro testing done last week while at Cleveland Clinic. I thought the doc. I was seeing was top in the field and would be able to help me. Well after numerous phone calls to get the results from my tests he called personally late this afternoon with NO help at all. He spoke so non-chalantly about the whole thing. He said that my colonic transit study and manometry were abnormal and that my muscles just do not work. He said the key is just to get things as liquified as possible but that there isn't really anything to do about the prob except removing my colon and giving me an ileostomy. I just don't think that will solve the prob. I have dysmotility in my stomach and most likely my small bowel as well. Nothing is moving right now and I am distending and miserable. I need a gastro who is good with motility and can think out of the box and really try and help his/her patients. I know there has to be other options to try whether it be Propulsid, NT3 Injections, IV anti-cholinergic's, etc.

Please help! Thank you! Please contact mito-owner with any problems or questions.

[Guest guest]

Questions in The Gastroenterology Forum are currently being answered by Pho M.D., who is board certified in Internal Medicine and is also affiliated with an academic medical center.

Subject: Re: gastro-pacemakerForum: The Gastroenterology and Liver Diseases Forum Topic Area: Gastroenterology - GeneralPosted by HFHSM.D.-ym on October 15, 1998 at 21:09:35:In Reply to: gastro-pacemaker posted by dave on October 09, 1998 at 18:59:03:

: Through a nuclear egg study I was found to have a "half-emptying time GT 200 minutes. None of the medications I tried in the past 8 years or so have worked.(reglan,propulsid,erythmycin etc.) My regular M,D. told me this week he heard there is noe a Gastrointestinal-Pacccemaker that can be surgically installed to send electric charges to stimulate stomach muscle contraction to relaive the gastroparesis slow emptying. Have you heard of this? Does it work?: Thank You,: dave Dear Dave, The pacemaker of the stomach is located in the body of the stomach and regulates the rhythm of the entire stomach (usually 3 cycles per minute). Recently, a technology called electrogastrography (EGG) has been developed. EGG can detect abnormal rhythms of gastric myoelectrical activity. These are classified as rapid (tachygastria), slow (bradygastria) or mixed (bradytachyarrhythmia).EGG does not directly measure contractile force or gastric emptying. A series of patterns have been seen in a number of patients with a variety of clinical disorders associated with gastric dysmotility. However, it is not always clear that these abnormal patterns are actually responsible for the symptoms experienced by the patients. Although gastric pacemakers are being developed, they are used mostly in research centers specializing in motility disorders. I hope you find this information helpful. This response is being provided for general informational purposes only and should not be considered medical advice or consultation. Always check with your personal physician when you have a question pertaining to your health. If you want to be seen at our institution please call 1-, our Referring Physicians' Office and make an appointment to see Dr. Muszkat, one of our experts in Gastroenterology. HFHSM.D.-ym*Keywords: gastroparesis, gastric pacemaker, EGG

Need a Good Motility gastro

As you know I had some really unpleasant lower gastro testing done last week while at Cleveland Clinic. I thought the doc. I was seeing was top in the field and would be able to help me. Well after numerous phone calls to get the results from my tests he called personally late this afternoon with NO help at all. He spoke so non-chalantly about the whole thing. He said that my colonic transit study and manometry were abnormal and that my muscles just do not work. He said the key is just to get things as liquified as possible but that there isn't really anything to do about the prob except removing my colon and giving me an ileostomy. I just don't think that will solve the prob. I have dysmotility in my stomach and most likely my small bowel as well. Nothing is moving right now and I am distending and miserable. I need a gastro who is good with motility and can think out of the box and really try and help his/her patients. I know there has to be other options to try whether it be Propulsid, NT3 Injections, IV anti-cholinergic's, etc.

Please help! Thank you! Please contact mito-owner with any problems or questions.

[Guest guest]

Thanks Krystena. I've looked into the gastric pacemaker but at this time it's only for the stomach and if you have dysmotility other places in your GI tract like I do then it's not an option.

[Guest guest]

Thanks Krystena. I've looked into the gastric pacemaker but at this time it's only for the stomach and if you have dysmotility other places in your GI tract like I do then it's not an option.

[Guest guest]

Thanks Krystena. I've looked into the gastric pacemaker but at this time it's only for the stomach and if you have dysmotility other places in your GI tract like I do then it's not an option.

[Guest guest]

,

I wish I had a name of someone to help you. It is so frustrating for a dr to be so nonchalant about something that is so troubling to the patient!!!! FWIW, my little guy, Asher (3), has dysmotility in his colon and he's on a g-tube and b/c he's getting Alimentum (baby formula but it's "predigested") and a bit of Pediasure, he's no longer having any of the bloating. At one point, before the G-tube, he looked 7 months pregnant! The drs even thought he might have a tumor, but it was that he had so much air in his colon that he was incredibly distended! Seems that either the liquid nature of the formula or the fact that it's mostly broken down has helped him.

Anne R

[Guest guest]

,

I wish I had a name of someone to help you. It is so frustrating for a dr to be so nonchalant about something that is so troubling to the patient!!!! FWIW, my little guy, Asher (3), has dysmotility in his colon and he's on a g-tube and b/c he's getting Alimentum (baby formula but it's "predigested") and a bit of Pediasure, he's no longer having any of the bloating. At one point, before the G-tube, he looked 7 months pregnant! The drs even thought he might have a tumor, but it was that he had so much air in his colon that he was incredibly distended! Seems that either the liquid nature of the formula or the fact that it's mostly broken down has helped him.

Anne R

[Guest guest]

,

I wish I had a name of someone to help you. It is so frustrating for a dr to be so nonchalant about something that is so troubling to the patient!!!! FWIW, my little guy, Asher (3), has dysmotility in his colon and he's on a g-tube and b/c he's getting Alimentum (baby formula but it's "predigested") and a bit of Pediasure, he's no longer having any of the bloating. At one point, before the G-tube, he looked 7 months pregnant! The drs even thought he might have a tumor, but it was that he had so much air in his colon that he was incredibly distended! Seems that either the liquid nature of the formula or the fact that it's mostly broken down has helped him.

Anne R

[Guest guest]

Thanks Anne.

Glad you've been able to find a viable solution for Asher. I wish you continued success with the G tube.

[Guest guest]

Thanks Anne.

Glad you've been able to find a viable solution for Asher. I wish you continued success with the G tube.

[Guest guest]

Thanks Anne.

Glad you've been able to find a viable solution for Asher. I wish you continued success with the G tube.