Leah's big IEP coming up

[Guest guest]

Hi all:

I know we've addressed this in the past; but....Leah is having her three

year IEP coming up on Thursday morning, January 15th. All her

therapists, the special ed school supervisor, a regular kindergarden

teacher, our case worker, her special ed preschool teachers. Big group

of people and then there's and Me. So the big question is what

should and I be aware of to prepare ourselves for this meeting.

She is being placed in kindergarden next school year so I want all the

i's dotted and t's crossed. So to say. I will be addressing the issue

of playground, heat issues with that. But I want an aide to be able to

carry her out of her kidkart and slide down a slide with her. We just

got done building an accessible playground here in Appleton because none

of the schools have equipment for kids with disabilities (well except

the oversized chair with no straps) and Leah loves to play and I don't

expect her play is to just be pushed in her kidkart especially when she

sees the slide and will point to go and play. Anyway you pros out there

guide me in the right direction. Trying to get all my thoughts,

questions together so we can present Leah's issues well and about mito

and our concerns. Leah has made many neat gains this year which is

great; but I don't want them to forget what mito is and how it affects

her and what may happen down the road; right now she is not regressing

and her disease has not progressed (which we are extremely happy about)

but I know an illness can change that. We do have a person here in town

that can come and be an advocate for us as a parent and charges whatever

we can give afford to give her or donate to a charity in her name.

Would it be wise to see if she can make it to the meeting to have her

come along? Well enough said. Will wait and see what you all come up

with for questions for us to think about and advice. I, or I should say

we thank you in advance for all your wise words.

Nerenhausen

mom to Leah