Update

[Guest guest]

Hil, I am so glad to hear from you. It is good to know you are

feeling somewhat better and stronger. I am glad you are feeling

somewhat normal.

Can you eat anything you want now? Or do you have a restricted

diet?

I am hoping that you are healing well. I too worry about scar

tissue returning. The doctor told me that I had a 10% chance of that

happening. Hopefully that is the low percent for you also. Sending

Prayers for you that you mend fast and enjoy life again.

Cyber Hugs to you. Ingrid

> I feel really good just still weak and expect it will take awhile.

No pain from surgery but the arthritis in my spine decided to act up

so that puts me right down in bed. I have morphine from the hospital

but don't want to take that. It is just wonderful to sit and eat a

meal without running to the bathroom as soon as I get two bites. I

only go 3 or 4 times a day now instead of the 20 or so. The surgeon

had told me I would go more often but easier. I don't think they

believed how many trips upstairs I was taking. I feel almost like a

normal person:) I have not even had to get up during the night.

> I know we are using the best medical advances we have but nothing

is perfect. This is the third time this mass has shown on a Pet scan

or Pet/CT and it was NOT cancer. They would have done a biopsy like

they did last year but the striture had gotten worse and they had no

way to get up there to just biopsy.At least this surgeon got a lot of

scar tissue out and hope I don't grow anymore:) I see him on Wed and

now my mind is clearer I will get more info. I was not in to asking

questions when they come in hospital at 5 am and your doped up

besides. My CEA was running about 6 then started climbing and before

this surgery had gone up to 12.1. Why that with no cancer I don't

know but again it proves it is not that relieable. It very well could

be because my smoking increased the more my nervous I got. I have

finally woke up to the fact I have to stop smoking and am trying.

>

> Hil

>

>

>

[Guest guest]

,

I am glad they found out what is wrong with your legs and they are going

to be treated. I will keep you in my thoughts and prayers.

Terri G.

>

> My dermatologist called me from the Mayo Clinic, and said that the

sores in my legs grew 3+ staph aures. Not sure if I spelled that right,

but the medical folks on here know what I am talking about. She said the

antibiotic she put me on is sensitive to that, so it should help it.

>

> I asked her about my other blood work that was drawn:

>

> My sed rate is 64, it was 44 in September. My SGOT was 57, and was 45

in September. My GPT ( I think thats what she called it) was 40, and it

was 32 in Sept. My ACE is 43, which she said is normal.

>

> My chest xray shows no sign of active pulmonary sarcoid at this time.

So I guess this is good news.

>

> I will be going to the Mayo Clinic on Wednesday, and be admitted as an

outpatient for a few days, so they can do whirlpools, and dressings on

my legs, and then I will be going to a lymphodema clinic so they can

help me learn to wrap my own legs. OH HOW FUN!!! I CAN HARDLY

WAIT!!!!!!!! yahoooooooo....... ( I hated wrapping the legs of the

elderly, let alone wrapping my own legs.) That outta be a sight, as I am

a bit large ( FAT) in the middle.... Me being an acrobat, should be

quite the funny site... hahahahaha just picture that, when ya all need a

laugh... ROFL....

>

> So, I won't be online till next week. As I don't have a laptop to take

with me. Wish I did. Then I would have something to do at night

time..... GRRRRRRRRr.......

>

> I hate leaving my daughter for 3 days. She gets so worried about

me.... She is very protective of her ole mommy.... She will staying with

my father, my mother will be going with me to Rochester. Now that is

exciting hahahaha..... At least someone is gonna go with me.

>

> Have a great week, and i will be thinking of you all..

>

> Lots of Love from Iowa.

>

> ...

>

[Guest guest]

,

I am glad they found out what is wrong with your legs and they are going

to be treated. I will keep you in my thoughts and prayers.

Terri G.

>

> My dermatologist called me from the Mayo Clinic, and said that the

sores in my legs grew 3+ staph aures. Not sure if I spelled that right,

but the medical folks on here know what I am talking about. She said the

antibiotic she put me on is sensitive to that, so it should help it.

>

> I asked her about my other blood work that was drawn:

>

> My sed rate is 64, it was 44 in September. My SGOT was 57, and was 45

in September. My GPT ( I think thats what she called it) was 40, and it

was 32 in Sept. My ACE is 43, which she said is normal.

>

> My chest xray shows no sign of active pulmonary sarcoid at this time.

So I guess this is good news.

>

> I will be going to the Mayo Clinic on Wednesday, and be admitted as an

outpatient for a few days, so they can do whirlpools, and dressings on

my legs, and then I will be going to a lymphodema clinic so they can

help me learn to wrap my own legs. OH HOW FUN!!! I CAN HARDLY

WAIT!!!!!!!! yahoooooooo....... ( I hated wrapping the legs of the

elderly, let alone wrapping my own legs.) That outta be a sight, as I am

a bit large ( FAT) in the middle.... Me being an acrobat, should be

quite the funny site... hahahahaha just picture that, when ya all need a

laugh... ROFL....

>

> So, I won't be online till next week. As I don't have a laptop to take

with me. Wish I did. Then I would have something to do at night

time..... GRRRRRRRRr.......

>

> I hate leaving my daughter for 3 days. She gets so worried about

me.... She is very protective of her ole mommy.... She will staying with

my father, my mother will be going with me to Rochester. Now that is

exciting hahahaha..... At least someone is gonna go with me.

>

> Have a great week, and i will be thinking of you all..

>

> Lots of Love from Iowa.

>

> ...

>

[Guest guest]

,

I am glad they found out what is wrong with your legs and they are going

to be treated. I will keep you in my thoughts and prayers.

Terri G.

>

> My dermatologist called me from the Mayo Clinic, and said that the

sores in my legs grew 3+ staph aures. Not sure if I spelled that right,

but the medical folks on here know what I am talking about. She said the

antibiotic she put me on is sensitive to that, so it should help it.

