Re: Return to Camp Baughman ROSE

[Guest guest]

Kim, I appreciate your concern. I've thought about that too, as I

know that you and & probably others had disastrous relapses

after stopping treatment. What you are saying about tests for TNF

makes sense. Baughman didn't mention anything about that, and I

didn't think to ask him. I think I'll email him & ask if there is

any research going on regarding that.

For me, the Neurontin was very helpful with the neuropathic pain, but

after crashing my car into the telephone pole last year, I had to go

off it. My symptoms got much worse & that's why I started the

Lyrica. I was already taking Cymbalta, which I will continue. Just

cutting down the Lyrica is already leading to more pain--mostly jolts

of electric shocks in my feet. I hope it doesn't get a lot worse

when I stop it completely.

Well, Kimmy, take care of yourself & try not to worry too much about

me. Okay? BTW, I think it's funny that you used the term " ducks in

a row. " Just this morning I said that to Sam & she asked what it

meant. Great minds think alike, huh? Rose

>

> dear rose

>

> interesting approach to stop the meds to see if there is active

disease.

> isnt it awful that there isnt a better way than that? I have been

wodnering

> lately with all this new research about sarc and the process of

the formation

> of hte granulomas and all, sorry im tired now and wont be so

informative or

> elequont, but why arent there or are there?? , some new blood

tests to show

> disease activity with the tnf activity or whatever that remicade

blocks for

> example. i mean it just seems if they know so much more about

how sarc

> granulomas form now and the disease process itself, there simply

MUST BE a way to

> tell if the disease is active or not thats more predictive than

ace levels and

> such.

>

> so anyone have any info on that cause i surely havent had much luck

looking

> it all up. or deiphering what i am reading is probably more the

problem.

>

> and now on to the subject of cytoxan and remicade not working on

old damage.

> i know he says that remicade will not work on old damage. but i

thought

> cytoxan would, that it crossed the blood brain barrier and would

help with " old

> damage " . i will have to pay attention to the tape again. or ask

the

> question again. i am probably confused as usual and nothing

making sense.

>

> your plan sounds like a good one and it sounds like you have all

your ducks

> in a row in a way that makes sense for trying to decide whther or

not to go

> onto another stronger medication and how to decipher if its maybe

drug side

> effects or disease activity thats causing the troubles your

experiencing and

> prove it to your drs and insurance people so you can get approval

for the more

> pricey meds when the time comes i guess.

>

> keep in mind when tapering the neurontin at least, i always felt

like

> symptoms got worse before getting better. i did feel that drug

made alot of my

> neuro symptoms like burning , electric feelings very bad...and i

was right... i

> hated that medication. but most people have no troubel with it.

i knew it

> was the med though cause when they would increase it to make the

trouble go

> away it would get worse instead of better. when i decreased it

though to get

> off, i also went through troubles of worsening symptoms through

each decrease,

> if i stuck with it though it got better, and when i was off the

drug the

> symptoms went away. i had had these symptoms before being on the

neurontin,

> from teh sarc.. then they went away with treatment, but then

they came back

> and the drs kept increasing the neurontin and the symptons got

worse each

> time, i just felt it was from teh neurontin. those burning

electric feelings

> went away for a long time.

>

> but rose be careful coming off the meds, if you start feeling

symptoms you

> get to the dr....and get back on the meds.

>

> why isnt there a way by now to tell if our disease is active or not

without

> putting us at risk? this just isnt really okay...... is it?

>

> love to you and worried for you......

> kim

>

[Guest guest]

Kim, I appreciate your concern. I've thought about that too, as I

know that you and & probably others had disastrous relapses

after stopping treatment. What you are saying about tests for TNF

makes sense. Baughman didn't mention anything about that, and I

didn't think to ask him. I think I'll email him & ask if there is

any research going on regarding that.

For me, the Neurontin was very helpful with the neuropathic pain, but

after crashing my car into the telephone pole last year, I had to go

off it. My symptoms got much worse & that's why I started the

Lyrica. I was already taking Cymbalta, which I will continue. Just

cutting down the Lyrica is already leading to more pain--mostly jolts

of electric shocks in my feet. I hope it doesn't get a lot worse

when I stop it completely.

