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Hi Thea...

We missed you...Good to hear from you!!!

Keep us updated!

Penny

update

Hope everyone here is well. Can't comment, I didnt read through a

lot of messages. Been very busy- and the whole bipolar thing. I

missed everyone here, it just got to be so hard to message.

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  • 1 month later...
Guest guest

Ken,

Just a thought our gentistist thought that you could do GH and then see if it

would work, but the endocrine wanted the GTube for calories first then to try

Growth Hormone. So far we have gained 3/4 of lb in week and two days. We go in

for a weight check and post surgery this afternoon.

Like all G-tubes here said it is a good thing to have done. We put it off

trying other things for over two years. Still adjusting to it but it is working

well and my stress level with eating has went way down. :)

Maloy

Update

Hi everyone,

I haven't written in a while. I have been busy using the internet

looking for a job. By the time I get done with my job search I don't

have the energy to write.

A couple of things have happened and so I wanted to catche

everyone up.

First, my son is happy and healthy. He has done real well

in kindergarten. This is gratifying becuse we were advised by

many to hold him back.

Today, he was hurt a little by one of his friends. We were baby

sitting for friend. This kid is 's age ( 6 ) but he is 71

pounds and 51.25 inches tall. That puts him in the 98th

percentile. It is funny to watch this boy and my son play. They are

at opposite ends of the growth curve but try to do the same

things. One can't becuse he can't control his large body and the

can't becuse of his small size. Today my son's friend got carried

away with his karate demonstration. My son is OK just a little

upset.

In other news we have been complaining to my son's ped. endo

that he has been the same weight for almost 2 years-- 29.5 lbs.

Today she finally responded to one of our e-mails admitting that

indeed the grwoth hormone has not worked well at all and we

should seriously consider a feeding tube as well to give him the

extra calorie boost he needs to fuel his growth.

Last, about a year ago we moved to get our son into a better

school system. That decision has proved to be a correct one. We

have gone from one of the worst school districts in the state to

the best. At least we have done one thing right.

I'll try and write more late.

Ken M

:)

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Ken,

I understand about the job searching. We were in that position just

a bit under a year ago. The week that unemployment ran out, my

husband was offered a job. The only problem is that they don't have

a health insurance plan, instead choosing to give each employee

$250/month towards health insurance. Like that will pay for

anything! We have been keeping ourselves covered under COBRA, but

that will end in December. Our plan had been that in the worst case

scenario, we would enroll in my school's program, but since they have

chosen not to rehire me, I am out of luck. It looks like we will pay

a minimum of $1300/month for an acceptable plan. My practice better

take off quickly in September to help cover that cost!

I am really glad that is doing well. It's been a long time

since you wrote good things about his schooling. As for the g-tube,

you just may have to go that route. It's not a major operation

anymore and it will help you and him so much. It really takes the

pressure off to get him to eat and if he is sick and not hungry, you

can feed him anyway. Well, you probably know all that just from

reading the posts.

Good luck with your search. As I said, I, too, am about to embark on

a " new " career, or, rather, restart something I did 8 years ago. I'm

excited, however, and think that it will work out. I hope so. Now

if only we could get Max healthy and staying healthy. Tomorrow is

his sonogram for his renal system, but I don't hold much hope for it

turning anything up. Nothing is easy with Max - and we all need a

break!

Jodi

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Hi Jodi,

$250 a month towards health insurance, how cheap is that? I'd

be tempted to tell them to take the 250 and -- well I'd better not

finish that thought.

What is your new career?

If it is necessary we will do the g-tube but first we will retry the

periactin. I just thought we were past the need for a tube. Maybe

not. we shall see.

Ken M

:)

> Ken,

>

> I understand about the job searching. We were in that position

just

> a bit under a year ago. The week that unemployment ran out,

my

> husband was offered a job. The only problem is that they don't

have

> a health insurance plan, instead choosing to give each

employee

> $250/month towards health insurance. Like that will pay for

> anything! We have been keeping ourselves covered under

COBRA, but

> that will end in December. Our plan had been that in the worst

case

> scenario, we would enroll in my school's program, but since

they have

> chosen not to rehire me, I am out of luck. It looks like we will

pay

> a minimum of $1300/month for an acceptable plan. My

practice better

> take off quickly in September to help cover that cost!