>

> I asked her about my other blood work that was drawn:

>

> My sed rate is 64, it was 44 in September. My SGOT was 57, and was 45

in September. My GPT ( I think thats what she called it) was 40, and it

was 32 in Sept. My ACE is 43, which she said is normal.

>

> My chest xray shows no sign of active pulmonary sarcoid at this time.

So I guess this is good news.

>

> I will be going to the Mayo Clinic on Wednesday, and be admitted as an

outpatient for a few days, so they can do whirlpools, and dressings on

my legs, and then I will be going to a lymphodema clinic so they can

help me learn to wrap my own legs. OH HOW FUN!!! I CAN HARDLY

WAIT!!!!!!!! yahoooooooo....... ( I hated wrapping the legs of the

elderly, let alone wrapping my own legs.) That outta be a sight, as I am

a bit large ( FAT) in the middle.... Me being an acrobat, should be

quite the funny site... hahahahaha just picture that, when ya all need a

laugh... ROFL....

>

> So, I won't be online till next week. As I don't have a laptop to take

with me. Wish I did. Then I would have something to do at night

time..... GRRRRRRRRr.......

>

> I hate leaving my daughter for 3 days. She gets so worried about

me.... She is very protective of her ole mommy.... She will staying with

my father, my mother will be going with me to Rochester. Now that is

exciting hahahaha..... At least someone is gonna go with me.

>

> Have a great week, and i will be thinking of you all..

>

> Lots of Love from Iowa.

>

> ...

>

[Guest guest]

Good luck with all your new treatments . Hope they clear up your legs for good. Hugs, Debbie PS And my mom always comes with me to stuff like that, isn't it nice to have a mom like that? wrote: My dermatologist called me from the Mayo Clinic, and said that the sores in my legs grew 3+ staph aures. Not sure if I spelled that right, but the medical folks on here know what I am talking about. She said the antibiotic she put me on is sensitive to that, so it should help it. I asked her about my other blood work that was drawn: My sed rate is 64, it was 44 in September. My SGOT was 57, and was 45 in September. My GPT ( I think thats what she called it) was 40, and it was 32 in Sept. My ACE is 43, which she said is normal. My chest xray shows no sign of active pulmonary sarcoid at this time. So I guess this is good news. I will be going to the Mayo Clinic on Wednesday, and be admitted as an outpatient for a few days, so they can do whirlpools, and dressings on my legs, and then I will be going to a lymphodema clinic so they can help me learn to wrap my own legs. OH HOW FUN!!! I CAN HARDLY WAIT!!!!!!!!

yahoooooooo....... ( I hated wrapping the legs of the elderly, let alone wrapping my own legs.) That outta be a sight, as I am a bit large ( FAT) in the middle.... Me being an acrobat, should be quite the funny site... hahahahaha just picture that, when ya all need a laugh... ROFL.... So, I won't be online till next week. As I don't have a laptop to take with me. Wish I did. Then I would have something to do at night time..... GRRRRRRRRr....... I hate leaving my daughter for 3 days. She gets so worried about me.... She is very protective of her

ole mommy.... She will staying with my father, my mother will be going with me to Rochester. Now that is exciting hahahaha..... At least someone is gonna go with me. Have a great week, and i will be thinking of you all.. Lots of Love from Iowa. ...

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Good luck with all your new treatments . Hope they clear up your legs for good. Hugs, Debbie PS And my mom always comes with me to stuff like that, isn't it nice to have a mom like that? wrote: My dermatologist called me from the Mayo Clinic, and said that the sores in my legs grew 3+ staph aures. Not sure if I spelled that right, but the medical folks on here know what I am talking about. She said the antibiotic she put me on is sensitive to that, so it should help it. I asked her about my other blood work that was drawn: My sed rate is 64, it was 44 in September. My SGOT was 57, and was 45 in September. My GPT ( I think thats what she called it) was 40, and it was 32 in Sept. My ACE is 43, which she said is normal. My chest xray shows no sign of active pulmonary sarcoid at this time. So I guess this is good news. I will be going to the Mayo Clinic on Wednesday, and be admitted as an outpatient for a few days, so they can do whirlpools, and dressings on my legs, and then I will be going to a lymphodema clinic so they can help me learn to wrap my own legs. OH HOW FUN!!! I CAN HARDLY WAIT!!!!!!!!

yahoooooooo....... ( I hated wrapping the legs of the elderly, let alone wrapping my own legs.) That outta be a sight, as I am a bit large ( FAT) in the middle.... Me being an acrobat, should be quite the funny site... hahahahaha just picture that, when ya all need a laugh... ROFL.... So, I won't be online till next week. As I don't have a laptop to take with me. Wish I did. Then I would have something to do at night time..... GRRRRRRRRr....... I hate leaving my daughter for 3 days. She gets so worried about me.... She is very protective of her

ole mommy.... She will staying with my father, my mother will be going with me to Rochester. Now that is exciting hahahaha..... At least someone is gonna go with me. Have a great week, and i will be thinking of you all.. Lots of Love from Iowa. ...

