Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Anne, I would love to speak to some of these parents and also get my hands on his book. Thank you so much! Horsley leehorsley@... Re: info on CO2 retention in children needed Hi,I belong to a Myopathy list and lots of the children on that list have breathing problems b/c of weakness in the respiratory muscles and they have found Dr. Bach to be really helpful - I believe he's located in NJ and he has a book out as well. His perspective I believe is to make the patients as comfortable as possible and as mobile as possible (not trached). If you are interested in finding more info., I can hook you up with one of the parents on the list who has used him for help. Let me know, put Anne R on the subject list and I'll make sure not to accidently miss it.Anne R Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi, The book is called "Management of Patients with Neuromuscular Disease" and I ordered it from Amazon. It's by Dr. R. Bach. I'll get in touch with the other parents who've seen him and give them your e-mail. OK? Anne R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi, The book is called "Management of Patients with Neuromuscular Disease" and I ordered it from Amazon. It's by Dr. R. Bach. I'll get in touch with the other parents who've seen him and give them your e-mail. OK? Anne R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi, The book is called "Management of Patients with Neuromuscular Disease" and I ordered it from Amazon. It's by Dr. R. Bach. I'll get in touch with the other parents who've seen him and give them your e-mail. OK? Anne R Quote Link to comment Share on other sites More sharing options...
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