>

> I am really glad that is doing well. It's been a long time

> since you wrote good things about his schooling. As for the

g-tube,

> you just may have to go that route. It's not a major operation

> anymore and it will help you and him so much. It really takes

the

> pressure off to get him to eat and if he is sick and not hungry,

you

> can feed him anyway. Well, you probably know all that just

from

> reading the posts.

>

> Good luck with your search. As I said, I, too, am about to

embark on

> a " new " career, or, rather, restart something I did 8 years ago.

I'm

> excited, however, and think that it will work out. I hope so. Now

> if only we could get Max healthy and staying healthy. Tomorrow

is

> his sonogram for his renal system, but I don't hold much hope

for it

> turning anything up. Nothing is easy with Max - and we all

need a

> break!

>

> Jodi

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Ken,

My new job is going to be as an educational therapist. It is a title

used by the International Dyslexia Association. Basically, I help

kids with reading, math and study skills. I can set my own hours,

take off when I want to and still be here if Max is sick, as he

always seems to be lately. (The vomiting/spitting up and hiccuping

are back in full force. We had to stop the Ditropan to see if that

is causing it. Now he has to worry about wetting his pants, too!!!)

I used to do this before Max was born, with Jenna happily upstairs

with a babysitter and my being downstairs working. Then Max was born

and I had to give up working altogether because he was so sick. I

had a thriving practice and had to turn people away. My mom and I

worked together in her house and I had an office here, too. It's

really a great career. It will just cost us thousands of dollars to

redo the basement, for me to take some courses and to order

supplies. I'm trying to order a few things each month so that we can

spread out the costs.

The GOOD thing in all of this is that I can collect unemployment

starting July 1 and keep collecting as I set up my business, which

will take about three months.

Jodi

P.S. My husband is going to approach his boss and explain the health

insurance situation. He is going to try to negotiate a $10,000 raise

in order to cover those expenses.

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  • 1 month later...
Guest guest

First, to everyone who attended the convention, thanks for posting!

It is so interesting to hear all of it. Please keep it coming!

Madonna, I was wondering what made Dr. H say " is insulin

resistant. and she is afraid he is quickly heading for early

puberty. "

How does one diagnose 'insulin resistance'?

I'm very interested in the Type II diabetes stuff as well. We just

can't win, can we? My tube-fed daughter was kept at a plump weight

so as to give her height a chance to catch up prior to starting the

GH....now we hear that it may have been a mistake (I'm thinking of

Dr. H's warning for , Pat's grandson.) We are in the same

boat, I think. It's so hard and scary to me. What will they be

saying in 10 years about the GH itself? Does anyone else get nervous

about that?

Thanks,

Irene

> Well, steven got to see dr. H and I am soooo thankful for her

taking

> her time to see all of our children. I agree she can be brass,

> however I don't know of any other doctor in our area who would have

> considered doing what she did. She deserve a huge thank you. For

> those of you who met you may have thought there is no way

> that this kid has RSS but he indeed does 100%. I have posted my

> concern for his weight gain in the past couple of months.

> has internal problems that we had no idea about and without this

> meeting I am afraid things would have gotten much worse before

> better. is insulin resistant. and she is afraid he is

> quickly heading for early puberty. turned 4 on sunday.

> is also missing one testicle, and the other one is not

> growing (that was devistating for me but imagine my husbands

> reaction I thought he was going to die:)) anyway, soon as we got

> home we have changed steven's diet to that the same as a diabetic.

> so major changes here. I Have also decided that we will prob. be

> making the trip to NY to see her every 6 months. She is so intense

> with the children and views them as a whole, that is something that

> no doctor here does.

> A very special thanks to Jodi for the compassion you were

> wonderful. I would have lost it without you.

> Madonna

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Guest guest

First, to everyone who attended the convention, thanks for posting!

It is so interesting to hear all of it. Please keep it coming!

Madonna, I was wondering what made Dr. H say " is insulin

resistant. and she is afraid he is quickly heading for early

puberty. "

How does one diagnose 'insulin resistance'?

I'm very interested in the Type II diabetes stuff as well. We just

can't win, can we? My tube-fed daughter was kept at a plump weight

so as to give her height a chance to catch up prior to starting the

GH....now we hear that it may have been a mistake (I'm thinking of

Dr. H's warning for , Pat's grandson.) We are in the same

boat, I think. It's so hard and scary to me. What will they be

saying in 10 years about the GH itself? Does anyone else get nervous

about that?

