Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 hi everyone, with the help of many wonderful people (thank you thank you thank you!), many websites, much research and a few long lonely nights spent with my computer (as I too am fighting the insomnia lately) TAAAAA DAAAAAH !!!!!! Here is what I have put together so far and what I am going to use to appeal to our prescription drug plan to get our Co-Q10 covered. If they don't approve it, I am going to appeal to our medical insurance carrier (a different company) to have it covered under durable medical equipment per the FDA regulation. The first page is a list of what I am going to include when I have all my information. I numbered the document by the different sections included. I have not received the doctor's letter yet for either of us so I haven't included it. I also have not drafted the family letter as I am going to expand on our physician's notes in my personal appeal. Also, the state of Indiana does not have legislation yet to force the company to comply, so that is also not there. Some states do have legislation in place. I know from some previous emails that some people here were trying to get a list together of the states with the legislation already in place. It would be helpful to get that list together or have it if it is complete yet. Also the Health and Human Services Letter I had to scan and then insert it in as an image so I hope there aren't any problems with anyone reading that. I have saved this in MS Word document format so if you loose the formatting don't worry too much. It shouldn't be too hard to figure out. It is 10 pages the way I have it formatted though. If you can't get this off the groups page, please email me directly at wisecam@... and I will email it directly to the address you specify. Good luck everyone! Lets make these companies pay !!!! Hope this helps, AnnMarie- Complex IV Married to my best friend Rick, mom of (14), (11), Cassandra(5 1/2) and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) Quote Link to comment Share on other sites More sharing options...
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