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Good luck with all your new treatments . Hope they clear up your legs for good. Hugs, Debbie PS And my mom always comes with me to stuff like that, isn't it nice to have a mom like that? wrote: My dermatologist called me from the Mayo Clinic, and said that the sores in my legs grew 3+ staph aures. Not sure if I spelled that right, but the medical folks on here know what I am talking about. She said the antibiotic she put me on is sensitive to that, so it should help it. I asked her about my other blood work that was drawn: My sed rate is 64, it was 44 in September. My SGOT was 57, and was 45 in September. My GPT ( I think thats what she called it) was 40, and it was 32 in Sept. My ACE is 43, which she said is normal. My chest xray shows no sign of active pulmonary sarcoid at this time. So I guess this is good news. I will be going to the Mayo Clinic on Wednesday, and be admitted as an outpatient for a few days, so they can do whirlpools, and dressings on my legs, and then I will be going to a lymphodema clinic so they can help me learn to wrap my own legs. OH HOW FUN!!! I CAN HARDLY WAIT!!!!!!!!

yahoooooooo....... ( I hated wrapping the legs of the elderly, let alone wrapping my own legs.) That outta be a sight, as I am a bit large ( FAT) in the middle.... Me being an acrobat, should be quite the funny site... hahahahaha just picture that, when ya all need a laugh... ROFL.... So, I won't be online till next week. As I don't have a laptop to take with me. Wish I did. Then I would have something to do at night time..... GRRRRRRRRr....... I hate leaving my daughter for 3 days. She gets so worried about me.... She is very protective of her

ole mommy.... She will staying with my father, my mother will be going with me to Rochester. Now that is exciting hahahaha..... At least someone is gonna go with me. Have a great week, and i will be thinking of you all.. Lots of Love from Iowa. ...

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Connie, that's great about your niece. What a relief for your

family, despite the hard work ahead for her.

About your PCP, maybe your urologist (after vacation) would be

willing to call the one you want & ask him/her to take you on as a

patient. That's how I got into the internist I wanted to see. My

neuro called him. Right now it sounds like your urologist is

basically providing primary care for you, so it would be to his

advantage to help you change to a better qualified doctor. You might

want to approach him that way, saying something about how

appreciative you are of his efforts on your behalf, how frustrating

it is that he is doing things that are really the PCP's

responsibility, and life would probably be a lot easier for both of

you if you could see Dr. Welby. Don't lay it on too thick, but it's

the truth! Love and virtual hugs, Rose

P.S. I'm sending one of Tracie's virtual blankets by Special

Delivery. These are the softest, warmest, most comforting blankets

in the world. Have a real cup of tea & snuggle away in your blanket,

which should be arriving just about . . . . . . . . NOW!

>

>

> Hello Everyone!

>

> I just wanted you all to know that my niece went home yesterday.

Thanks

> to all for the prayers and good thoughts and wishes. She will need

some

> therapy for awhile on an outpatient basis but it looks like her head

> injury may completely heal with no lasting affects.

>

> To all of you that I have missed I hope everything is ok. I know

some

> people have started infusions, new meds, etc. and I will pray those

> things work well for you. I miss the comaradarie and hope to be

back on

> a regular schedule now. I did go to the chat room and register so

I can

> chat with yall in real time.

>

> I think it was Connie who asked about my holding pattern so here

goes.

> My PCP is now blowing me off. I am not getting schedule for the

biopsy

> of the lymph node on my chest wall under the collar bone. My

urologist

> wrote him a letter about finding the cause of my neurogenic bladder

(you

> cannot fake that) and he blew that off. I was having problems with

my

> bladder medication and the PCP gave me something new which made me

very

> sick. I am back on the old stuff and if I walk around I pee. Woo

hoo.

> I have called the urologist for something else but he is on

vacation all

> week. I have been very depressed. I did try to change PCP's but

the

> one I wanted to go to cannot take any more patients at this time.

>

> I am just dragging bottom physically and emotionally and

spiritually. I

> don't know what the answer is going to be for me; I am at the mercy

of

> the PCP. He thinks it is all in my head. My urologist told me that

> doctors say that when they can't figure out what is wrong. I have

asked

> the PCP to call my therapist and he still has not. I have called

his

> office twice this week and he still has not done it. My therapist

has

> treated people that have Somatoform Disorder (your symptoms are all

in

> your head) and I am not that type of person. He has been a God

send;

> otherwise I would be ready to off myself.

>

> I want to go back to work, have my life back, visit family and

friends

> when I want too.....I don't want this shit. Please, please send me

your

> good thoughts and prayers. I don't know what I am going to do....I

just

> can't live like this anymore. I need a doctor who is going to be my

> advocate and one I can trust.

>

> Love to all of you and don't worry, I am not going to hurt myself.

Let

> me know if there are any new chats coming up during the day - I am a

> morning person and more alert at that time.

>

> Terri G.

>

[Guest guest]

Rose,

I really need my virtual blanket - thank you. I am soo frustrated that

I am teary all the time when someone says or does something nice for me.

If you ask me how I am feeling I start crying. There are no words to

express how much your friendship and the friendship of the others on

this site means to me. You guys keep me going every day. I mean it. I

would probably have just given up if this site didn't exist.

Thank you for everything.

Terri G.

> >

> >

> > Hello Everyone!

> >

> > I just wanted you all to know that my niece went home yesterday.

> Thanks

> > to all for the prayers and good thoughts and wishes. She will need

> some

> > therapy for awhile on an outpatient basis but it looks like her head

> > injury may completely heal with no lasting affects.

> >

> > To all of you that I have missed I hope everything is ok. I know

> some

> > people have started infusions, new meds, etc. and I will pray those

> > things work well for you. I miss the comaradarie and hope to be

> back on

> > a regular schedule now. I did go to the chat room and register so

> I can

> > chat with yall in real time.

> >

> > I think it was Connie who asked about my holding pattern so here

> goes.

> > My PCP is now blowing me off. I am not getting schedule for the

> biopsy

> > of the lymph node on my chest wall under the collar bone. My

> urologist

> > wrote him a letter about finding the cause of my neurogenic bladder

> (you

> > cannot fake that) and he blew that off. I was having problems with

> my

> > bladder medication and the PCP gave me something new which made me

> very

> > sick. I am back on the old stuff and if I walk around I pee. Woo

> hoo.

> > I have called the urologist for something else but he is on

> vacation all

> > week. I have been very depressed. I did try to change PCP's but

> the

> > one I wanted to go to cannot take any more patients at this time.