Thanks,

Irene

> Well, steven got to see dr. H and I am soooo thankful for her

taking

> her time to see all of our children. I agree she can be brass,

> however I don't know of any other doctor in our area who would have

> considered doing what she did. She deserve a huge thank you. For

> those of you who met you may have thought there is no way

> that this kid has RSS but he indeed does 100%. I have posted my

> concern for his weight gain in the past couple of months.

> has internal problems that we had no idea about and without this

> meeting I am afraid things would have gotten much worse before

> better. is insulin resistant. and she is afraid he is

> quickly heading for early puberty. turned 4 on sunday.

> is also missing one testicle, and the other one is not

> growing (that was devistating for me but imagine my husbands

> reaction I thought he was going to die:)) anyway, soon as we got

> home we have changed steven's diet to that the same as a diabetic.

> so major changes here. I Have also decided that we will prob. be

> making the trip to NY to see her every 6 months. She is so intense

> with the children and views them as a whole, that is something that

> no doctor here does.

> A very special thanks to Jodi for the compassion you were

> wonderful. I would have lost it without you.

> Madonna

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Guest guest

Hi Irene,

Our 4yr. old daughter isabel also has Insulin Resistance. The first

symptoms that I noticed were she developed body odor and had dark

skin around her diaper area and her neck. So Dr. H ran some tests and

sure enough she is IR. So basically if you have the symptoms IR can

be confirmed with a blood test. Dr.H also said it is not good if she

gains more weight, I don't know the exact reason, something to do

with it being converted to estrogen or something like that(I may be

completely wrong about the hormone name:). Isabel is only 31 lbs now

and during our last visit Dr.H said you are feeding her too much , to

the outside world, she is the skinniest child :)

Isabel is on metformin the typical diabetic medicine. The darkening

of the skin has decreased but she still has body ordor and pubic hair

etc. Dr.H said, the body ordor is caused by antrogen and it is going

to be there and it doesn't mean she is in puberty but we have to keep

an eye on it.

Every day something new, sometimes I feel, I really need to read up

on these hormones/medicines so I can better understand what is going

on with my child but then again I wonder the more I read and learn

about the side effects of each of the medicines she is on, I get more

worrried and concered.

As you said, we just can't win :)

Regards,

Mini

> > Well, steven got to see dr. H and I am soooo thankful for her

> taking

> > her time to see all of our children. I agree she can be brass,

> > however I don't know of any other doctor in our area who would

have

> > considered doing what she did. She deserve a huge thank you.

For

> > those of you who met you may have thought there is no way

> > that this kid has RSS but he indeed does 100%. I have posted my

> > concern for his weight gain in the past couple of months.

> > has internal problems that we had no idea about and without this

> > meeting I am afraid things would have gotten much worse before

> > better. is insulin resistant. and she is afraid he is

> > quickly heading for early puberty. turned 4 on sunday.

> > is also missing one testicle, and the other one is not

> > growing (that was devistating for me but imagine my husbands

> > reaction I thought he was going to die:)) anyway, soon as we got

> > home we have changed steven's diet to that the same as a

diabetic.

> > so major changes here. I Have also decided that we will prob. be

> > making the trip to NY to see her every 6 months. She is so

intense

> > with the children and views them as a whole, that is something

that

> > no doctor here does.

> > A very special thanks to Jodi for the compassion you were

> > wonderful. I would have lost it without you.

> > Madonna

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Guest guest

--- One of the things that made her say this about him was the signs

of the " dirty neck " that he had, and I will have to look it up in my

notes to get the proper name for this and the other obvious thing

was the recent rapid weight gain, all in the belly. and I mean ALL

in the belly. I am havin confirming tests done on this later in the

month (2 weeks) and I will post more about it after the results come

back. However Dr. H said that she had no doubt in her mind that he

was resistant. the early puberty has to do with other signs he is

showing. She said that he could be very near to it, but not that he

is already there.

Madonna

In RSS-Support , " walborsky " wrote:

> First, to everyone who attended the convention, thanks for

posting!

> It is so interesting to hear all of it. Please keep it coming!

