Introduction

[Guest guest]

,

I am suffering from hypoglycemia at times and I really have to watch

my sugar intake. If my sugar levels go up even a tad, they shoot

way down low into the 40's and I feel like passing out. I have only

passed out once, but lord, I don't want to have that happen again.

I am trying to avoid sugars period and my hypoglycemia seems to stay

under control doing so. I hope this helps.

Jackie in MI

edd 7/10/04

RNY 2/8/02~

369 to 185

[Guest guest]

> ,

>

> I am suffering from hypoglycemia at times and I really have to

watch

> my sugar intake. If my sugar levels go up even a tad, they shoot

> way down low into the 40's and I feel like passing out. I have

only

> passed out once, but lord, I don't want to have that happen

again.

> I am trying to avoid sugars period and my hypoglycemia seems to

stay

> under control doing so. I hope this helps.

>

> Jackie in MI

> edd 7/10/04

> RNY 2/8/02~

> 369 to 185

[Guest guest]

Jackie,

Where in MI are you?? I am close to Waterford... Northwest Detroit

suburbs...

Sharon

> ,

>

> I am suffering from hypoglycemia at times and I really have to

watch

> my sugar intake. If my sugar levels go up even a tad, they shoot

> way down low into the 40's and I feel like passing out. I have

only

> passed out once, but lord, I don't want to have that happen

again.

> I am trying to avoid sugars period and my hypoglycemia seems to

stay

> under control doing so. I hope this helps.

>

> Jackie in MI

> edd 7/10/04

> RNY 2/8/02~

> 369 to 185

[Guest guest]

Hi Sushma,

I live in Texas also, I'm in Arlington, between Dallas and Ft. Worth......where do you live? If you don't mind my asking.

Introduction

Hello Every OneMy name is Sushma. I am 62 years young. I was diagnosed Lichen Planus/ Lupus (connective tissue) about eight years ago. Before this Ineverheard of Lupus. Now I am retired on disiabilty.After retirenment, I moved to TX( closed to my daughter) from Fl withmy husband. I am enjoying new home.This is my very first time to join a support group. Thank you all forsuch warm welcome.Sushma"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

Hi Sushma,

I live in Texas also, I'm in Arlington, between Dallas and Ft. Worth......where do you live? If you don't mind my asking.

Introduction

Hello Every OneMy name is Sushma. I am 62 years young. I was diagnosed Lichen Planus/ Lupus (connective tissue) about eight years ago. Before this Ineverheard of Lupus. Now I am retired on disiabilty.After retirenment, I moved to TX( closed to my daughter) from Fl withmy husband. I am enjoying new home.This is my very first time to join a support group. Thank you all forsuch warm welcome.Sushma"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

Hi

I live in Houston. About 15 years back we lived in Plano for one year.

Introduction

Hello Every One

My name is Sushma. I am 62 years young. I was diagnosed Lichen

Planus

/ Lupus (connective tissue) about eight years ago. Before this I

never

heard of Lupus. Now I am retired on disiabilty.

After retirenment, I moved to TX( closed to my daughter) from Fl

with

my husband. I am enjoying new home.

This is my very first time to join a support group. Thank you all

for

such warm welcome.

Sushma

" The LUPIES Store " Come check out our store...

http://www.cafepress.com/thelupies

" The LUPIES Web Page "

http://www.itzarion.com/lupusgroup.html

" The LUPIES online photo albums! "

Check out what your fellow Lupies look like...

http://www.picturetrail.com/lupies

[Guest guest]

Hi

I live in Houston. About 15 years back we lived in Plano for one year.

Introduction

Hello Every One

My name is Sushma. I am 62 years young. I was diagnosed Lichen

Planus

/ Lupus (connective tissue) about eight years ago. Before this I

never

heard of Lupus. Now I am retired on disiabilty.

After retirenment, I moved to TX( closed to my daughter) from Fl

with

my husband. I am enjoying new home.

This is my very first time to join a support group. Thank you all

for

such warm welcome.

Sushma

" The LUPIES Store " Come check out our store...

http://www.cafepress.com/thelupies

" The LUPIES Web Page "

http://www.itzarion.com/lupusgroup.html

" The LUPIES online photo albums! "

Check out what your fellow Lupies look like...

http://www.picturetrail.com/lupies

[Guest guest]

Hi

I live in Houston. About 15 years back we lived in Plano for one year.

Introduction

Hello Every One

My name is Sushma. I am 62 years young. I was diagnosed Lichen

Planus

/ Lupus (connective tissue) about eight years ago. Before this I

never

heard of Lupus. Now I am retired on disiabilty.

After retirenment, I moved to TX( closed to my daughter) from Fl

with

my husband. I am enjoying new home.

This is my very first time to join a support group. Thank you all

for

such warm welcome.

