Re: New to group-questions re: Athena Labs (long)

[Guest guest]

Hi there

I don't think anyone answered you but as I understand it the cytochrome c oxidase means that he has COX or Complex IV. I am not sure aobu tthe other two. Who ordered these? Can they explain them to you. I will tell you by the time we got our dx in the mail I understood much more about mito than our local docs so they didn't even call me. This is a better report than Athena generally does. They often give much vague=er dxs and many kids have to have fresh biopsies done later. Do you have a mito doc? If you dont, you should consider going to Mayo to see Whiteman, Ohio to see Cohen or if you are in New England we adore Dr Mark Korson. Let me know if you have any other questions.

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com

[Guest guest]

Hi there

I don't think anyone answered you but as I understand it the cytochrome c oxidase means that he has COX or Complex IV. I am not sure aobu tthe other two. Who ordered these? Can they explain them to you. I will tell you by the time we got our dx in the mail I understood much more about mito than our local docs so they didn't even call me. This is a better report than Athena generally does. They often give much vague=er dxs and many kids have to have fresh biopsies done later. Do you have a mito doc? If you dont, you should consider going to Mayo to see Whiteman, Ohio to see Cohen or if you are in New England we adore Dr Mark Korson. Let me know if you have any other questions.

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com

[Guest guest]

Hi there

I don't think anyone answered you but as I understand it the cytochrome c oxidase means that he has COX or Complex IV. I am not sure aobu tthe other two. Who ordered these? Can they explain them to you. I will tell you by the time we got our dx in the mail I understood much more about mito than our local docs so they didn't even call me. This is a better report than Athena generally does. They often give much vague=er dxs and many kids have to have fresh biopsies done later. Do you have a mito doc? If you dont, you should consider going to Mayo to see Whiteman, Ohio to see Cohen or if you are in New England we adore Dr Mark Korson. Let me know if you have any other questions.

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com

[Guest guest]

good luck with your trip. Everyone I knwo who see Whiteman loves Him. It can be overwhelming, especially if you have to take two!

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com

[Guest guest]

Thank you for replying! These tests were ordered by our local

neurologist. He says now he can't see us until the end of May. We

sent our medical records to Dr. Cohen in October and they called

back and said they would schedule an appt. for him but we've never

heard back. At this point we've decided to see Dr. Whiteman because

we're concerned our daughter may also be affected. It all seems so

overwhelming and takes forever to schedule all the necessary travel,

etc. Again, thank you for replying.

In Mito , VisibleWorship@a... wrote:

> Hi there

>

> I don't think anyone answered you but as I understand it the

cytochrome c

> oxidase means that he has COX or Complex IV. I am not sure aobu

tthe other two.

> Who ordered these? Can they explain them to you. I will tell you

by the

> time we got our dx in the mail I understood much more about mito

than our local

> docs so they didn't even call me. This is a better report than

Athena

> generally does. They often give much vague=er dxs and many kids

have to have fresh

> biopsies done later. Do you have a mito doc? If you dont, you

should consider

> going to Mayo to see Whiteman, Ohio to see Cohen or if you are in

New England

> we adore Dr Mark Korson. Let me know if you have any other

questions.

>

> deb...mom to three great adopted kids... (07.04.96-

05.26.03) with

> Mitochondrial Disease, Gaige age 5 with High Functioning Autism &

dysfluency and

> Bliss age 2 with very very mild Cerebral Palsy.

> www.HeartLiftersGallery.com