>

> Madonna, I was wondering what made Dr. H say " is insulin

> resistant. and she is afraid he is quickly heading for early

> puberty. "

>

> How does one diagnose 'insulin resistance'?

>

> I'm very interested in the Type II diabetes stuff as well. We

just

> can't win, can we? My tube-fed daughter was kept at a plump

weight

> so as to give her height a chance to catch up prior to starting

the

> GH....now we hear that it may have been a mistake (I'm thinking of

> Dr. H's warning for , Pat's grandson.) We are in the same

> boat, I think. It's so hard and scary to me. What will they be

> saying in 10 years about the GH itself? Does anyone else get

nervous

> about that?

>

> Thanks,

> Irene

>

>

>

> > Well, steven got to see dr. H and I am soooo thankful for her

> taking

> > her time to see all of our children. I agree she can be brass,

> > however I don't know of any other doctor in our area who would

have

> > considered doing what she did. She deserve a huge thank you.

For

> > those of you who met you may have thought there is no way

> > that this kid has RSS but he indeed does 100%. I have posted my

> > concern for his weight gain in the past couple of months.

> > has internal problems that we had no idea about and without this

> > meeting I am afraid things would have gotten much worse before

> > better. is insulin resistant. and she is afraid he is

> > quickly heading for early puberty. turned 4 on sunday.

> > is also missing one testicle, and the other one is not

> > growing (that was devistating for me but imagine my husbands

> > reaction I thought he was going to die:)) anyway, soon as we

got

> > home we have changed steven's diet to that the same as a

diabetic.

> > so major changes here. I Have also decided that we will prob.

be

> > making the trip to NY to see her every 6 months. She is so

intense

> > with the children and views them as a whole, that is something

that

> > no doctor here does.

> > A very special thanks to Jodi for the compassion you were

> > wonderful. I would have lost it without you.

> > Madonna

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Guest guest

--- One of the things that made her say this about him was the signs

of the " dirty neck " that he had, and I will have to look it up in my

notes to get the proper name for this and the other obvious thing

was the recent rapid weight gain, all in the belly. and I mean ALL

in the belly. I am havin confirming tests done on this later in the

month (2 weeks) and I will post more about it after the results come

back. However Dr. H said that she had no doubt in her mind that he

was resistant. the early puberty has to do with other signs he is

showing. She said that he could be very near to it, but not that he

is already there.

Madonna

In RSS-Support , " walborsky " wrote:

> First, to everyone who attended the convention, thanks for

posting!

> It is so interesting to hear all of it. Please keep it coming!

>

> Madonna, I was wondering what made Dr. H say " is insulin

> resistant. and she is afraid he is quickly heading for early

> puberty. "

>

> How does one diagnose 'insulin resistance'?

>

> I'm very interested in the Type II diabetes stuff as well. We

just

> can't win, can we? My tube-fed daughter was kept at a plump

weight

> so as to give her height a chance to catch up prior to starting

the

> GH....now we hear that it may have been a mistake (I'm thinking of

> Dr. H's warning for , Pat's grandson.) We are in the same

> boat, I think. It's so hard and scary to me. What will they be

> saying in 10 years about the GH itself? Does anyone else get

nervous

> about that?

>

> Thanks,

> Irene

>

>

>

> > Well, steven got to see dr. H and I am soooo thankful for her

> taking

> > her time to see all of our children. I agree she can be brass,

> > however I don't know of any other doctor in our area who would

have

> > considered doing what she did. She deserve a huge thank you.

For

> > those of you who met you may have thought there is no way

> > that this kid has RSS but he indeed does 100%. I have posted my

> > concern for his weight gain in the past couple of months.

> > has internal problems that we had no idea about and without this

> > meeting I am afraid things would have gotten much worse before

> > better. is insulin resistant. and she is afraid he is

> > quickly heading for early puberty. turned 4 on sunday.

> > is also missing one testicle, and the other one is not

> > growing (that was devistating for me but imagine my husbands

> > reaction I thought he was going to die:)) anyway, soon as we

got

> > home we have changed steven's diet to that the same as a

diabetic.

> > so major changes here. I Have also decided that we will prob.

be

> > making the trip to NY to see her every 6 months. She is so

intense

> > with the children and views them as a whole, that is something

that

> > no doctor here does.

