Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Ann, Audrey seems to change from minute to minute. She is battling another respiratory infection. She is back on antibiotics and breathing treatments. Today she is very weak again, can hardly keep her eyes open. It wasn't but a few days ago and she was all smiles, Amie said then, she figured Audrey was coming down with something again. It seems like this is her pattern, she will be all smiles just before she gets a bad spell. I am sorry I have been amiss about keeping up with everyone lately, but at times I just want to pretend she is going to be fine so I don't think about the what ifs and when's. I guess I want to put my head in the sand at times. I have been keeping up with reading as much as I can, and I have been praying for all of you on the list. You guys are all so great. I am having a little problem with my son. He is mad at Amie and just doesn't understand why she isn't home 24/7. I have tried to explain why Amie needs to get out, but he is so stubborn. He has 3 healthy children and he has to travel for his job and he says he has a hard time being away from his children and so Amie should be there all the time. I try to tell him that it is an entirely different situation but he doesn't get it. I guess it is hard for people to understand if they aren't in the situation. Thank you Ann for asking about Audrey. You are all such a great bunch of people. I will try to do better about keeping you all posted. Kathy, grandma to Audrey, 32 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Ann, Audrey seems to change from minute to minute. She is battling another respiratory infection. She is back on antibiotics and breathing treatments. Today she is very weak again, can hardly keep her eyes open. It wasn't but a few days ago and she was all smiles, Amie said then, she figured Audrey was coming down with something again. It seems like this is her pattern, she will be all smiles just before she gets a bad spell. I am sorry I have been amiss about keeping up with everyone lately, but at times I just want to pretend she is going to be fine so I don't think about the what ifs and when's. I guess I want to put my head in the sand at times. I have been keeping up with reading as much as I can, and I have been praying for all of you on the list. You guys are all so great. I am having a little problem with my son. He is mad at Amie and just doesn't understand why she isn't home 24/7. I have tried to explain why Amie needs to get out, but he is so stubborn. He has 3 healthy children and he has to travel for his job and he says he has a hard time being away from his children and so Amie should be there all the time. I try to tell him that it is an entirely different situation but he doesn't get it. I guess it is hard for people to understand if they aren't in the situation. Thank you Ann for asking about Audrey. You are all such a great bunch of people. I will try to do better about keeping you all posted. Kathy, grandma to Audrey, 32 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Kathy, thank you so much for the update. Audrey has a special place in my heart, and I'd been wondering about her, too. Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 You are so right he doesn't "get" it. Being with children 24/7 with average children can wear on you. That is why they always encourage parents to get out on a date and think of themselves instead of their children. And when you have a child with special needs it can be very hard to leave because you can't always get any old babsitter for your child. Probably because your son travels so much he honestly misses his kids and can't understand why any one would want to leave their kids if they have the opportunity to be with them all the time because may be he is gone all the time. A parent can get burn out carrying for every one but themselves. I applaud Amie that she can leave. Many times parents feel they shouldn't leave because they miss something or feel they have to do it all the time because no one else can. So she is a strong person that she knows others can care just as well for Audrey as she can. I don't know how to get your son to get it. Unless you get some information from a counselor or such to have some thing written down of how important it is for Amie to leave for several hours. That is one reason why I love to go to the YMCA to exercise. Granted my husband is home right now to take care of Leah. But my mind doesn't have time to dwell on what I need to do with Leah because it is busy trying to remember all the steps the instructor is giving me in step aerobics. I am babysitting also for 4 kids and one of them has down syndrom and the mother and father are out of the country. She is trusting me to do what she does for her son and she knows all will be ok with her children. May be your son is afraid that some thing will happen to Audrey when Amie isn't around that could have prevented some thing. We can't be with every one all the time. Keep trying to get him to understand. Or tell him he may need to keep his thoughts to himself if he can't understand her situation. Because unless you walk in that persons shoes, you have no understanding of what that person is going through and should listen more than offering advice. Keep us posted about Audrey when you can. I'm sorry to hear she is fighting yet another infection. You are a strong Grandmother and offer so much support to all of your family members. Nerenhausen mom to Leah Dklboone@... wrote: Ann, Audrey seems to change from minute to minute. She is battling another respiratory infection. She is back on antibiotics and breathing treatments. Today she is very weak again, can hardly keep her eyes open. It wasn't but a few days ago and she was all smiles, Amie said then, she figured Audrey was coming down with something again. It seems like this is her pattern, she will be all smiles just before she gets a bad spell. I am sorry I have been amiss about keeping up with everyone lately, but at times I just want to pretend she is going to be fine so I don't think about the what ifs and when's. I guess I want to put my head in the sand at times. I have been keeping up with reading as much as I can, and I have been praying for all of you on the list. You guys are all so great. I am having a little problem with my son. He is mad at Amie and just doesn't understand why she isn't home 24/7. I have tried to explain why Amie needs to get out, but he is so stubborn. He has 3 healthy children and he has to travel for his job and he says he has a hard time being away from his children and so Amie should be there all the time. I try to tell him that it is an entirely different situation but he doesn't get it. I guess it is hard for people to understand if they aren't in the situation. Thank you Ann for asking about Audrey. You are all such a great bunch of people. I will try to do better about keeping you all posted. Kathy, grandma to Audrey, 32 mos Please contact mito-owner with any problems or questions. This message scanned for viruses by Corecomm Quote Link to comment Share on other sites More sharing options...
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