Sushma

" The LUPIES Store " Come check out our store...

http://www.cafepress.com/thelupies

" The LUPIES Web Page "

http://www.itzarion.com/lupusgroup.html

" The LUPIES online photo albums! "

Check out what your fellow Lupies look like...

http://www.picturetrail.com/lupies

[Guest guest]

Hi Sushma! I am glad that you found this group first then! My name is a and I have only been dx'd with lupus for about a year now, although I had already been a part of this group to support my sister who has lupus and fibromyalgia as well. I have been married to my husband for 14 years now and we have 4 adopted children and three foster kids that we are in the process of adopting as well as one foster baby that we don't know what is happening yet with. We also may be getting his four year old sister this week so that would make 9 plus my nephew lives here as well so it's a full house. Do you just have the one daughter? We are long distance neighbors as I live in Arizona. We are all looking forward to getting to know you on our group, feel free to jump in at any time,

a

Hello Every OneMy name is Sushma. I am 62 years young. I was diagnosed Lichen Planus/ Lupus (connective tissue) about eight years ago. Before this Ineverheard of Lupus. Now I am retired on disiabilty.After retirenment, I moved to TX( closed to my daughter) from Fl withmy husband. I am enjoying new home.This is my very first time to join a support group. Thank you all forsuch warm welcome.Sushma

[Guest guest]

Hi Sushma! I am glad that you found this group first then! My name is a and I have only been dx'd with lupus for about a year now, although I had already been a part of this group to support my sister who has lupus and fibromyalgia as well. I have been married to my husband for 14 years now and we have 4 adopted children and three foster kids that we are in the process of adopting as well as one foster baby that we don't know what is happening yet with. We also may be getting his four year old sister this week so that would make 9 plus my nephew lives here as well so it's a full house. Do you just have the one daughter? We are long distance neighbors as I live in Arizona. We are all looking forward to getting to know you on our group, feel free to jump in at any time,

a

Hello Every OneMy name is Sushma. I am 62 years young. I was diagnosed Lichen Planus/ Lupus (connective tissue) about eight years ago. Before this Ineverheard of Lupus. Now I am retired on disiabilty.After retirenment, I moved to TX( closed to my daughter) from Fl withmy husband. I am enjoying new home.This is my very first time to join a support group. Thank you all forsuch warm welcome.Sushma

[Guest guest]

Welcome !

I'm so glad you introduced yourself to the group. Feel free to ask

questions.

Glad to have you apart of our support group.

[Guest guest]

,

Welcome to Mitoldies! I am sure you will find this group to be

bunch of caring and supportive people. It has certainly helped me, as I

shared with you at one time. Feel free to ask any questions you have.

Smiles,

a

www.caringbridge.org/ia/kristina

On Tue, 3 May 2005 01:31:13 -0400 Schwenk

heather.schwenk@...> writes:

Hi everyone

I just wanted to introduce myself as I joined this group recently, but

have

been rather quiet. My name is and I am 30 yrs old with suspected

mito. I know several of you already on this list: Ann-Marie, ,

a and Malisa. But for those of you I have not met yet, I am

looking

foward to getting to know you all. You are a very inspiring group:)

I live outside of Philly, between Ann-Maire and Malisa basically.

Besides the mito, I have GI dysmotily, am TPN dependent, anemia,

autonomic

dysfunction, movement disorder, myoclonus, ataxia, thalasemia,

neuropathy,

GERD, immune supression, and the list goes on...... I see Dr Korson in

Boston as well as GI and nephrology docs(Boston) who work closely with Dr

K.

I actually just met Dr K in April for the first time. My local PCP tries

very

hard to manage me but basically admits he really knows nothing about

mito.

So Dr K is going to have to educate him alot about mito I guess:) in the

coming months/years.

Smiles:)

www.caringbridge.org/pa/heather

[Guest guest]

Welcome to the group. I am glad you introduced yourself.

Since there are several new members, I thought I would give a brief

history of myself. I am 62 and have worked up until this past Feb. I

have used a scooter or power wheelchair for 12 years. It took almost

15 years to get a diagnosis. I have many of the typical mito symptoms,

although the progression has slowed down since being on the cocktail.

I have word finding problems, exercise intolerance, myoclonus,

neuropathy, diabetes, motility problems, autonomic issues, Fanconi

syndrome, air hunger, asthma and the list goes on.

I find it interesting that you have thallasemia. My son is a carrier

for B. We aren't sure where he got that. He has mito and Ehler Danlos

syndrome.

Once again, welcome.

laurie

> Welcome !

>

> I'm so glad you introduced yourself to the group. Feel free to ask

> questions.

>

> Glad to have you apart of our support group.

>

>

>

>

>

[Guest guest]

,

Welcome to Mitoldies. This is a great group of people for not only

knowledge, but friendship.

Welcome to all the other newbies that have joined since I popped in. My

life has been a little more hectic than normal for the last month, so I

haven't posted much. In addition to my mito and my daughter's mito, my

husband (no mito) has had double pneumonia, a blood clot in his leg and

then cellulitis in the same leg as the blood clot. Having hubby be laid

up has been more taxing I think than having kids sick.

