Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi everyone. I'm having a rotten week, feeling a little helpless. This is such a lonely disorder and I'm glad I found all of you. I don't post much but a read all of yours every day. I was looking at pictures last night and ran across Abbey's 3 year birthday photos. I realized just how far she's come along in the past 6 mo. but I was also reminded of how far behind she is. Abbey is still a little small for her age but it's becoming more and more noticeable that she's delayed. People expect her to be able to do " 3 yr. old " things and I'm tired of explaining why she doesn't say thank you when the bank teller gives her a sucker or the bagger at the grocery store gives her a sticker. I'm not embarrassed I just thought that she would be " caught up " by this time. Her disorder is mild and the doctors expected her to be further along than she is. When I ask what we can do different they say " nothing " . I keep reading about how a lot of you see your specialist several times a year - we have only seen ours once and talk to him only a few times a year just to have him say that we have to wait and see. Maybe that is all we can do but I can't stand sitting by and waiting. I am willing to try anything! What kind of advice, testing are your doctors recommending? I've heard a lot about Dr. Cohen but I understand that he's hard to get an appointment with. Any other suggestions? We live in SC but we will travel anywhere. Thanks for any info. and/or advice. Quote Link to comment Share on other sites More sharing options...
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