> >

> > I am just dragging bottom physically and emotionally and

> spiritually. I

> > don't know what the answer is going to be for me; I am at the mercy

> of

> > the PCP. He thinks it is all in my head. My urologist told me that

> > doctors say that when they can't figure out what is wrong. I have

> asked

> > the PCP to call my therapist and he still has not. I have called

> his

> > office twice this week and he still has not done it. My therapist

> has

> > treated people that have Somatoform Disorder (your symptoms are all

> in

> > your head) and I am not that type of person. He has been a God

> send;

> > otherwise I would be ready to off myself.

> >

> > I want to go back to work, have my life back, visit family and

> friends

> > when I want too.....I don't want this shit. Please, please send me

> your

> > good thoughts and prayers. I don't know what I am going to do....I

> just

> > can't live like this anymore. I need a doctor who is going to be my

> > advocate and one I can trust.

> >

> > Love to all of you and don't worry, I am not going to hurt myself.

> Let

> > me know if there are any new chats coming up during the day - I am a

> > morning person and more alert at that time.

> >

> > Terri G.

> >

>

[Guest guest]

Terri, The only reason I had suggested calling the insurance company is because of what mine has done. I have the HMO for blue cross blue shield- St of Fl Avmed. Because of what all has been going on with me I have what they call a complex case manager, her job it to keep up with the doctors and "try" to help me in a situation like the one your running into. Usually, like you though I just have to keep banging on the door, and searching till I find something.....not a fun job. She's a sweet lady, but she's had alot less success in finding the illusive white coated, ego'd doctors than I have. Krykee, I guess we're both looking in the wrong habitat. You know the one where people give a flip and the beasts in the coats know that the hypocratic oath is not something that contains swear words. I know it is one of the most frustrating

things in the world, I am so sorry your in that awful place right now. Sometimes if I knew it wouldn't kill me I would throw every stinking bit of medicine in the garbage, cancel every "specialist" appt I had, and tell them all DON'T CALL ME...I'LL CALL YOU, BUT PLEASE DON'T HOLD YOUR BREATH. But reality kicks in and I know I couldn't make it even (2) days without just one of my heart meds and I would be sooooo sick. Oh well, it's fun to scream it once in a while, and pretend I could get away with it - after I do I get tickled at myself and I'm usually ready to laugh again. It's like I always tell them, the day I lose my sense of humor, is the day you'll know I'm gone. Your in my thoughts & in my prayers////Conniemosaicgirl1 wrote: Connie,I tried to change PCP's but the only one I would go to locally isn'ttaking anymore patients right now. So, on that note I am bugging thecrap out of my PCP. Either he will deal with me or release me as apatient. I have Fed BC insurance but if I called them, they wouldn'tcare. They would tell me to change.Well, Joyce Meyer is on so I am gonna go.Thanks for everything.Terri>> Hello Everyone!>> I just wanted you all to know that my niece went home yesterday.Thanks> to all for the prayers and good thoughts and wishes. She will needsome> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.>> To all of you that I have missed I hope

everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be backon> a regular schedule now. I did go to the chat room and register so Ican> chat with yall in real time.>> I think it was Connie who asked about my holding pattern so here goes.> My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic bladder(you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made mevery> sick. I am back on the old stuff and if I walk around I pee. Woo hoo.> I have called the urologist for something else but he is on vacationall> week. I have been

very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.>> I am just dragging bottom physically and emotionally and spiritually.I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I haveasked> the PCP to call my therapist and he still has not. I have called his> office twice this week and he still has not done it. My therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.>> I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send

meyour> good thoughts and prayers. I don't know what I am going to do....Ijust> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.>> Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.>> Terri G.>>>>>> __________________________________________________>

[Guest guest]

Terri, The only reason I had suggested calling the insurance company is because of what mine has done. I have the HMO for blue cross blue shield- St of Fl Avmed. Because of what all has been going on with me I have what they call a complex case manager, her job it to keep up with the doctors and "try" to help me in a situation like the one your running into. Usually, like you though I just have to keep banging on the door, and searching till I find something.....not a fun job. She's a sweet lady, but she's had alot less success in finding the illusive white coated, ego'd doctors than I have. Krykee, I guess we're both looking in the wrong habitat. You know the one where people give a flip and the beasts in the coats know that the hypocratic oath is not something that contains swear words. I know it is one of the most frustrating

things in the world, I am so sorry your in that awful place right now. Sometimes if I knew it wouldn't kill me I would throw every stinking bit of medicine in the garbage, cancel every "specialist" appt I had, and tell them all DON'T CALL ME...I'LL CALL YOU, BUT PLEASE DON'T HOLD YOUR BREATH. But reality kicks in and I know I couldn't make it even (2) days without just one of my heart meds and I would be sooooo sick. Oh well, it's fun to scream it once in a while, and pretend I could get away with it - after I do I get tickled at myself and I'm usually ready to laugh again. It's like I always tell them, the day I lose my sense of humor, is the day you'll know I'm gone. Your in my thoughts & in my prayers////Conniemosaicgirl1 wrote: Connie,I tried to change PCP's but the only one I would go to locally isn'ttaking anymore patients right now. So, on that note I am bugging thecrap out of my PCP. Either he will deal with me or release me as apatient. I have Fed BC insurance but if I called them, they wouldn'tcare. They would tell me to change.Well, Joyce Meyer is on so I am gonna go.Thanks for everything.Terri>> Hello Everyone!>> I just wanted you all to know that my niece went home yesterday.Thanks> to all for the prayers and good thoughts and wishes. She will needsome> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.>> To all of you that I have missed I hope

everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be backon> a regular schedule now. I did go to the chat room and register so Ican> chat with yall in real time.>> I think it was Connie who asked about my holding pattern so here goes.> My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic bladder(you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made mevery> sick. I am back on the old stuff and if I walk around I pee. Woo hoo.> I have called the urologist for something else but he is on vacationall> week. I have been

very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.>> I am just dragging bottom physically and emotionally and spiritually.I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I haveasked> the PCP to call my therapist and he still has not. I have called his> office twice this week and he still has not done it. My therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.>> I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send

meyour> good thoughts and prayers. I don't know what I am going to do....Ijust> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.>> Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.>> Terri G.>>>>>> __________________________________________________>