Anyway, welcome to all of our new members.

Schwenk wrote:

>Hi everyone

>I just wanted to introduce myself as I joined this group recently, but have

>been rather quiet. My name is and I am 30 yrs old with suspected

>mito. I know several of you already on this list: Ann-Marie, ,

>a and Malisa. But for those of you I have not met yet, I am looking

>foward to getting to know you all. You are a very inspiring group:)

>

>I live outside of Philly, between Ann-Maire and Malisa basically.

>Besides the mito, I have GI dysmotily, am TPN dependent, anemia, autonomic

>dysfunction, movement disorder, myoclonus, ataxia, thalasemia, neuropathy,

>GERD, immune supression, and the list goes on...... I see Dr Korson in

>Boston as well as GI and nephrology docs(Boston) who work closely with Dr K.

>I actually just met Dr K in April for the first time. My local PCP tries very

>hard to manage me but basically admits he really knows nothing about mito.

>So Dr K is going to have to educate him alot about mito I guess:) in the

>coming months/years.

>

>Smiles:)

>

>www.caringbridge.org/pa/heather

>

>

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

In a message dated 5/3/2005 7:26:48 AM Eastern Standard Time,

heather.schwenk@... writes:

I just wanted to introduce myself as I joined this group recently, but have

been rather quiet.

Hi ,

So glad you joined. Everyone is great here, so feel free to ask questions as

you think of them. Hope you're feeling okay today.

Malisa

[Guest guest]

Hi , Im Barb and have mito (non-specific), and my son Matt age

8 soon to be 9 was diagnosed at age 2 1/2 with mito, both of us

diagnosed via biopsy. At first they thought Matt had Merff, but we

have now learned since a resent regression that he and i more likely

have MELAS, with complex one, and Matt will be having his second

biospy soon to hopefully confirm this. I live outside of Philly ,

we're near Valley Forge. Matt is seen at St Hosp in Philly and

my neuro is at Hannaman. Im 42 years old, and i have two other

children Jes age 22 and age 19. is now showing soft signs of

mito, which is really saddening me. I just wanted to say welcome and

looking forward to getting to know ya. I'd like to meet you, Ann

Marie, and Malisa (who i talk her ear off on the phone, she is awesome)

for lunch, like i said just talking to Malisa on the phone and posting

back and forth with Ann Marie, has really helped me alot, i felt like

i was the only one in my area that ever heard of this disease, let

alone suffer from it, until i joined this group. And everyone in this

group has been a great help to me and my family, but its nice to know

there are folks so close to home just like me and Matt. Hugs Barb

[Guest guest]

Hello- I've been lurking here for a couple of weeks and have attended

two support groups in Oakland. The knowledge, insight, candor and

caring here is great!

I had my orientation in Richmond on the 5th of this month an am

currently chipping away at that pesky 10%. I'm trying to abide by the

Kaiser 1200 calorie party line and have diligently been using my often

neglected treadmill. FitDay and cardio monitor have been helpful tools…

13 down, 20 to go…

I was a big, but athletic kid. Didn't hit 200lbs until I was 20. I

started my slow and steady path to obesity in my mid 20's. Age and some

injuries have led me to believe this is my best course at age 50+

(Alameda)

Pre-op

[Guest guest]

Welcome

Feel free to ask anything someone here will most likely be able to give you an answer to a question you might have.

Roseheresawho wrote:

Hello- I've been lurking here for a couple of weeks and have attended two support groups in Oakland. The knowledge, insight, candor and caring here is great!I had my orientation in Richmond on the 5th of this month an am currently chipping away at that pesky 10%. I'm trying to abide by the Kaiser 1200 calorie party line and have diligently been using my often neglected treadmill. FitDay and cardio monitor have been helpful tools…13 down, 20 to go… I was a big, but athletic kid. Didn't hit 200lbs until I was 20. I started my slow and steady path to obesity in my mid 20's. Age and some injuries have led me to believe this is my best course at age 50+(Alameda)Pre-op__________________________________________________

[Guest guest]

Welcome

Feel free to ask anything someone here will most likely be able to give you an answer to a question you might have.

Roseheresawho wrote:

Hello- I've been lurking here for a couple of weeks and have attended two support groups in Oakland. The knowledge, insight, candor and caring here is great!I had my orientation in Richmond on the 5th of this month an am currently chipping away at that pesky 10%. I'm trying to abide by the Kaiser 1200 calorie party line and have diligently been using my often neglected treadmill. FitDay and cardio monitor have been helpful tools…13 down, 20 to go… I was a big, but athletic kid. Didn't hit 200lbs until I was 20. I started my slow and steady path to obesity in my mid 20's. Age and some injuries have led me to believe this is my best course at age 50+(Alameda)Pre-op__________________________________________________

[Guest guest]

Welcome , and good luck to you!

Laurie

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Welcome , and good luck to you!

Laurie

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs