Re: Therapy and older kids

[Guest guest]

I agree that doing nothing is the hardest thing of all.Sometimes though it's the only thing we can do.

had PT,OT and speech for years.When it got where she couldn't handle it anymore we had to stop.Her muscles are getting weaker and she is loosing muscle tone but after trying again with the PT and seeing what it did to her,it just was not worth it.

A few years ago we tried teaching her Braiile,she was doing very well I might add.Then all of a sudden she just shut down.She couldn't do the braille,she couldn't do anything.

They say the brain uses the most energy and in that seems to be the case.

I wish we COULD do more but..................

,Mom to

Re: Therapy and older kids

Hard decisions because we so want to do everything we can to maximize our children's potential. Sometimes the best thing to do is nothing but that seems harder for me to accept than when I am doing something.

Anne,

I so appreciate your thoughtfulness on this issue. We used to struggle with this one with Mamie Rose, as well. Therapy choices get harder as kids grow.

Maggie, mom to Mamie Rose, Complex I, 1/15/93 - 12/23/03Please contact mito-owner with any problems or questions.