Well, Kimmy, take care of yourself & try not to worry too much about

me. Okay? BTW, I think it's funny that you used the term " ducks in

a row. " Just this morning I said that to Sam & she asked what it

meant. Great minds think alike, huh? Rose

>

> dear rose

>

> interesting approach to stop the meds to see if there is active

disease.

> isnt it awful that there isnt a better way than that? I have been

wodnering

> lately with all this new research about sarc and the process of

the formation

> of hte granulomas and all, sorry im tired now and wont be so

informative or

> elequont, but why arent there or are there?? , some new blood

tests to show

> disease activity with the tnf activity or whatever that remicade

blocks for

> example. i mean it just seems if they know so much more about

how sarc

> granulomas form now and the disease process itself, there simply

MUST BE a way to

> tell if the disease is active or not thats more predictive than

ace levels and

> such.

>

> so anyone have any info on that cause i surely havent had much luck

looking

> it all up. or deiphering what i am reading is probably more the

problem.

>

> and now on to the subject of cytoxan and remicade not working on

old damage.

> i know he says that remicade will not work on old damage. but i

thought

> cytoxan would, that it crossed the blood brain barrier and would

help with " old

> damage " . i will have to pay attention to the tape again. or ask

the

> question again. i am probably confused as usual and nothing

making sense.

>

> your plan sounds like a good one and it sounds like you have all

your ducks

> in a row in a way that makes sense for trying to decide whther or

not to go

> onto another stronger medication and how to decipher if its maybe

drug side

> effects or disease activity thats causing the troubles your

experiencing and

> prove it to your drs and insurance people so you can get approval

for the more

> pricey meds when the time comes i guess.

>

> keep in mind when tapering the neurontin at least, i always felt

like

> symptoms got worse before getting better. i did feel that drug

made alot of my

> neuro symptoms like burning , electric feelings very bad...and i

was right... i

> hated that medication. but most people have no troubel with it.

i knew it

> was the med though cause when they would increase it to make the

trouble go

> away it would get worse instead of better. when i decreased it

though to get

> off, i also went through troubles of worsening symptoms through

each decrease,

> if i stuck with it though it got better, and when i was off the

drug the

> symptoms went away. i had had these symptoms before being on the

neurontin,

> from teh sarc.. then they went away with treatment, but then

they came back

> and the drs kept increasing the neurontin and the symptons got

worse each

> time, i just felt it was from teh neurontin. those burning

electric feelings

> went away for a long time.

>

> but rose be careful coming off the meds, if you start feeling

symptoms you

> get to the dr....and get back on the meds.

>

> why isnt there a way by now to tell if our disease is active or not

without

> putting us at risk? this just isnt really okay...... is it?

>

> love to you and worried for you......

> kim

>

[Guest guest]

Dear Rose

I actually got kind of blamed for my own troubles because of stopping meds, which i did with my neuros aok's at one point and was off them for short time without cover by soemthing else. was told that we can never expect to be off meds at all. so i do worry about you, each case is very very different i know and perhaps it all depends on the past involvment youve had and whatnot, or perhaps they just speak in hindsight, or make it all up as they go, or you know when they leave the room sometimes like they are going to check on something, maybe they are really going to use one of those dartboard chart things like your treatment chart.... kind of like ooooohhh okay what do i say this time? it starting to kind of seem that way, i know its only because we dont have the full picture of each patients history and complications and all the treatments they have been through etc, but its all kind of like russian roulette in the end i think, and i know how confused i get, popel keep pointing it out, or politely not pointing it out, but i can tell by their stunned silence when i say things or deny things. and its the silence that lets me know i am actually really confused and wrong now, not like before when i was convinced and knew i was the one in the right and would argue my point. theres a difference now, its like they are so stunned and shocked by what i am saying or forgetting and confusing that they are embarrassed for me and at a loss for words, go totally silent. its scary.