[Guest guest]

Terri, The only reason I had suggested calling the insurance company is because of what mine has done. I have the HMO for blue cross blue shield- St of Fl Avmed. Because of what all has been going on with me I have what they call a complex case manager, her job it to keep up with the doctors and "try" to help me in a situation like the one your running into. Usually, like you though I just have to keep banging on the door, and searching till I find something.....not a fun job. She's a sweet lady, but she's had alot less success in finding the illusive white coated, ego'd doctors than I have. Krykee, I guess we're both looking in the wrong habitat. You know the one where people give a flip and the beasts in the coats know that the hypocratic oath is not something that contains swear words. I know it is one of the most frustrating

things in the world, I am so sorry your in that awful place right now. Sometimes if I knew it wouldn't kill me I would throw every stinking bit of medicine in the garbage, cancel every "specialist" appt I had, and tell them all DON'T CALL ME...I'LL CALL YOU, BUT PLEASE DON'T HOLD YOUR BREATH. But reality kicks in and I know I couldn't make it even (2) days without just one of my heart meds and I would be sooooo sick. Oh well, it's fun to scream it once in a while, and pretend I could get away with it - after I do I get tickled at myself and I'm usually ready to laugh again. It's like I always tell them, the day I lose my sense of humor, is the day you'll know I'm gone. Your in my thoughts & in my prayers////Conniemosaicgirl1 wrote: Connie,I tried to change PCP's but the only one I would go to locally isn'ttaking anymore patients right now. So, on that note I am bugging thecrap out of my PCP. Either he will deal with me or release me as apatient. I have Fed BC insurance but if I called them, they wouldn'tcare. They would tell me to change.Well, Joyce Meyer is on so I am gonna go.Thanks for everything.Terri>> Hello Everyone!>> I just wanted you all to know that my niece went home yesterday.Thanks> to all for the prayers and good thoughts and wishes. She will needsome> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.>> To all of you that I have missed I hope

everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be backon> a regular schedule now. I did go to the chat room and register so Ican> chat with yall in real time.>> I think it was Connie who asked about my holding pattern so here goes.> My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic bladder(you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made mevery> sick. I am back on the old stuff and if I walk around I pee. Woo hoo.> I have called the urologist for something else but he is on vacationall> week. I have been

very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.>> I am just dragging bottom physically and emotionally and spiritually.I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I haveasked> the PCP to call my therapist and he still has not. I have called his> office twice this week and he still has not done it. My therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.>> I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send

meyour> good thoughts and prayers. I don't know what I am going to do....Ijust> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.>> Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.>> Terri G.>>>>>> __________________________________________________>

[Guest guest]

I have a nurse friend who is having the same kind of problem getting information from her doctors. She has lost a lot of weight. She is down to about 100 pounds. They have done major testing and have sent her to a university for tests. But then she gets no answers. She called the doctors office and left a message telling them that if they just went ahead and did the autopsy they would probably have accurate and rapid results that they could at least give her family. Needless to say the doctor called her right away. Barb J. Connie Griffis wrote: Terri, The only reason I had suggested calling the insurance company is because of what mine has done. I have the HMO for blue cross blue shield- St of Fl Avmed. Because of what all has been

going on with me I have what they call a complex case manager, her job it to keep up with the doctors and "try" to help me in a situation like the one your running into. Usually, like you though I just have to keep banging on the door, and searching till I find something.....not a fun job. She's a sweet lady, but she's had alot less success in finding the illusive white coated, ego'd doctors than I have. Krykee, I guess we're both looking in the wrong habitat. You know the one where people give a flip and the beasts in the coats know that the hypocratic oath is not something that contains swear words. I know it is one of the most frustrating things in the world, I am so sorry your in that awful place right now. Sometimes if I knew it wouldn't kill me I would throw every stinking bit of medicine in the garbage, cancel every "specialist" appt I

had, and tell them all DON'T CALL ME...I'LL CALL YOU, BUT PLEASE DON'T HOLD YOUR BREATH. But reality kicks in and I know I couldn't make it even (2) days without just one of my heart meds and I would be sooooo sick. Oh well, it's fun to scream it once in a while, and pretend I could get away with it - after I do I get tickled at myself and I'm usually ready to laugh again. It's like I always tell them, the day I lose my sense of humor, is the day you'll know I'm gone. Your in my thoughts & in my prayers////Conniemosaicgirl1 wrote: Connie,I tried to change PCP's but the only one I would go to locally isn'ttaking anymore patients right now. So, on that note I am bugging thecrap out of my PCP. Either he

will deal with me or release me as apatient. I have Fed BC insurance but if I called them, they wouldn'tcare. They would tell me to change.Well, Joyce Meyer is on so I am gonna go.Thanks for everything.Terri>> Hello Everyone!>> I just wanted you all to know that my niece went home yesterday.Thanks> to all for the prayers and good thoughts and wishes. She will needsome> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.>> To all of you that I have missed I hope everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be backon> a regular schedule now. I did go to the chat room and register so Ican> chat with yall in real time.>> I think it was Connie who asked about my holding pattern so here goes.> My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph

node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic bladder(you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made mevery> sick. I am back on the old stuff and if I walk around I pee. Woo hoo.> I have called the urologist for something else but he is on vacationall> week. I have been very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.>> I am just dragging bottom physically and emotionally and spiritually.I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I haveasked> the PCP to call my therapist and he

still has not. I have called his> office twice this week and he still has not done it. My therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.>> I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send meyour> good thoughts and prayers. I don't know what I am going to do....Ijust> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.>> Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.>> Terri G.>>>>>>

