Re: Mito Kids Rock! LOL ( Not Fobi related just a bragging mom)

[Guest guest]

Hi ,

I wish I could see your pics, but they are just pink blocks. Congrats

to and Congrats to Krisalynn! Did you get my last post a few

days ago?

Shirl

On Sunday, February 22, 2004, at 10:03 AM, mitooggo@... wrote:

,

> Forgive me if this is a double post I sent it once with too many

> pictures I think so it never showed up.  shows his project this

> year for the Science fair.  He took first at his school site level and

> then at district he took Blue in his division and then Top honors this

> year He is 11 years old.  We are so proud of him.  As you can see he is

> working on educating people about Mito.  His goal is to be a

> researcher.  He tells Dr. Boles all the time he wants to find the cure

> for Mito.   We say Go Baby!

shows his Blue! This is Krisalynn's project this year.  She took

first at her school level and for the first time was old enough to

compete at the district level and took blue (1st) at the district

level.  We are so proud of her as well.  She did hers on the chemical

reaction between baking soda and vinegar and blew the cork clean off her

test bottle!  LOL below she is talking to her judge and then she is

showing off her Blue with her Principal.

> Thanks for letting me brag!  It sure is nice when we can celebrate good

> things around here.  worked on his project for a little over six

> months.  I am so glad we started early this year with as sick as he has

> been these past few months with the NVD Nurovascular Dystrophy.  We did

> kind of pre warn him this year that he had placed at the district

> level, we didn't tell him what he got just he had placed. To try and

> take some of the stress off of him so the adrenaline didn't build up so

> much while he waited to hear at the awards part. Dr. Boles had highly

> recommended this to try and avoid another melt down. I had asked my

> principal if it was possible if we could know if he placed or not ahead

> of time so we could do this to avoid him passing out like he did last

> time from the adrenaline build up and the disautonomia issues.  Poor

> kid, last time he got an award, walked up and got it and then passed

> out on his way off the stage.  They were great about it and said most

> definitely they would. I don't think they wanted another issue either! 

> LOL Anyway we say go MITO kids!  Who says this dumb disease has to stop

> us!  LOL They have now recommended we send to a magnet Science

> school.  Yikes!  Now that is something that can stop us!  Mito kids

> parents don't have the money for that!!!!!  Anybody know someone who

> would want to sponsor a budding researcher?

>

> HUGS!

> O and crew - Kira,, and Krisalynn Mitochondrial

> Myopathy-MIDS Maternally Inherited Dysautonomia and dad Enrique

> Visit our web page: WWW. caringbridge.org/ca/mitooggo

>

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