well maybe tracie answered our question about the tnf testing in anotehr post, she said something about tnf proteins. i might be confused rose. looooool. im not going to look it up again. i too am going to write for answers on that one but feel i have reached my limit on freebies and am just tired of the whole subject and trying to find my own answers. i dont want to look for answers anymore for a while. it seems someone else should know them or be telling them to me. shouldnt they? if htey are out there i mean.

the topomax at very low doses was really helpful with neuropathic pain and weakness especially. and i didnt have my major problems iwth it until i reached pretty major doses. i thought it was a miracle actually it worked so well for the weakness and pain i was having. just a thought. that was only on 50mg a day i guess. again there could be confusion.

i dont know what lyrica is.

i just cant get away from this thought..... of stopping whatever disease activity is causing the symptoms in the first place instead of just treating symptoms..... and when to decide to stop trying to do the first??? or when to know that there is no active disease like they are trying to decide for you now..... its all so confuzzling, and i think it should be explained better to patients so we are not left pondering .... i think it needs written down clearly, like i have to hve my scripts written down in 2nd grade type directions so i can follow them clearly. its not too much to ask is it? again that confusion setting in possibly? maybe this has all been explained many times over and im not remembering it .

i guess stopping meds can cause some thing to seem to flare up, but sometimes they will die down after a bit of time off the med or at the new dose, so if you have decided to come down, have some patience.... again that confusion how do you know wahts from a flare up or whats from coming off meds and is there some printed guidlines for this? in that simple 2nd grade type directions ???

having all your ducks in a row .... thats a good thing i guess. i wish icould get mine there. you asked about the kids before, they are doing alright, i miss them terribly and would give anything to see them. there birthday is this weekend, i was searching for a way to order a cake and soem cookies on line to send them.... i found the cookies but they want 15$ a dozen hows that for ducks? can you imagine? i cant ifnd a way to do a cake at all. i just want to go home , it seems like i should be able to drive right there for the weekend or something. i cant imagine not spending their birthday with them. i do not have my ducks in a row on this one. i didnt get things ordered. and im getting all confused. i wanted to have a party delivered to them. and the presents of course all wrapped. but i havent got it done. im all behind and so upset with myself over it. im going ot dispapoint them. i need oen of those startrec beam me scotty things to get from there to here. anyone want to send a couple dozen peanut butter cookies and snookerdoodles to columbus ? what a great business idea, the money they must make on line at those college gift package businesses. 15$ for a dozen little cookies, good grief. shame on them. and way to go at the same time i guess.

well im going to get my z's now rose dear. im way behind for the day, and its already night time here. and im freezing too, my feet are actually bright blue. look like one of those rasberry popcicles.

take care

kim

[Guest guest]

>

> Dear Rose

>Kim, everything you've said in this message makes sense. Maybe we

in the sarc family can understand each other when " outsiders " can't;

like a code. I don't think even the guys like Baughman really have

the answers. Well, Trevor does. What Baughman suggested makes sense

to me, but even if it appears that I'm not having active disease & my

symptoms are from scar tissue, I'm not comfortable going very long

without some kind of treatment, at least the MTX. I know you were

doing okay, then Wham! And told me that she went along for

several years, not totally healthy, but getting by okay, then Wham!

I think Quint had the same experience. My tentative plan at this

point is to give it a few months & even if I don't start having

obviously more severe symptoms, talk to my docs & Baughman about

resuming the MTX, but injections to minimize the liver toxicity. I

don't mind shots. I could teach Sam to give them; she'd probably

love it! Pop Granny in the fanny every week!

Well, like Little Orphan Annie, there's always tomorrow. Or next

week. Actually, tomorrow I'm getting some injections in the sacro-

iliac joints (hips) to see if it helps the terrible cramping I get if

I stand up more than 3-4 minutes. And today I got my taxes done.