__________________________________________________>

[Guest guest]

I have a nurse friend who is having the same kind of problem getting information from her doctors. She has lost a lot of weight. She is down to about 100 pounds. They have done major testing and have sent her to a university for tests. But then she gets no answers. She called the doctors office and left a message telling them that if they just went ahead and did the autopsy they would probably have accurate and rapid results that they could at least give her family. Needless to say the doctor called her right away. Barb J. Connie Griffis wrote: Terri, The only reason I had suggested calling the insurance company is because of what mine has done. I have the HMO for blue cross blue shield- St of Fl Avmed. Because of what all has been

going on with me I have what they call a complex case manager, her job it to keep up with the doctors and "try" to help me in a situation like the one your running into. Usually, like you though I just have to keep banging on the door, and searching till I find something.....not a fun job. She's a sweet lady, but she's had alot less success in finding the illusive white coated, ego'd doctors than I have. Krykee, I guess we're both looking in the wrong habitat. You know the one where people give a flip and the beasts in the coats know that the hypocratic oath is not something that contains swear words. I know it is one of the most frustrating things in the world, I am so sorry your in that awful place right now. Sometimes if I knew it wouldn't kill me I would throw every stinking bit of medicine in the garbage, cancel every "specialist" appt I

had, and tell them all DON'T CALL ME...I'LL CALL YOU, BUT PLEASE DON'T HOLD YOUR BREATH. But reality kicks in and I know I couldn't make it even (2) days without just one of my heart meds and I would be sooooo sick. Oh well, it's fun to scream it once in a while, and pretend I could get away with it - after I do I get tickled at myself and I'm usually ready to laugh again. It's like I always tell them, the day I lose my sense of humor, is the day you'll know I'm gone. Your in my thoughts & in my prayers////Conniemosaicgirl1 wrote: Connie,I tried to change PCP's but the only one I would go to locally isn'ttaking anymore patients right now. So, on that note I am bugging thecrap out of my PCP. Either he

will deal with me or release me as apatient. I have Fed BC insurance but if I called them, they wouldn'tcare. They would tell me to change.Well, Joyce Meyer is on so I am gonna go.Thanks for everything.Terri>> Hello Everyone!>> I just wanted you all to know that my niece went home yesterday.Thanks> to all for the prayers and good thoughts and wishes. She will needsome> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.>> To all of you that I have missed I hope everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be backon> a regular schedule now. I did go to the chat room and register so Ican> chat with yall in real time.>> I think it was Connie who asked about my holding pattern so here goes.> My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph

node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic bladder(you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made mevery> sick. I am back on the old stuff and if I walk around I pee. Woo hoo.> I have called the urologist for something else but he is on vacationall> week. I have been very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.>> I am just dragging bottom physically and emotionally and spiritually.I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I haveasked> the PCP to call my therapist and he

still has not. I have called his> office twice this week and he still has not done it. My therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.>> I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send meyour> good thoughts and prayers. I don't know what I am going to do....Ijust> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.>> Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.>> Terri G.>>>>>>

__________________________________________________>

[Guest guest]

I have a nurse friend who is having the same kind of problem getting information from her doctors. She has lost a lot of weight. She is down to about 100 pounds. They have done major testing and have sent her to a university for tests. But then she gets no answers. She called the doctors office and left a message telling them that if they just went ahead and did the autopsy they would probably have accurate and rapid results that they could at least give her family. Needless to say the doctor called her right away. Barb J. Connie Griffis wrote: Terri, The only reason I had suggested calling the insurance company is because of what mine has done. I have the HMO for blue cross blue shield- St of Fl Avmed. Because of what all has been

going on with me I have what they call a complex case manager, her job it to keep up with the doctors and "try" to help me in a situation like the one your running into. Usually, like you though I just have to keep banging on the door, and searching till I find something.....not a fun job. She's a sweet lady, but she's had alot less success in finding the illusive white coated, ego'd doctors than I have. Krykee, I guess we're both looking in the wrong habitat. You know the one where people give a flip and the beasts in the coats know that the hypocratic oath is not something that contains swear words. I know it is one of the most frustrating things in the world, I am so sorry your in that awful place right now. Sometimes if I knew it wouldn't kill me I would throw every stinking bit of medicine in the garbage, cancel every "specialist" appt I

had, and tell them all DON'T CALL ME...I'LL CALL YOU, BUT PLEASE DON'T HOLD YOUR BREATH. But reality kicks in and I know I couldn't make it even (2) days without just one of my heart meds and I would be sooooo sick. Oh well, it's fun to scream it once in a while, and pretend I could get away with it - after I do I get tickled at myself and I'm usually ready to laugh again. It's like I always tell them, the day I lose my sense of humor, is the day you'll know I'm gone. Your in my thoughts & in my prayers////Conniemosaicgirl1 wrote: Connie,I tried to change PCP's but the only one I would go to locally isn'ttaking anymore patients right now. So, on that note I am bugging thecrap out of my PCP. Either he

will deal with me or release me as apatient. I have Fed BC insurance but if I called them, they wouldn'tcare. They would tell me to change.Well, Joyce Meyer is on so I am gonna go.Thanks for everything.Terri>> Hello Everyone!>> I just wanted you all to know that my niece went home yesterday.Thanks> to all for the prayers and good thoughts and wishes. She will needsome> therapy for awhile on an outpatient basis but it looks like her head> injury may completely heal with no lasting affects.>> To all of you that I have missed I hope everything is ok. I know some> people have started infusions, new meds, etc. and I will pray those> things work well for you. I miss the comaradarie and hope to be backon> a regular schedule now. I did go to the chat room and register so Ican> chat with yall in real time.>> I think it was Connie who asked about my holding pattern so here goes.> My PCP is now blowing me off. I am not getting schedule for the biopsy> of the lymph

