Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 > > Just got a call from my youngest daughter's doc.Molly is as of yet > undiagnosed.Her GI doc ran the tests on my request and now doesn't > know what tomake of it. Her carnitine level is decreased. Is this > normal in all of mitochondrial disorders? Is this normal for other > people? > We are still working on tying our families problems together, and I > am just not sure where this leads us. She is relativley healthy. She > has some signs of dysautonomia (temp inst. red cheeks), and some > signs of hypoglycemia. She also has food senstivities (wheat, > peanut, milk and egg). All little things that don't necesarily tie > anything together. Developmentally she is right on track (or > advanced). She doesn't seem to have any of the strength issues > has. > Of course I am confused and concerned. Any help would be appreciated. > > Dawn Myers Quote Link to comment Share on other sites More sharing options...
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