Bad, bad news. Because I didn't get the lump sum from SSDI returned

to my private LTD company by the end of 2005, it showed up as taxable

income. That raised my total income level so high that even my high

unreimbursed medical expenses weren't enough to itemize. I couldn't

take Sam as an exemption this year because she was in the girls

school for 9 months. And I had never changed the withholding on my

LTD to take out more federal taxes & also to take out state taxes,

which they weren't taking out any. In Indiana we have to pay state &

local/county taxes. But our sales tax is only 6%, compared to 8% in

Texas, so it probably all evens up in the end. But anyway, I still

owe $700 fed. taxes for last year & $1300 to the state. And now, for

2005, I owe another $9300 to IRS & $900 to the state. I actually

ignored all the letters from the state last year until I got a

warrant from the Sheriff's Dept. delivered to my door. I'm still

trying to figure out the Medicare drug plan & owe about $8000 to

doctors & hospitals. I would give up control of my finances to a

Power of Attorney if there were someone I trusted to do it.

Well, on a brighter note, if you give me the twins' address, I will

send them some cookies & a party kit. It won't be the same as from

you, but you can tell them it's from their Hoowaiti Cousin Rose, not

to be confused with Cousin Itt. But send the info tomorrow, so I can

get the cookies & stuff mailed by Wed! Really, let's do this! Sam

will help me. Love, Cracklin' Rosie

[Guest guest]

dear rose

im sorry to hear aboiut your tax troubles. i think i would make a mess of things of they were complicated. i had to try to and do the kids taxes for them this past week, with the EZ form they scanned allthe forms here and i downloaded the tax forms. then made them sit online and fill in the blanks while my 14 year old here on this side made sure i was making sense. of course i made sure it was a "good time" when we were doing it. i think the kids finally got it that it was really an EZ form and they didnt need me to really do anything for them on it. except maybe figure out that yeah someone else is claiming them as dependent, they were confused about htat. why i dont know. cause clearly they pay all their own bills right? looool. the scanner was certainly a good christmas gift to give them, i dont know what we would be doing without it. well it was just the terms and not understanding them i guess. thats alot to owe and must be a stress, do they not have programs for working it all out? or would being on disability now not help somehow? i honestly have no idea, just thinking. wish there was a big magic wand ... hey like those clorox erasers to erase stains.....just erase your troubles.... im needing to find an attorney i trust here too, not for finanical concerns as much as simple things to handle when and if the time comes. i keep procrastinating this issue because i just dont know how to find someone to trust who would keep their loyalties to me instead of my husband. but it needs resolved. just to even get letters or things to people or take of my personal belongings and my personal wishes. i thought i had all these things worked out, but i have since strongly changed my mind about my wihses and i know that nothing will go the way i want it to here be it tomorrow or twenty years from now. its an issue. financially and medically speaking even finding someone to turn power of attorney over to is a dificult issue if you havent had an attorney relationship for while, how do you trust the person i guess is the issue. and i always think putting things like this in a family members hand is asking for trouble among the family, putting someone in a tough spot, i would rather it be a non partial third party. well im rambling and rolling rollin grolling rolling,

you and tracie are dears to offer the birthday cookies/kits .... ive written you off privetaly, youve just touched my heart to do so, its truely one of the kindest things anyone could do for me right now, or ever honestly. i keep imagining being able to surprise them and show up at the apt.....with all the makings of a wonderful birthday. but thats not going to happen, except in fantasy land. thank you for even thinking of doing this for me, the thought is hoenstly enough to touch me very deeply and mkae me very happy.

i hit my head again earlier today and it is hurting so bad ever since i cant stand it. , its almost midnight here, im off to bed, take care

i say its time for a ...... 4 wheeler

tkae care and love,

kim

[Guest guest]