node on my chest wall under the collar bone. My urologist> wrote him a letter about finding the cause of my neurogenic bladder(you> cannot fake that) and he blew that off. I was having problems with my> bladder medication and the PCP gave me something new which made mevery> sick. I am back on the old stuff and if I walk around I pee. Woo hoo.> I have called the urologist for something else but he is on vacationall> week. I have been very depressed. I did try to change PCP's but the> one I wanted to go to cannot take any more patients at this time.>> I am just dragging bottom physically and emotionally and spiritually.I> don't know what the answer is going to be for me; I am at the mercy of> the PCP. He thinks it is all in my head. My urologist told me that> doctors say that when they can't figure out what is wrong. I haveasked> the PCP to call my therapist and he

still has not. I have called his> office twice this week and he still has not done it. My therapist has> treated people that have Somatoform Disorder (your symptoms are all in> your head) and I am not that type of person. He has been a God send;> otherwise I would be ready to off myself.>> I want to go back to work, have my life back, visit family and friends> when I want too.....I don't want this shit. Please, please send meyour> good thoughts and prayers. I don't know what I am going to do....Ijust> can't live like this anymore. I need a doctor who is going to be my> advocate and one I can trust.>> Love to all of you and don't worry, I am not going to hurt myself. Let> me know if there are any new chats coming up during the day - I am a> morning person and more alert at that time.>> Terri G.>>>>>>

__________________________________________________>

[Guest guest]

Barb,

Thank you for the birthday card; it was beautiful. Secondly, maybe I

need to make a phone call like you friend did and someone might call me

back?

Terri G.

> >

> > Hello Everyone!

> >

> > I just wanted you all to know that my niece went home yesterday.

> Thanks

> > to all for the prayers and good thoughts and wishes. She will need

> some

> > therapy for awhile on an outpatient basis but it looks like her head

> > injury may completely heal with no lasting affects.

> >

> > To all of you that I have missed I hope everything is ok. I know

some

> > people have started infusions, new meds, etc. and I will pray those

> > things work well for you. I miss the comaradarie and hope to be back

> on

> > a regular schedule now. I did go to the chat room and register so I

> can

> > chat with yall in real time.

> >

> > I think it was Connie who asked about my holding pattern so here

goes.

> > My PCP is now blowing me off. I am not getting schedule for the

biopsy

> > of the lymph node on my chest wall under the collar bone. My

urologist

> > wrote him a letter about finding the cause of my neurogenic bladder

> (you

> > cannot fake that) and he blew that off. I was having problems with

my

> > bladder medication and the PCP gave me something new which made me

> very

> > sick. I am back on the old stuff and if I walk around I pee. Woo

hoo.

> > I have called the urologist for something else but he is on vacation

> all

> > week. I have been very depressed. I did try to change PCP's but the

> > one I wanted to go to cannot take any more patients at this time.

> >

> > I am just dragging bottom physically and emotionally and

spiritually.

> I

> > don't know what the answer is going to be for me; I am at the mercy

of

> > the PCP. He thinks it is all in my head. My urologist told me that

> > doctors say that when they can't figure out what is wrong. I have

> asked

> > the PCP to call my therapist and he still has not. I have called his

> > office twice this week and he still has not done it. My therapist

has

> > treated people that have Somatoform Disorder (your symptoms are all

in

> > your head) and I am not that type of person. He has been a God send;

> > otherwise I would be ready to off myself.

> >

> > I want to go back to work, have my life back, visit family and

friends

> > when I want too.....I don't want this shit. Please, please send me

> your

> > good thoughts and prayers. I don't know what I am going to do....I

> just

> > can't live like this anymore. I need a doctor who is going to be my

> > advocate and one I can trust.

> >

> > Love to all of you and don't worry, I am not going to hurt myself.

Let

> > me know if there are any new chats coming up during the day - I am a

> > morning person and more alert at that time.

> >

> > Terri G.

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Barb,

Thank you for the birthday card; it was beautiful. Secondly, maybe I

need to make a phone call like you friend did and someone might call me

back?

Terri G.

> >

> > Hello Everyone!

> >

> > I just wanted you all to know that my niece went home yesterday.

> Thanks

> > to all for the prayers and good thoughts and wishes. She will need

> some

> > therapy for awhile on an outpatient basis but it looks like her head

> > injury may completely heal with no lasting affects.

> >

> > To all of you that I have missed I hope everything is ok. I know

some

> > people have started infusions, new meds, etc. and I will pray those

> > things work well for you. I miss the comaradarie and hope to be back

> on

> > a regular schedule now. I did go to the chat room and register so I

> can

> > chat with yall in real time.

> >

> > I think it was Connie who asked about my holding pattern so here

goes.

> > My PCP is now blowing me off. I am not getting schedule for the

biopsy

> > of the lymph node on my chest wall under the collar bone. My

urologist

> > wrote him a letter about finding the cause of my neurogenic bladder

> (you

> > cannot fake that) and he blew that off. I was having problems with

my

> > bladder medication and the PCP gave me something new which made me

> very

> > sick. I am back on the old stuff and if I walk around I pee. Woo

hoo.

> > I have called the urologist for something else but he is on vacation

> all

> > week. I have been very depressed. I did try to change PCP's but the

> > one I wanted to go to cannot take any more patients at this time.

> >

> > I am just dragging bottom physically and emotionally and

spiritually.

> I

> > don't know what the answer is going to be for me; I am at the mercy

of

> > the PCP. He thinks it is all in my head. My urologist told me that

> > doctors say that when they can't figure out what is wrong. I have

> asked

> > the PCP to call my therapist and he still has not. I have called his

> > office twice this week and he still has not done it. My therapist

has

> > treated people that have Somatoform Disorder (your symptoms are all

in

> > your head) and I am not that type of person. He has been a God send;

> > otherwise I would be ready to off myself.

> >

> > I want to go back to work, have my life back, visit family and

friends

> > when I want too.....I don't want this shit. Please, please send me

> your

> > good thoughts and prayers. I don't know what I am going to do....I

> just

> > can't live like this anymore. I need a doctor who is going to be my

> > advocate and one I can trust.

> >

> > Love to all of you and don't worry, I am not going to hurt myself.

Let

> > me know if there are any new chats coming up during the day - I am a

> > morning person and more alert at that time.

> >

> > Terri G.

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Barb,

Thank you for the birthday card; it was beautiful. Secondly, maybe I

need to make a phone call like you friend did and someone might call me

back?

Terri G.

> >

> > Hello Everyone!

> >

> > I just wanted you all to know that my niece went home yesterday.

> Thanks

> > to all for the prayers and good thoughts and wishes. She will need

> some

> > therapy for awhile on an outpatient basis but it looks like her head

> > injury may completely heal with no lasting affects.

> >

> > To all of you that I have missed I hope everything is ok. I know

some

> > people have started infusions, new meds, etc. and I will pray those

> > things work well for you. I miss the comaradarie and hope to be back

> on

> > a regular schedule now. I did go to the chat room and register so I

> can

> > chat with yall in real time.

> >

> > I think it was Connie who asked about my holding pattern so here

goes.

> > My PCP is now blowing me off. I am not getting schedule for the

biopsy

> > of the lymph node on my chest wall under the collar bone. My

urologist

> > wrote him a letter about finding the cause of my neurogenic bladder

> (you

> > cannot fake that) and he blew that off. I was having problems with

my

> > bladder medication and the PCP gave me something new which made me

> very

> > sick. I am back on the old stuff and if I walk around I pee. Woo

hoo.

> > I have called the urologist for something else but he is on vacation

> all

> > week. I have been very depressed. I did try to change PCP's but the

> > one I wanted to go to cannot take any more patients at this time.

> >

> > I am just dragging bottom physically and emotionally and

spiritually.

> I

> > don't know what the answer is going to be for me; I am at the mercy

of

> > the PCP. He thinks it is all in my head. My urologist told me that

> > doctors say that when they can't figure out what is wrong. I have

> asked

> > the PCP to call my therapist and he still has not. I have called his

> > office twice this week and he still has not done it. My therapist

has

> > treated people that have Somatoform Disorder (your symptoms are all

in

> > your head) and I am not that type of person. He has been a God send;

> > otherwise I would be ready to off myself.

> >

> > I want to go back to work, have my life back, visit family and

friends

> > when I want too.....I don't want this shit. Please, please send me

> your

> > good thoughts and prayers. I don't know what I am going to do....I

> just

> > can't live like this anymore. I need a doctor who is going to be my

> > advocate and one I can trust.

> >

> > Love to all of you and don't worry, I am not going to hurt myself.

Let

> > me know if there are any new chats coming up during the day - I am a

> > morning person and more alert at that time.

> >

> > Terri G.

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

I just came back from 5 days at a lake house in Georgia, and my diet

did not suffer! Yay! I'm proud to say that the entire time I was

there, all I ate were:

Chicken soup

zucchini soup

yogurt

honey

eggs

pecan-honey squares

almond butter

bananas

butter

salt

pepper

homemade meatballs

Woot! I am proud of myself. And not once did I cry or get super

depressed over all the delicious looking food around me. And let me

tell you, with 30 people there, most of them overweight, there was a

LOT of food goin' on. =)

I must confess that on the 6 hour drive home, though, I ate 3

questionable fruit leathers. The ingredients were good, but you know

you can never trust these things. No adverse reactions so far, but I

am wishing I had more self control. But they tasted SOOO good =)

I think I could've avoided them except for the fact that my car

food, a smoothie, was actually a lumpie, and every swallow contained

at least one banana lump that made me gag. Ug! I'm so used to my

blentec that all other blenders seem very inferior in comparison, and

I was cursing this one the whole lump-filled ride home. Ah well, worse

things have happened!

And some more good news: Saturday is my last day on prednisone!!! Woot!

And I just weighed myself and I'm 95 lbs!!! WOOT!

Unfortunately, my throat has more white pus, and my mom said that if

it's not strep again it could be yeast. I'm hoping for a virus. I'll

probably have it checked tomorrow. Fingers crossed!

Pour Dieu, pour terre,

Alyssa 15

UC April 2008, diagnosed Sept 2008

SCD June 2009 (restarted)

20mg Prednisone 1x daily ugh

[Guest guest]

>

> I just came back from 5 days at a lake house in Georgia, and my diet

> did not suffer! Yay! I'm proud to say that the entire time I was

> there, all I ate were:

Great job, Alyssa!

Kelley

[Guest guest]

>

> I just came back from 5 days at a lake house in Georgia, and my diet

> did not suffer! Yay! I'm proud to say that the entire time I was

> there, all I ate were:

Great job, Alyssa!

Kelley

[Guest guest]

Alyssa..

Very happy reading this!

Keep up the good work and let us know about your throat.

Have you ever tried opening a probiotic capsule on your tongue and kind of

swishing around and swallowing?

This can trigger hard core die off (the actual good bacteria can go into the

ears too by putting it in your mouth this way)

Some people also gargle/swish with yogurt and spit out the actual yogurt.

Jodi

[Guest guest]

Alyssa..

Very happy reading this!

Keep up the good work and let us know about your throat.

Have you ever tried opening a probiotic capsule on your tongue and kind of

swishing around and swallowing?

This can trigger hard core die off (the actual good bacteria can go into the

ears too by putting it in your mouth this way)

Some people also gargle/swish with yogurt and spit out the actual yogurt.

Jodi