Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 I did talk to Dr. Whiteman about this issue and he was thinking she probably isn't utilizing her carnitine and it is going straight through which will cause a very strong odor in the urine. The dehydration issue could be a possibility as well since the urine was dark yellow, even though there was quite a lot because her bladder seems to retain urine until she sleeps when it can relax. The ammonia was my first thought as both my girls tend to raise their ammonia levels when ill. Guess there are several possibilities. Darla: mommy to Asenath, Zipporrah, and the gang Re: Re: urine odor ? When Abigail;s urine has that smell her amino acid levels are off. I can't think if they were up or down...it is really late here and I have been up since three this morning. I was told that is a part of mito and is in connection with changes in her muscles. Athletes go through it too. Mystgazubich wrote: Darla, I know the smell you are talking about but have not been able to pin point it either. Wyatt use to sweat that smell. Dr. Whiteman told us next time we smelled the smell to take a urine sample and wrap it up tightly with shipping tape and then have it sent to Mayo. He had some tests in mind that he would run. He really stressed the taping the sample tight because the odor/smell could evaporate before they get to test it. Sorry I can not be of more help, but wanted you to know that I know that smell. Sorry for all of the troubles you have been having.Geri-Anne and Wyatt, Complex I> Asenath is getting sicker and this morning I noticed a horrible cleaner type smell in her urine. Dark yellow urine and possible ammonia type smell? Means what again? Her temperature is a little elevated as well so following her closely. Any help is appreciated as labs were not drawn at hospital. > > Darla: mommy to: > Asenath (4) Mito, brain vasculitis, strokes, migraines, seizures, g-tube, disautonomia issues, hypotonia, heat/exercise intolerance, oxygen use, asthma... > Zipporrah,(5 mon.)Mito, strokes, sensory issues, feeding/breathing issues..Get more from the Web. FREE MSN Explorer download : http://explorer.msn.comPlease contact mito-owner with any problems or questions. Get more from the Web FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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