> > A very special thanks to Jodi for the compassion you were

> > wonderful. I would have lost it without you.

> > Madonna

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  • 4 months later...

That is soooo scary but it definatley happens. I am so glad the baby is doing

well. Thank God. Stay resting too :)

HUGS, ROBIN, NY

Age- 41

Due Date- July 27th, 2004

OPEN RNY

10-18-02

378/246/170???

DR.EDWARD HIXSON

SARANAC LAKE, NY

Mom to:

&

7 1/2 year twin boys and

Madison age 4 1/2 yrs.

Miscarraige August 2001

Miscarraige August 2003

Married to Pup:

15 years this

Halloween : )

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Chrystal,

Glad to hear that the ultrasound showed everything ok. As hard as it is going

to be, especially with your little guy, but really take it easy this next week.

I'm totally sending up prayers and positive vibes for ya sweetie!

Axelrod

Update

Hi All,

Just got home from the ER and they don't know why I was having bleeding and

blood clots. They did bloodwork and ultrasounds. Baby is just fine heart beat

is strong 147 bpm and 7 weeks and 1 day old.

I was put on one weeks rest, no sex, no heavy lifting, no stress..

Thank you for the prayers and well wishes.

I guess it's just a waiting game now.

Chrystal

Check out my webpages:

http://chrystallife.50megs.com

http://members.ebay.com/aboutme/seeswensonauctions/

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Chrystal -

I bled three times in my first trimester, and they also could not

find any reason for it -- my OB said it's pretty common.

I do think the timing of mine might have been when I would have been

having my period (or, at least two of the three times). The other

time, we had travelled a long distance by car, and I think it just

might have been too much for me.

Glad to hear all is well!

Diane DeForest

> Hi All,

> Just got home from the ER and they don't know why I was having

bleeding and blood clots. They did bloodwork and ultrasounds. Baby

is just fine heart beat is strong 147 bpm and 7 weeks and 1 day old.

>

> I was put on one weeks rest, no sex, no heavy lifting, no stress..

>

> Thank you for the prayers and well wishes.

>

> I guess it's just a waiting game now.

> Chrystal

>

> Check out my webpages:

> http://chrystallife.50megs.com

> http://members.ebay.com/aboutme/seeswensonauctions/

>

>

>

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Chrystal -

I bled three times in my first trimester, and they also could not

find any reason for it -- my OB said it's pretty common.

I do think the timing of mine might have been when I would have been

having my period (or, at least two of the three times). The other

time, we had travelled a long distance by car, and I think it just

might have been too much for me.

Glad to hear all is well!

Diane DeForest

> Hi All,

> Just got home from the ER and they don't know why I was having

bleeding and blood clots. They did bloodwork and ultrasounds. Baby

is just fine heart beat is strong 147 bpm and 7 weeks and 1 day old.

>

> I was put on one weeks rest, no sex, no heavy lifting, no stress..

>

> Thank you for the prayers and well wishes.

>

> I guess it's just a waiting game now.

> Chrystal

>

> Check out my webpages:

> http://chrystallife.50megs.com

> http://members.ebay.com/aboutme/seeswensonauctions/

>

>

>

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  • 1 month later...

Hi Angie! I don't have any advice, but I would just say to stay in bed like the

doctor said. I know how miserable that is as I had to do it with my first

pregnancy; but what was worse is that I ended up haivng to do one month of it in

the hospital. I was respondig to your post because I have noticed your email

address with the nc. does that mean that you are from nc? if so, where? i was

just curious, as i am from nc and wondered if we were close enough that we had

the same surgeons. i was just wondering how yours dealt with your pregnancy. i

am only 5 1/2 weeks and go to see my surgeon tuesday. i guess this will be an

in terestng visit. Well, good luck to you and your twins!

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Hi Angie, I ended up having my twins at 34 weeks. Try to kekep those littel

darlings in for as long as possible so they have time to develope the lungs

more. If your contractions get worse you should call you doc back. Maybe they

can

give you something to stop them, you do not want to end up in active labor

now, so call the doc to be safe. At 34 weeks my boys ended up ebing 3#10 and

4#10 and the stayed less that 2 weeks in the hospital, THANK GOD :) I wish you

the best for you and those babies.

HUGS, ROBIN, NY

Age- 41

Due Date- #4 July 27th, 2004

OPEN RNY

10-18-02

378/246/170???

