Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I had ped order a Depakote level and liver enzyme test yesterday.We haven't gotten the results of the Depakote yet but all the liver test were fine. I also called her neuro in Louisville and got an appointment for Feb 5th.The only time he's seen in the last few years was when she was in the hospital last year so I was very surprised to get in so quickly. Now to a new question,how do you travel with a feeding pump? is fed about 15/16 hours daily.I don't see any way we can take her to Louisville and back in 1 day,she just does not tolerate travling. We can call MDA and get a lift to transfer her from her chair taken to a hotel for us ,but I don't know about feeding .My problem is not the pump,we can take her's but she has to be incilined to feed and there is no way we would ever keep her proped up on pillows,it's all we can do to keep her up in the bed..Any suggestions? , Mom to Quote Link to comment Share on other sites More sharing options...
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