Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 The levels alone weren't enough to prove a mitodisorder but our neuro was so confident in his diagnosis of this thathe sent her labs to Dr. Kelley who was able to diagnose Complex Iwithout even seeing Abbey based on the patterns of her abnormalities.We took her to Baltimore to see him and that is when he examined herand prescribed her "cocktail". If you have had lab work done (FISHAnalysis) but don't have a diagnosis I would recommend sending him acopy. He reviewed Abbey's and called me himself to discuss treatment. , Thanks for the info, and sorry it took so long to get back to you. I am still going thru Chelsea's records and have yet to fully understand what they mean. What is a FISH analysis? And what does it test for? I got the impression that Chelsea has been tested for everthing under the sun, but even I am finding holes in her records. I would definatly be interested in sending her records to Korson or someone else, if that is possible. How would I go about doing that? Thanks again! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
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