dear rose

im sorry to hear aboiut your tax troubles. i think i would make a mess of things of they were complicated. i had to try to and do the kids taxes for them this past week, with the EZ form they scanned allthe forms here and i downloaded the tax forms. then made them sit online and fill in the blanks while my 14 year old here on this side made sure i was making sense. of course i made sure it was a "good time" when we were doing it. i think the kids finally got it that it was really an EZ form and they didnt need me to really do anything for them on it. except maybe figure out that yeah someone else is claiming them as dependent, they were confused about htat. why i dont know. cause clearly they pay all their own bills right? looool. the scanner was certainly a good christmas gift to give them, i dont know what we would be doing without it. well it was just the terms and not understanding them i guess. thats alot to owe and must be a stress, do they not have programs for working it all out? or would being on disability now not help somehow? i honestly have no idea, just thinking. wish there was a big magic wand ... hey like those clorox erasers to erase stains.....just erase your troubles.... im needing to find an attorney i trust here too, not for finanical concerns as much as simple things to handle when and if the time comes. i keep procrastinating this issue because i just dont know how to find someone to trust who would keep their loyalties to me instead of my husband. but it needs resolved. just to even get letters or things to people or take of my personal belongings and my personal wishes. i thought i had all these things worked out, but i have since strongly changed my mind about my wihses and i know that nothing will go the way i want it to here be it tomorrow or twenty years from now. its an issue. financially and medically speaking even finding someone to turn power of attorney over to is a dificult issue if you havent had an attorney relationship for while, how do you trust the person i guess is the issue. and i always think putting things like this in a family members hand is asking for trouble among the family, putting someone in a tough spot, i would rather it be a non partial third party. well im rambling and rolling rollin grolling rolling,

you and tracie are dears to offer the birthday cookies/kits .... ive written you off privetaly, youve just touched my heart to do so, its truely one of the kindest things anyone could do for me right now, or ever honestly. i keep imagining being able to surprise them and show up at the apt.....with all the makings of a wonderful birthday. but thats not going to happen, except in fantasy land. thank you for even thinking of doing this for me, the thought is hoenstly enough to touch me very deeply and mkae me very happy.

i hit my head again earlier today and it is hurting so bad ever since i cant stand it. , its almost midnight here, im off to bed, take care

i say its time for a ...... 4 wheeler

tkae care and love,

kim

[Guest guest]

Regarding taxes, my kids are both using Turbo Tax this year. If you are

somewhat computer literate it is very easy. It asks you questions and

you answer. The only thing is that you have to have all of your info in

front of you when you do it. Turbo tax always guarantees your result

and your return is approved by the IRS before it is accepted. Not it

wouldn't behoove you to use it if you use the 1040 ez but if you do long

form or you itemize it is a lot cheaper than having your taxes prepared.

It will also do your state from what I understand. Of course, we still

pay someone to do ours because my husband is not computer literate and

my brain cannot be trusted but for those of you who have someone who can

help you, this is the deal.

I hope everyone is well and having a pain free day. Take care.

Terri G.

>

> dear rose

>

> im sorry to hear aboiut your tax troubles. i think i would make a mess

of

> things of they were complicated. i had to try to and do the kids taxes

for

> them this past week, with the EZ form they scanned allthe forms here

and i

> downloaded the tax forms. then made them sit online and fill in the

blanks while

> my 14 year old here on this side made sure i was making sense. of

course i

> made sure it was a " good time " when we were doing it. i think the kids

> finally got it that it was really an EZ form and they didnt need me to

really do

> anything for them on it. except maybe figure out that yeah someone

else is

> claiming them as dependent, they were confused about htat. why i dont

know.

> cause clearly they pay all their own bills right? looool. the scanner

was

> certainly a good christmas gift to give them, i dont know what we

would be doing

> without it. well it was just the terms and not understanding them i

guess.

> thats alot to owe and must be a stress, do they not have programs for

working

> it all out? or would being on disability now not help somehow? i

honestly

> have no idea, just thinking. wish there was a big magic wand ... hey

like

> those clorox erasers to erase stains.....just erase your troubles....

im

> needing to find an attorney i trust here too, not for finanical

concerns as much as

> simple things to handle when and if the time comes. i keep

procrastinating

> this issue because i just dont know how to find someone to trust who

would

> keep their loyalties to me instead of my husband. but it needs

resolved.

> just to even get letters or things to people or take of my personal

belongings

> and my personal wishes. i thought i had all these things worked out,

but i

> have since strongly changed my mind about my wihses and i know that

nothing

> will go the way i want it to here be it tomorrow or twenty years from

now.

> its an issue. financially and medically speaking even finding someone

to turn

> power of attorney over to is a dificult issue if you havent had an

attorney

> relationship for while, how do you trust the person i guess is the

issue.

> and i always think putting things like this in a family members hand

is asking

> for trouble among the family, putting someone in a tough spot, i would

> rather it be a non partial third party. well im rambling and rolling

rollin

> grolling rolling,

>

>

> you and tracie are dears to offer the birthday cookies/kits .... ive

> written you off privetaly, youve just touched my heart to do so, its

truely one of

> the kindest things anyone could do for me right now, or ever honestly.

i

> keep imagining being able to surprise them and show up at the

apt.....with all

> the makings of a wonderful birthday. but thats not going to happen,

except in

> fantasy land. thank you for even thinking of doing this for me, the

thought

> is hoenstly enough to touch me very deeply and mkae me very happy.

>

> i hit my head again earlier today and it is hurting so bad ever since

i cant

> stand it. , its almost midnight here, im off to bed, take care

>

> i say its time for a ...... 4 wheeler

>

> tkae care and love,

> kim

>

[Guest guest]

Hello Rose and everyone,

This is Jan i'm sure most all of the older members remember me, well i'm back and glad to be here. I was out of comission for a long while. I now have another puter the old one died and before that well I was just too sick and had way too much personal stuff going on.

I have a new grand baby......Corrina finally had a baby boy that will be a year old next month.....

I'm looking forward to catching up with everyone and getting to know the new members as well.

I truely missed being a part of this group and I really hope that i'm warmly welcomed back into the family here.

It will take me some time to catch up this old brain aint what it used to be......<sigh> but i'll give it a whirl.

Hugs, Jan

[Guest guest]

Terri, I got mine done free this year. There is a program where retired CPA's volunteer their time & a local church provides the space. I usually go to H & R Block where one of my friends works, but this year I couldn't afford it. Not so many years ago, I did my own, even with itemized deductions. I used Turbo Tax once, but it seemed like more work than just doing it in my head. Of course, that's when my brain was hitting on all cylinders. But I know a lot of people who love it.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Return to Camp Baughman ROSEDate: Wed, 22 Feb 2006 13:52:08 -0000Regarding taxes, my kids are both using Turbo Tax this year. If you aresomewhat computer literate it is very easy. It asks you questions andyou answer. The only thing is that you have to have all of your info infront of you when you do it. Turbo tax always guarantees your resultand your return is approved by the IRS before it is accepted. Not itwouldn't behoove you to use it if you use the 1040 ez but if you do longform or you itemize it is a lot cheaper than having your taxes prepared.It will also do your state from what I understand. Of course, we stillpay someone to do ours because my husband is not computer literate andmy brain cannot be trusted but for those of you who have someone who canhelp you, this is the deal.I hope everyone is well and having a pain free day. Take care.Terri G.>> dear rose>> im sorry to hear aboiut your tax troubles. i think i would make a messof> things of they were complicated. i had to try to and do the kids taxesfor> them this past week, with the EZ form they scanned allthe forms hereand i> downloaded the tax forms. then made them sit online and fill in theblanks while> my 14 year old here on this side made sure i was making sense. ofcourse i> made sure it was a "good time" when we were doing it. i think the kids> finally got it that it was really an EZ form and they didnt need me toreally do> anything for them on it. except maybe figure out that yeah someoneelse is> claiming them as dependent, they were confused about htat. why i dontknow.> cause clearly they pay all their own bills right? looool. the scannerwas> certainly a good christmas gift to give them, i dont know what wewould be doing> without it. well it was just the terms and not understanding them iguess.> thats alot to owe and must be a stress, do they not have programs forworking> it all out? or would being on disability now not help somehow? ihonestly> have no idea, just thinking. wish there was a big magic wand ... heylike> those clorox erasers to erase stains.....just erase your troubles....im> needing to find an attorney i trust here too, not for finanicalconcerns as much as> simple things to handle when and if the time comes. i keepprocrastinating> this issue because i just dont know how to find someone to trust whowould> keep their loyalties to me instead of my husband. but it needsresolved.> just to even get letters or things to people or take of my personalbelongings> and my personal wishes. i thought i had all these things worked out,but i> have since strongly changed my mind about my wihses and i know thatnothing> will go the way i want it to here be it tomorrow or twenty years fromnow.> its an issue. financially and medically speaking even finding someoneto turn> power of attorney over to is a dificult issue if you havent had anattorney> relationship for while, how do you trust the person i guess is theissue.> and i always think putting things like this in a family members handis asking> for trouble among the family, putting someone in a tough spot, i would> rather it be a non partial third party. well im rambling and rollingrollin> grolling rolling,>>> you and tracie are dears to offer the birthday cookies/kits .... ive> written you off privetaly, youve just touched my heart to do so, itstruely one of> the kindest things anyone could do for me right now, or ever honestly.i> keep imagining being able to surprise them and show up at theapt.....with all> the makings of a wonderful birthday. but thats not going to happen,except in> fantasy land. thank you for even thinking of doing this for me, thethought> is hoenstly enough to touch me very deeply and mkae me very happy.>> i hit my head again earlier today and it is hurting so bad ever sincei cant> stand it. , its almost midnight here, im off to bed, take care>> i say its time for a ...... 4 wheeler>> tkae care and love,> kim>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hi. I have used Turbo Tax too. It is fairly simple to use . Walks you right through even when do a 1040 (and I'm not as good as I once was with that type of paperwork and such!). As Terri says it will let you know if there is a mistake made so you can fix the error. And it's a hell of a lot cheaper than going to H & R Block. Debbiemosaicgirl1 wrote: Regarding taxes, my kids are both using Turbo Tax this year. If you aresomewhat computer literate it is very easy. It asks you questions andyou answer. The only thing is that you have to have all of your info infront of you when you do it. Turbo tax always guarantees your resultand your return is approved by the IRS before it is accepted. Not itwouldn't behoove you to

use it if you use the 1040 ez but if you do longform or you itemize it is a lot cheaper than having your taxes prepared.It will also do your state from what I understand. Of course, we stillpay someone to do ours because my husband is not computer literate andmy brain cannot be trusted but for those of you who have someone who canhelp you, this is the deal.I hope everyone is well and having a pain free day. Take care.Terri G.>> dear rose>> im sorry to hear aboiut your tax troubles. i think i would make a messof> things of they were complicated. i had to try to and do the kids taxesfor> them this past week, with the EZ form they scanned allthe forms hereand i> downloaded the tax forms. then made them sit online and fill in theblanks while> my 14 year old here on this side made sure i was making sense.

ofcourse i> made sure it was a "good time" when we were doing it. i think the kids> finally got it that it was really an EZ form and they didnt need me toreally do> anything for them on it. except maybe figure out that yeah someoneelse is> claiming them as dependent, they were confused about htat. why i dontknow.> cause clearly they pay all their own bills right? looool. the scannerwas> certainly a good christmas gift to give them, i dont know what wewould be doing> without it. well it was just the terms and not understanding them iguess.> thats alot to owe and must be a stress, do they not have programs forworking> it all out? or would being on disability now not help somehow? ihonestly> have no idea, just thinking. wish there was a big magic wand ... heylike> those clorox erasers to erase stains.....just erase your troubles....im> needing to find an

attorney i trust here too, not for finanicalconcerns as much as> simple things to handle when and if the time comes. i keepprocrastinating> this issue because i just dont know how to find someone to trust whowould> keep their loyalties to me instead of my husband. but it needsresolved.> just to even get letters or things to people or take of my personalbelongings> and my personal wishes. i thought i had all these things worked out,but i> have since strongly changed my mind about my wihses and i know thatnothing> will go the way i want it to here be it tomorrow or twenty years fromnow.> its an issue. financially and medically speaking even finding someoneto turn> power of attorney over to is a dificult issue if you havent had anattorney> relationship for while, how do you trust the person i guess is theissue.> and i always think putting things like this in a family

members handis asking> for trouble among the family, putting someone in a tough spot, i would> rather it be a non partial third party. well im rambling and rollingrollin> grolling rolling,>>> you and tracie are dears to offer the birthday cookies/kits .... ive> written you off privetaly, youve just touched my heart to do so, itstruely one of> the kindest things anyone could do for me right now, or ever honestly.i> keep imagining being able to surprise them and show up at theapt.....with all> the makings of a wonderful birthday. but thats not going to happen,except in> fantasy land. thank you for even thinking of doing this for me, thethought> is hoenstly enough to touch me very deeply and mkae me very happy.>> i hit my head again earlier today and it is hurting so bad ever sincei cant> stand it. , its almost midnight here, im off to bed, take

care>> i say its time for a ...... 4 wheeler>> tkae care and love,> kim>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Jan, welcome back! And I'm so glad Comina got her baby. Was this the pregnancy with all the bleeding? You must so thrilled. Are you getting to spend much time with him?

Ramblin' Rose

Moderator

From: Jbovi63@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Return to Camp Baughman ROSEDate: Wed, 22 Feb 2006 14:45:45 ESTHello Rose and everyone,This is Jan i'm sure most all of the older members remember me, well i'm back and glad to be here. I was out of comission for a long while. I now have another puter the old one died and before that well I was just too sick and had way too much personal stuff going on.I have a new grand baby......Corrina finally had a baby boy that will be a year old next month.....I'm looking forward to catching up with everyone and getting to know the new members as well.I truely missed being a part of this group and I really hope that i'm warmly welcomed back into the family here.It will take me some time to catch up this old brain aint what it used to be......<sigh> but i'll give it a whirl.Hugs, Jan ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Jan, welcome back! And I'm so glad Comina got her baby. Was this the pregnancy with all the bleeding? You must so thrilled. Are you getting to spend much time with him?

Ramblin' Rose

Moderator

From: Jbovi63@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Return to Camp Baughman ROSEDate: Wed, 22 Feb 2006 14:45:45 ESTHello Rose and everyone,This is Jan i'm sure most all of the older members remember me, well i'm back and glad to be here. I was out of comission for a long while. I now have another puter the old one died and before that well I was just too sick and had way too much personal stuff going on.I have a new grand baby......Corrina finally had a baby boy that will be a year old next month.....I'm looking forward to catching up with everyone and getting to know the new members as well.I truely missed being a part of this group and I really hope that i'm warmly welcomed back into the family here.It will take me some time to catch up this old brain aint what it used to be......<sigh> but i'll give it a whirl.Hugs, Jan ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Jan, welcome back! And I'm so glad Comina got her baby. Was this the pregnancy with all the bleeding? You must so thrilled. Are you getting to spend much time with him?

Ramblin' Rose

Moderator

From: Jbovi63@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: Return to Camp Baughman ROSEDate: Wed, 22 Feb 2006 14:45:45 ESTHello Rose and everyone,This is Jan i'm sure most all of the older members remember me, well i'm back and glad to be here. I was out of comission for a long while. I now have another puter the old one died and before that well I was just too sick and had way too much personal stuff going on.I have a new grand baby......Corrina finally had a baby boy that will be a year old next month.....I'm looking forward to catching up with everyone and getting to know the new members as well.I truely missed being a part of this group and I really hope that i'm warmly welcomed back into the family here.It will take me some time to catch up this old brain aint what it used to be......<sigh> but i'll give it a whirl.Hugs, Jan ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

No she lost that one, she had to have some blood test done and found out some hormone levels were off, they gave her the proper hormones and a few months later wala...she was pregnant with NO bleeding or no complications of any kind and had a healthy baby boy and yes I get to spend a lot of time with him because I live with her now.

And thanks its great to be back.

Love,

Jan

[Guest guest]

No she lost that one, she had to have some blood test done and found out some hormone levels were off, they gave her the proper hormones and a few months later wala...she was pregnant with NO bleeding or no complications of any kind and had a healthy baby boy and yes I get to spend a lot of time with him because I live with her now.

And thanks its great to be back.

Love,

Jan

[Guest guest]

No she lost that one, she had to have some blood test done and found out some hormone levels were off, they gave her the proper hormones and a few months later wala...she was pregnant with NO bleeding or no complications of any kind and had a healthy baby boy and yes I get to spend a lot of time with him because I live with her now.

And thanks its great to be back.

Love,

Jan