DR.EDWARD HIXSON

SARANAC LAKE, NY

Mom to:

&

7 1/2 year twin boys and

Madison age 5

Miscarraige August 2001

Miscarraige August 2003

Married to Pup:

15 years

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  • 4 weeks later...

I'm sorry Kris. I am sending you some baby dust. That 2nd line will come and

stay next time.

God Bless,

Robin, NorthEastern, NY

EDD- July 27th, 2004

Mommy to:

&

(twin boys 7 1/2),

Madison, daughter, 5 years and

Wife to Pup 15 years (October 31, 1988)

Gastric Bypass Surgery-

October 18th 2002

Start-378, current- 246(pregnant)

goal 170 after baby :)

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Kris,

I am so sorry to hear this news. Best wishes next month. I am sending lots of

baby dust your way.

DE

EDD#2 8/2/04

" nolongerhuge " nolongerhuge@...> wrote:

>Well, not pregnant.  That faint second line was apparently a fluke.  

>I started my monthly this morning.  But thats ok, Its not like I

>can't try again, right, and this time hopefully I won't have to go

>into the emergancy room, have lots of drugs injected into me, or for

>me to swallow, and no xrays.  :)  Just thought I would update though.

>

>Kris

>

>

--

Have a great day!!

__________________________________________________________________

Introducing the New Netscape Internet Service.

Only $9.95 a month -- Sign up today at http://isp.netscape.com/register

Netscape. Just the Net You Need.

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Tricia,

I am so glad that everything turned out okay after all that. Rest is your best

thing right now and please keep us posted on how you and the babies are doing.

DE

EDD#2 8/2/04

" Tricia " eeyore48192@...> wrote:

>Well, I went to the Dr today.  If you remember, I had bleeding on Thursday.  I

am 15 weeks pg with twins.  I was in the hospital all day.  They said that my

cervix was open and sent me home.  Got in to see my Dr today and he said that my

cervix is closed but does not know where the blood is coming from.  I was

bleeding on Sunday too.  And brown mucuos blood today.  He said that that was

old blood.  So he put me on bed rest for 2 weeks until I see him again which is

March 8.  

>The babies heartbeats were 162 and 165.  He will schedule an U/S when I go

back.  Also says that my cervix is not short?  That is a good thing he said.

>Well, that is it right now.

>Tricia

>

>

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Thank you ,

I am trying to rest, but I keep thinking of things that I could be doing! I

guess I am just a Mom.

(my 3yo) wants to go to my friends house all the time because I am

boring! I was so sad!!

oh well,

Thank you again.

Tricia

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  • 3 weeks later...
Guest guest

Angie,

Prayers are going up for you and your boys that they decide to come into the

world soon, and of course safe and sound. :)

Axelrod

Update

Hey ya'll,

Just an update from todays doctor visit. The babies are doing fine. I am

steadily growing weekly gaining 5 lbs a week now for the last 3 weeks!!!!

Shezzzz!

Putting me at a weight gain of 27 lbs so far. The babies are 5 lbs each they

say. I am now 3 full cent. dialated and over 50% effaced. I was having some

pretty painful contractions today...... The doc sent me to labor & delivery

for

over half the day to see if the boys were gonna decide to come today or

not.... and guess what..... it was NOT! :( I am soo soo ready. I hurt from

head to

toe. They are such busy little boys .... Anyways, Thats the update for this

week...

I'll keep ya'll posted!

Angie & Tim

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Guest guest

Angie,

Prayers are going up for you and your boys that they decide to come into the

world soon, and of course safe and sound. :)

Axelrod

Update

Hey ya'll,

Just an update from todays doctor visit. The babies are doing fine. I am

steadily growing weekly gaining 5 lbs a week now for the last 3 weeks!!!!

Shezzzz!

Putting me at a weight gain of 27 lbs so far. The babies are 5 lbs each they

say. I am now 3 full cent. dialated and over 50% effaced. I was having some

pretty painful contractions today...... The doc sent me to labor & delivery

for

over half the day to see if the boys were gonna decide to come today or

not.... and guess what..... it was NOT! :( I am soo soo ready. I hurt from

head to

toe. They are such busy little boys .... Anyways, Thats the update for this

week...

I'll keep ya'll posted!

Angie & Tim

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