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Urine Retention??'s

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Hello:

I remember a few months ago we had some discussions on Urine Retention

(Kass your daughter had just gone to the MD). Anyway, Hailey is 4 yrs &

Brenna 2 yrs last month they were both in the hospital with the Flu.

Hailey went 26 hr before any urine output and had 300 cc's. Brenna was

cathed at 25 hrs and had 410 cc +. They both used to do this only

during illness or heat. Now within the past 2 months Brenna is doing it

more and more. Yesterday she went 22 hrs before going.

We have done the bladder scans at the urologist. Our last appt in

October we were told we need to straight cath Brenna 2x's per day, then

while the MD was writing up the orders Brenna had a wet diaper and the

MD told us

" see you in 1 yr " . Very drastic change in just a few minutes.

As of Friday the nurse in urology said we are to straight cath both of

them if they go longer than 12 hr with out urine output. She also

scheduled them for a urodynamics testing. Can anyone tell me more about

this test?? At this point I don't think the urologist is being very

proactive or helpful. It seems to be our wonderful metabolic MD that is

helping us out and concerned over their bladder issues.

Both girls have had ultra sounds and all looks normal on the scans.

Any input or opinions on this issue would be great.

Thanks for listening!

Kerry

Plymouth, MA

Hailey 4 yrs Mito & FOD

Brenna 2 yrs Mito & FOD

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